Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for December 2022

Thursday Chuckle

I renewed my car insurance over the phone this morning. At the end of the call, they asked me if I had a pet. When I told them that I had a dog, they asked...

I renewed my car insurance over the phone this morning. At the end of the call,...

Paul_and_Sue_Wood

•1 year ago

Christmas Chuckle

A little ditty for Christmas Day for us all. Have a great day everyone and here is hoping for a stable and happy 2023 where we can enjoy family and friends....

A little ditty for Christmas Day for us all. Have a great day everyone and here ...

Paul_and_Sue_Wood

•1 year ago

Merry Christmas 2022

Our very best wishes to everyone this Christmas and our hope that the New Year is as good as possible. Take care Ian & Jackie x

Our very best wishes to everyone this Christmas and our hope that the New Year i...

•1 year ago

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Christmas Chuckle

Holiday time is for feasting; We look forward to each treat. The tables are full of our favorite foods; We’ve got lots of good things to eat. We scarf...

Holiday time is for feasting; We look forward to each treat. The tables are ful...

Paul_and_Sue_Wood

•1 year ago

Christmas Chuckle

I'm dreaming of a white Christmas, Just like the ones I used to know But if I should run out of the white I will gladly drink the red though.

I'm dreaming of a white Christmas, Just like the ones I used to know But if I s...

Paul_and_Sue_Wood

•1 year ago

having a bad day.

I’ve spent most of today crying. I hate this life, hate that I can only leave the house accompanied and hate that at 52yrars of age I live like this. Sorry.

I’ve spent most of today crying. I hate this life, hate that I can only leave th...

•1 year ago

Update

Hello all, I posted a couple of weeks ago asking if a letter from a neurologist meant I had MSA, I took the advice you gave me and contacted my neurologist who...

Hello all, I posted a couple of weeks ago asking if a letter from a neurologist ...

•1 year ago

Sue Peg update and a Question

Hi All I posted that Sue had an issue with her PEG and after som wise words from Ian along with Jill from MSA Trust and our great GP we worked out it was a...

Hi All I posted that Sue had an issue with her PEG and after som wise words fro...

Paul_and_Sue_Wood

•1 year ago

Christmas Chuckle

I made myself a snowball,As perfect as could be, I thought I’d keep it as a pet, And let it sleep with me. I made it some pajamas, And a pillow for its...

I made myself a snowball,As perfect as could be, I thought I’d keep it as a pet,...

Paul_and_Sue_Wood

•1 year ago

Voicebox?

Our lass in floods of tears with her mam being so ill with MSA, still no diagnosis for lewy body either as was recommended, but my in-laws have FINALLY...

Our lass in floods of tears with her mam being so ill with MSA, still no diagnos...

•1 year ago

advice

I currently wall surf around the house trying hands free Outside I use a Walker, accompanied. Longer journeys i use a wheelchair or mobility scooter when I...

I currently wall surf around the house trying hands free Outside I use a Walke...

•1 year ago

my brother

after 5 plus years, living and struggling with msa and ataxia, my 55yo brother passed away yesterday. Though he died trying to fight , pneumonia, sepsis &an...

after 5 plus years, living and struggling with msa and ataxia, my 55yo brother p...

•1 year ago

Struggling :(

I just feel every day my struggle to get out and do something or anything is just not there. 3 days of getting out & being active has left me with nothing!...

I just feel every day my struggle to get out and do something or anything is ju...

•1 year ago

Sedation issue

Hi my husband has been in hospital overnight twice in last 2 weeks to have PEG fitted. 1st visit they couldn't do it as no-one told us to stop his copidogrel...

Hi my husband has been in hospital overnight twice in last 2 weeks to have PEG f...

•1 year ago

Christmas Chuckle

It was Christmas Eve. A poor old lady was sitting alone, except for her cat, in her tiny house, in front of a small fire. Suddenly, there was a flash of light,...

It was Christmas Eve. A poor old lady was sitting alone, except for her cat, in ...

Paul_and_Sue_Wood

•1 year ago

Prescriptions

Evening all, this ggrreeting is more effective used with a casual salute !Seriously for a mo thought I'd just mention something that is probably obvious to...

Evening all, this ggrreeting is more effective used with a casual salute !Seriou...

•1 year ago

Bowels

I lost the control of my bladder and have a catheter about 12months ago is it likely that I have lost control of bowels l soil myself and go from veryloose...

I lost the control of my bladder and have a catheter about 12months ago is it li...

•1 year ago

Throat Symptoms

Recently found that I am unable to gargle. If I have a conversation I begin to lose my voice within 1/2 hour. I have woken in the morning to find a grain of...

Recently found that I am unable to gargle. If I have a conversation I begin to l...

•1 year ago

Thursday Chuckle

Kneeling in front of the fireplace a boy shouts loudly: "Dear Santa, I WANT A NINTENDO SWITCH!" After a slight silence: "Dear Santa, I WANT A NINTENDO...

Kneeling in front of the fireplace a boy shouts loudly: "Dear Santa, I WANT A NI...

Paul_and_Sue_Wood

•1 year ago

New symptoms?

Found cantt write numbers now1Anyone wlse? SUE

Found cantt write numbers now1Anyone wlse? SUE

•1 year ago

Progression

Have others experienced sudden worsening of symptoms without an apparent cause? My husband's decline has been slow but this morning all symptoms were much...

Have others experienced sudden worsening of symptoms without an apparent cause? ...

•1 year ago

Four Counties MSA Support meeting THIS Wednesday

Four Counties Support Group (Gloucestershire/Worcestershire/Oxfordshire/Herefordshire) If you live in one of these counties we would like to invite you to...

Four Counties Support Group (Gloucestershire/Worcestershire/Oxfordshire/Herefor...

•1 year ago

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Damn scammers

So I've just had some charlatan post on one of my insta posts about running to raise funds for MSA claiming they had MSA but had followed a naturopathic regime...

So I've just had some charlatan post on one of my insta posts about running to r...

•1 year ago

Thursday Chuckle

Need Christmas advice please! My children keep finding their Christmas presents that I've hidden around the house. Someone suggested I should just keep them...

Need Christmas advice please! My children keep finding their Christmas presents...

Paul_and_Sue_Wood

•1 year ago

PEG pain

All My Sue has had a PEG for near 5 years and it has been a life saver I am sure as I've maintained good food intake and therefore better health. She does get...

All My Sue has had a PEG for near 5 years and it has been a life saver I am sure...

Paul_and_Sue_Wood

•1 year ago

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