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Multiple System Atrophy Trust

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Brave Warrior

my best friend of 53 years sadly died yesterday after coming to the end of MSA age 55 years old. She never let this cruel disease get her down, never...

my best friend of 53 years sadly died yesterday after coming to the end of MSA a...

Titanium-Julie

•6 months ago

11 Replies

Insight into my Mum's last few weeks

Hi, I've been on this chatroom for a few years now and my first post was desperately trying to work out what signs to look out for so i had an idea how much...

Hi, I've been on this chatroom for a few years now and my first post was despera...

Blubetty

•8 months ago

13 Replies

MRI Scan not showing up MSA

Husband had a mri scan doctors are saying results not clear for MSA is this normal! He had an abnormal Datscan when he was originally diagnosed with Parkinson...

Husband had a mri scan doctors are saying results not clear for MSA is this norm...

Bamboot

•9 months ago

10 Replies

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gabapentin

hi. I have msa c I take 600 mg a day of gabapentin for nerve pain recently. I’ve developed a red itchy rash on my chest. I’m wondering if anyone else of had...

hi. I have msa c I take 600 mg a day of gabapentin for nerve pain recently. I’v...

butlin

•1 year ago

2 Replies

ferritin level high

helloEveryone I hope you are well.My ferritin levels are high and before I see my neurologist I was wondering if anyone else had this too and how was it dealt...

helloEveryone I hope you are well.My ferritin levels are high and before I see m...

PaulaG3

•2 years ago

4 Replies

STAGES - A COMPARISON.

There are quite a lot of posts asking about disease stages, it's a common theme and understandably so. The standard answer is of course that with MSA everyone...

There are quite a lot of posts asking about disease stages, it's a common theme ...

ReverendBadger

•2 years ago

15 Replies

Cisplatin based chemotherapy and neck irradiation for cancer has caused Parkinsonism/MSA symptoms in my husband and no diagnosis yet. Help.

My husband received treatment for head and neck cancer 10 years ago. He’s in remission but the long term effects have caused problems. Now, he struggles with...

My husband received treatment for head and neck cancer 10 years ago. He’s in re...

Jillian100

•2 years ago

6 Replies

coping with depression

Can anyone offer any ideas for a recently diagnosed friend who is deeply depressed by the diagnosis. Feeling totally lost and unable to see ahead this person...

Can anyone offer any ideas for a recently diagnosed friend who is deeply depress...

Hidden

•2 years ago

17 Replies

Normal DAT Scan and MSA Diagnosis

Hello My wife received a MSA-P probable diagnosis a year ago which like all of us in this community took ages to get and as long to emotionally accept. We...

Hello My wife received a MSA-P probable diagnosis a year ago which like all of u...

Degsy60

•3 years ago

2 Replies

Sad news 😢

The saddest of news I’m afraid. My darling sweet and kind husband, Martin 76 years young, passed away peacefully at home early on Saturday morning. In April...

The saddest of news I’m afraid. My darling sweet and kind husband, Martin 76 yea...

Floosie5uk

•3 years ago

24 Replies

Newly diagnosed with MSA

Hi. Recently diagnosed with MSA, I’m 60 next week, looking back have had symptoms almost three years ago. I’m intrigued to hear if many make it past 9 years...

Hi. Recently diagnosed with MSA, I’m 60 next week, looking back have had symptom...

PTS1

•3 years ago

12 Replies

Speech Therapy costs

My husband is suffering with probable MSA and as his speech is deteriorating, we feel he needs to see a speech therapist. He is on a NHS waiting list but...

My husband is suffering with probable MSA and as his speech is deteriorating, we...

Jud11

•3 years ago

27 Replies

New hope

New hope ! My brother's research has uncovered that modern articles are now linking MSA and PD to changes in gut microbiome (caused by external toxins, diet,...

New hope ! My brother's research has uncovered that modern articles are now lin...

Juliehabib

•4 years ago

9 Replies

School MSA Survey

Hi Everyone, we have been very busy navigating the changes to my husbands MSA and also raising our children. Some days are more challenging than others, but I...

Hi Everyone, we have been very busy navigating the changes to my husbands MSA an...

LaCrosse87

•4 years ago

33 Replies

Introducing myself to your Community.

As a newbie to this community, I am not new to to HU, as I have a large number of co-morbidity diagnoses, some of which have included the word ‘atrophy - ie....

As a newbie to this community, I am not new to to HU, as I have a large number o...

Splodge60

•4 years ago

5 Replies

Possible environmental impact of diet and medications on the onset of MSA symptoms

Title: possible Environmental Impact of diet and medication on the onset of MSA symptoms: Question, Did anyone: 1. Have celiac or gluten intolerance? 2....

Title: possible Environmental Impact of diet and medication on the onset of MSA...

Juliehabib

•4 years ago

29 Replies

Frequent falls when knee gives out

My husband was diagnosed with MSA-C about 2 years ago, although he had symptoms for a couple years prior. My question is, he has been falling every day lately...

My husband was diagnosed with MSA-C about 2 years ago, although he had symptoms ...

Andrashko

•4 years ago

14 Replies

What are the last stages of MSA?

Hi guys, I’m a carer for a patient with MSA, would love to hear about your experiences as this is my first, I’d like to know what to expect and if there are...

Hi guys, I’m a carer for a patient with MSA, would love to hear about your exper...

RhiMallorca

•4 years ago

4 Replies

Help MSA query!

If a persons suffers from msa started to choke already has syringe driver for secretions, but oral swabs and suction machine doesn’t do the trick, how can I...

If a persons suffers from msa started to choke already has syringe driver for se...

RhiMallorca

•4 years ago

5 Replies

Forgetfulness

My dad seems to be getting confused now and today , for instance I went down to see him and he was saying he hadn’t had his breakfast , which my mum had given...

My dad seems to be getting confused now and today , for instance I went down to ...

chester2107

•5 years ago

6 Replies

msa

hi i have msa and i have been told that i have a small stomach ulcer and erosions but my GI dose not seem to wont to treat this, is this because of my msa,...

hi i have msa and i have been told that i have a small stomach ulcer and erosion...

butlin

•5 years ago

4 Replies

Chris my late wife

Hi I’m new on here but been a member of the Msa trust for about three years I lost my wife to Msa in February the trust helped me a lot especially Katie

Hi I’m new on here but been a member of the Msa trust for about three years I lo...

Daleston10

•5 years ago

2 Replies

Lost my mom to MSA

Hello everyone A month ago I lost my mom (55) to MSA. She had been diagnosed with Parkinson's disease in 2014 and was later diagnosed with MSA. Well, at least...

Hello everyone A month ago I lost my mom (55) to MSA. She had been diagnosed wi...

marliesso

•5 years ago

27 Replies

Newbie

Hi there. I'm new to this site and finding my way about. My brother in law has been diagnosed with MSA and although I try to support him and my sister as much...

Hi there. I'm new to this site and finding my way about. My brother in law has b...

VJay62

•6 years ago

18 Replies

Gone, but finally at peace.

On Monday 5th November my mum took her last breath. She had needed 24 hour care and was in total pain for the last year. She was with family and will be missed...

On Monday 5th November my mum took her last breath. She had needed 24 hour care ...

Searching01

•6 years ago

9 Replies

Hello

I was diagnosed with MSA In 2012 and have been learning more about it since then. I look forward to learning what insights this group has to share.

I was diagnosed with MSA In 2012 and have been learning more about it since the...

HollyBee51

•7 years ago

17 Replies

MSA Support Group - Worcestershire and surrounding area - meeting Thursday 8th June

Just a quick reminder about the next Support Group meeting for people affected by MSA in Worcestershire and the surrounding areas will take place this Thursday...

Just a quick reminder about the next Support Group meeting for people affected b...

Yanno

•7 years ago

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Worcestershire Support Group - meeting 8th June

Paul, (Genesis1) asked that I give advance notice of the next Worcestershire Support Group meeting for people affected by MSA in and around Worcestershire....

Paul, (Genesis1) asked that I give advance notice of the next Worcestershire Sup...

Yanno

•8 years ago

1 Reply

Happy Holiday to everyone

Happy Easter weekend to everyone. Jackie and I send our very best wishes to all. We hope that you have a peaceful and as enjoyable a weekend as possible....

Happy Easter weekend to everyone. Jackie and I send our very best wishes to all...

Yanno

•8 years ago

4 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

MSA posts

Brave Warrior

Insight into my Mum's last few weeks

MRI Scan not showing up MSA

gabapentin

ferritin level high

STAGES - A COMPARISON.

Cisplatin based chemotherapy and neck irradiation for cancer has caused Parkinsonism/MSA symptoms in my husband and no diagnosis yet. Help.

coping with depression

Normal DAT Scan and MSA Diagnosis

Sad news 😢

Newly diagnosed with MSA

Speech Therapy costs

New hope

School MSA Survey

Introducing myself to your Community.

Possible environmental impact of diet and medications on the onset of MSA symptoms

Frequent falls when knee gives out

What are the last stages of MSA?

Help MSA query!

Forgetfulness

msa

Chris my late wife

Lost my mom to MSA

Newbie

Gone, but finally at peace.

Hello

MSA Support Group - Worcestershire and surrounding area - meeting Thursday 8th June

Worcestershire Support Group - meeting 8th June

Happy Holiday to everyone

Search posts

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Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

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