Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for November 2021

Link between Sjogren's (an autoimmune disease) and Multiple System Atrophy

Open Access research article: Multiple system atrophy pathology is associated with primary Sjögren's syndrome https://pubmed.ncbi.nlm.nih.gov/32644976/ ~ Among...

Open Access research article: Multiple system atrophy pathology is associated wi...

•2 years ago

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4 Counties MSA Support Group (OX,WR, HR, GL) this Wednesday 2pm

Tomorrow is the first of the month and the first Wednesday and so the 4 Counties Support Group will be meeting at 2pm. As always, it will be a Zoom meeting...

Tomorrow is the first of the month and the first Wednesday and so the 4 Counties...

•2 years ago

Useful place for care items

Hi. We used this online shop for a lot of day to day items for eating and drinking and bed pads etc and they have a Black Friday sale on. Other shops are very...

Hi. We used this online shop for a lot of day to day items for eating and drinki...

•2 years ago

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He's gone now.

After fighting until the very end, my dad passed away peacefully at 1.55am, just as a dream I had two weeks ago predicted. He was surrounded by his family and...

After fighting until the very end, my dad passed away peacefully at 1.55am, just...

•2 years ago

Thursday Chuckle

After having dug to a depth of 10 feet last year, Canadian scientists found traces of copper wire dating back 200 years and came to the conclusion that their...

After having dug to a depth of 10 feet last year, Canadian scientists found trac...

Paul_and_Sue_Wood

•2 years ago

I think we are at the end...

My dad is nearing the end of this journey. Not even 2 years after diagnosis! He's currently on end of life care in the nursing home, not eating or drinking,...

My dad is nearing the end of this journey. Not even 2 years after diagnosis! He'...

•2 years ago

Thank you

Hello everyone, WOW, I didn’t expect a response like that. It’s so very kind of all of you to take the time to reply to my question. I think everyone seems to...

Hello everyone, WOW, I didn’t expect a response like that. It’s so very kind of ...

•2 years ago

Saturday Cringe..... following my repeat of last week.

Every Friday night my wife and I go to the chippy for tea. But this Friday I went on my own for our Normal order of pie and chips. But this time there were no...

Every Friday night my wife and I go to the chippy for tea. But this Friday I wen...

Paul_and_Sue_Wood

•2 years ago

Time!

Hi chaps, I’m really not sure how to put this.!! My wife now 57, we hav been together since she was 16. Back in 2016 went to the doc’s for something and...

Hi chaps, I’m really not sure how to put this.!! My wife now 57, we hav been tog...

•2 years ago

Recently lost My Alan

Hi I recently lost my husband to MSA and was wondering what groups or people living in Scotland for me to talk to thanks in advance Ruth x

Hi I recently lost my husband to MSA and was wondering what groups or people liv...

•2 years ago

Thursday LATE Chuckle

A young man named John received a parrot as a birthday gift: Unfortunately, the parrot had a bad attitude and an even worse vocabulary. Every word out of this...

A young man named John received a parrot as a birthday gift: Unfortunately, the ...

Paul_and_Sue_Wood

•2 years ago

Levodopa

My husband has been prescribed Levodopa but has MSA -C . I appreciate we are all different but wondered what experiences people have had ? Side affects ?...

My husband has been prescribed Levodopa but has MSA -C . I appreciate we are all...

•2 years ago

Shoulder Pain

Pain in my shoulder radiates down my arm, I have full movement but the pain is becoming unbearable. Any suggestions to ease it or what’s causing it. Thanks x...

Pain in my shoulder radiates down my arm, I have full movement but the pain is b...

•2 years ago

Thursday Chuckle...

A young man named John received a parrot as a birthday gift: Unfortunately the parrot had a bad attitude and an even worse vocabulary. Every word out of this...

A young man named John received a parrot as a birthday gift: Unfortunately the p...

Paul_and_Sue_Wood

•2 years ago

Do not go gentle…

Seen in The Times this morning! A retired university lecturer was arrested by six police officers in his back garden for baring his bottom at a speed camera,...

Seen in The Times this morning! A retired university lecturer was arrested by si...

•2 years ago

Very noisy breathing

Hi everyone, Our carers, who are very good, have told me that they think Ian is wheezing which is obviously not good. I have realised I am not really sure...

Hi everyone, Our carers, who are very good, have told me that they think Ian is...

Courgettegrower

•2 years ago

Symthom change!!!

I'm hoping someone has advice with a current problem my husband is having. When i get him up or he walks a short distance to the bathroom. He starts to clench...

I'm hoping someone has advice with a current problem my husband is having. When ...

•2 years ago

Housing

Does anyone have experience of moving to a council property because they can no longer stay in their own home? We own our terraced house but it is very small....

Does anyone have experience of moving to a council property because they can no ...

•2 years ago

suggestions please

I need some suggestions. He feels very wobbly and unsteady for 3 weeks now. Antibiotics for chest infection. On BP meds. Now feels very very weak. Any ideas?...

I need some suggestions. He feels very wobbly and unsteady for 3 weeks now. Anti...

•2 years ago

Challenging!

Thought it might help to hear our experience over the last couple of weeks. Mum is now quite advanced and looked after in a nursing home. She's been there all...

Thought it might help to hear our experience over the last couple of weeks. Mum...

•2 years ago

GP rant🥲

I had to se my GP following receiving a letter from my neurologist advising about the MSA & medication will be needed to be prescribed by them. It was 10...

I had to se my GP following receiving a letter from my neurologist advising abo...

•2 years ago

Feel like giving up

We went to see a Neurologist yesterday and I had high hopes , as we haven’t been seen for nearly two and a half years . I came out feeling tearful , frustrated...

We went to see a Neurologist yesterday and I had high hopes , as we haven’t been...

•2 years ago

Writing everything down saved time and ultimately the day!

I know I extol the virtues of writing everything down and watching my wife like a hawk, but doing so paid off this weekend. Friday evening Sue says she has a...

I know I extol the virtues of writing everything down and watching my wife like ...

Paul_and_Sue_Wood

•2 years ago

4 Counties Support Group (OX,WR, HR, GL) this Wednesday 2pm

Tomorrow is the first Wednesday of the month and so the 4 Counties Support Group will be meeting at 2pm. As always, it will be a Zoom meeting with a special...

Tomorrow is the first Wednesday of the month and so the 4 Counties Support Group...

•2 years ago

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