Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,774 members•1,424 posts

All posts for January 2023

Since when does MSA have a silent A in its title?

Good evening everybody, I’m writing this from my bedside in a ward at one of Birmingham’s finest NHS hospitals recovering from a Tracheostomy operation. My...

Good evening everybody, I’m writing this from my bedside in a ward at one of Bir...

BCFC100

•2 years ago

23 Replies

Newbie grateful for tips

My mom was diagnosed with MSA-C few months ago, after 4 years of going from doc to doc. We live in Hungary and there is no information about the desease. The...

My mom was diagnosed with MSA-C few months ago, after 4 years of going from doc ...

mazsimumus

•2 years ago

5 Replies

Thursday Chuckle

John decided to go skiing with his buddy, Keith, so they loaded up John's minivan and headed north. After driving for a few hours, they got caught in a...

John decided to go skiing with his buddy, Keith, so they loaded up John's miniva...

Paul_and_Sue_Wood

•2 years ago

3 Replies

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Spots

Hi My name is Graham i am 55 and was diagnosed with MSA C about 4 years ago. I have been reading this forum for quite some time but have never posted...

Hi My name is Graham i am 55 and was diagnosed with MSA C about 4 years ago. I...

Graham612

•2 years ago

5 Replies

Thursday Chuckle

A politician diesSo a politician dies and ends up standing in front of the pearly gates. Saint Peter looks at him for a second, flicks through his book, and...

A politician diesSo a politician dies and ends up standing in front of the pearl...

Paul_and_Sue_Wood

•2 years ago

2 Replies

Stridor

My husband with MSA has developed a wheezing noise when he breaths out ?stridor. He also suffers with breathlessness. Can anyone share experience with this?...

My husband with MSA has developed a wheezing noise when he breaths out ?stridor....

Xxtaffettaxx

•2 years ago

2 Replies

just need to talk to others with this condition

Any tips or advice on how others deal with this . How long they have had it and how the symptoms have progressed Anyone who is considering end of life help...

Any tips or advice on how others deal with this . How long they have had it and...

Olhos

•2 years ago

11 Replies

Bad day

Afternoon all, Well we are having a funny/bad day. Graham is having trouble standing up, his feet don`t seem to want to touch the floor, they just flop...

Afternoon all, Well we are having a funny/bad day. Graham is having trouble s...

mandg

•2 years ago

10 Replies

Neck & Head Pain - MSA-C

Hi everyone. My Sister has MSA-C and her illness has progressed rapidly over the past few weeks and months. She is experiencing severe neck pain and...

Hi everyone. My Sister has MSA-C and her illness has progressed rapidly over the...

HOL69

•2 years ago

5 Replies

STARTLE RESPONSE (REFLEX) DISFUNCTION.

I would be interested to know if anyone else with MSA has experienced anything like this. My startle reflex to noise has gone weird. It works fine with a loud...

I would be interested to know if anyone else with MSA has experienced anything l...

ReverendBadger

•2 years ago

6 Replies

MSA and gut/stomach pain

I have MSA and have been experiencing intermittent pains in my lower gut area. Although they are occasional, they are really disabling at the time - take your...

I have MSA and have been experiencing intermittent pains in my lower gut area. ...

Gill-C

•2 years ago

11 Replies

We lost a good one ❤️

I am so sad to say that this beast of a disease took Bart from us on January7. However, God took him in his sleep and it seems it was a peaceful transition....

I am so sad to say that this beast of a disease took Bart from us on January7. ...

CanAmK

•2 years ago

21 Replies

Thursday Chuckle

An Airbus 380 is on its way across the Atlantic. It flies consistently at 800 km/h at 30,000 feet, when suddenly a jet fighter appears. The pilot of the...

An Airbus 380 is on its way across the Atlantic. It flies consistently at 800 km...

Paul_and_Sue_Wood

•2 years ago

2 Replies

MSA Trust Support Group meet up in Cardiff - info required

Hi everyone, I'm recently diagnosed and was told that there's a Face to Face support group meet up in Cardiff , South Wales coming up next week on Weds....

Hi everyone, I'm recently diagnosed and was told that there's a Face to Face s...

Amethystina

•2 years ago

8 Replies

Losing voice!

I have had some speech problems for about a year now, stuttering, slurring words and talking very slowly but recently my voice has disappeared completely a...

I have had some speech problems for about a year now, stuttering, slurring words...

Rodjc

•2 years ago

8 Replies

Helpful Info for Speech and Swallowing Problems

I found wonderful information on YouTube from Speech Therapist Matt McKeon. Two videos I highly recommend for anyone seeking help. Wholistic Speech Therapy...

I found wonderful information on YouTube from Speech Therapist Matt McKeon. Two ...

SaltyFlorist

•2 years ago

1 Reply

Disturbing lack of complete Senior Support Services in Dallas

There are many great senior moving service companies out there that help our seniors find a new home to live comfortably throughout the 4th quarter of their...

There are many great senior moving service companies out there that help our sen...

pataalli555

•2 years ago

1 Reply

Any support greatly appreciated!

Hi, I'm new to this forum. My best friend has MSA-P. head drop syndrome and nocturnal stridor, Maggie just turned 70. She was diagnosed Aug 22 but we think had...

Hi, I'm new to this forum. My best friend has MSA-P. head drop syndrome and noct...

Whitefeather1

•2 years ago

9 Replies

Cause of cold hands?

I know cold hands ✋️ and feet 👣 are a known symptom of MSA, but anyone know why please? As soon as I mention my stoney cold hands to anyone generally, I'm...

I know cold hands ✋️ and feet 👣 are a known symptom of MSA, but anyone know why...

Frenchoak

•2 years ago

4 Replies

Thursday Chuckle

Reaching the end of a job interview, the Human Resources Officer asks a young engineer fresh out of the University"And what starting salary are you looking...

Reaching the end of a job interview, the Human Resources Officer asks a young en...

Paul_and_Sue_Wood

•2 years ago

2 Replies

4 Counties MSA Trust Support Group meeting TODAY

Four Counties Support Group (Gloucestershire/Worcestershire/Oxfordshire/Herefordshire) If you live in one of these counties we invite you to our 4...

Four Counties Support Group (Gloucestershire/Worcestershire/Oxfordshire/Hereford...

Yanno

•2 years ago

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advice needed

having M S A isn’t great but I have developed a problem , I have developed an irregular heart beat has anyone else had this?

having M S A isn’t great but I have developed a problem , I have developed an ir...

Knittoys

•2 years ago

5 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for January 2023

Since when does MSA have a silent A in its title?

Newbie grateful for tips

Thursday Chuckle

Spots

Thursday Chuckle

Stridor

just need to talk to others with this condition

Bad day

Neck & Head Pain - MSA-C

STARTLE RESPONSE (REFLEX) DISFUNCTION.

MSA and gut/stomach pain

We lost a good one ❤️

Thursday Chuckle

MSA Trust Support Group meet up in Cardiff - info required

Losing voice!

Helpful Info for Speech and Swallowing Problems

Disturbing lack of complete Senior Support Services in Dallas

Any support greatly appreciated!

Cause of cold hands?

Thursday Chuckle

4 Counties MSA Trust Support Group meeting TODAY

advice needed

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive