Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,774 members•1,424 posts

All posts for September 2023

Chuckle time

😂 Lemon DropsThe local bar was so sure that its bartender was the strongest man around that they offered a standing £1000 bet. The bartender would squeeze a...

😂 Lemon DropsThe local bar was so sure that its bartender was the strongest man...

Paul_and_Sue_Wood

•1 year ago

2 Replies

Travel insurance

I need to do a bit of research and thought the fountain of knowledge that is this site it the place to start. I`m looking to book a holiday for next June, so...

I need to do a bit of research and thought the fountain of knowledge that is thi...

mandg

•1 year ago

5 Replies

Physio

Well Les had physio round today and she seems to think he should be able to get his strength back with exercise, She didn’t seem to know much about MSA so I’m...

Well Les had physio round today and she seems to think he should be able to get ...

DeeMilo25

•1 year ago

8 Replies

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Low blood pressure episodes

My husband is around 6 years into MSA and has recently been experiencing episodes of low blood pressure which are causing him to pass out. Indeed I had to call...

My husband is around 6 years into MSA and has recently been experiencing episode...

Jud11

•1 year ago

6 Replies

leg pain

I have MSA-C I am getting a lot of pain in my legs, but especially excruciating pain every few days in my calf. Is this something anyone else experiences?...

I have MSA-C I am getting a lot of pain in my legs, but especially excruciating ...

Reader103

•1 year ago

6 Replies

Respite in South Bucks

HiI am new to this site. My lovely mum who is 78 lives with me after my healthy father passed away with covid in 2020. She was diagnosed with Parkinsons after...

HiI am new to this site. My lovely mum who is 78 lives with me after my healthy ...

MSACarer1000

•1 year ago

8 Replies

Are MSA and Sjogren’s related?

Hi, can anyone advise if MSA and Sjogren’s Syndrome are related as my Father had MSA and I have had Sjogren’s for about 12yrs and it is now attacking my lungs...

Hi, can anyone advise if MSA and Sjogren’s Syndrome are related as my Father had...

Cyril123

•1 year ago

2 Replies

Mr John Graham

Just been diagnosed with MSA after 5 stays in hospital.Given no medication but told to wear elasticated stockings.

Just been diagnosed with MSA after 5 stays in hospital.Given no medication but t...

johngraham36

•1 year ago

4 Replies

Les’s arms hurting

Les seems to get worse everyday, just small things I notice, he has trouble with his left arm, lots of pain in shoulder and arm locks, doesn’t have much use of...

Les seems to get worse everyday, just small things I notice, he has trouble with...

DeeMilo25

•1 year ago

4 Replies

Low blood pressure diet.

My husband has associated low blood pressure so cannot eat what we'd call a proper meal or he's likely to fall over if he gets up out of his chair. He's been...

My husband has associated low blood pressure so cannot eat what we'd call a prop...

Cat-gal

•1 year ago

7 Replies

a happy post!

I’m not sure if I told you all but Jon and I have tied the knot!

Kaye31

•1 year ago

14 Replies

Bradycardia

Hi everyone, still lurking so hope it is ok to post. R’s heart rate seems to be between 46-54 beats a minute according to his Garmin which would suggest...

Hi everyone, still lurking so hope it is ok to post. R’s heart rate seems to be ...

TigerGirl79

•1 year ago

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Undiagnosed

since 2018 I have been diagnosed separately with most of the symptoms of MSA, plus other disorders but no body has mentioned MSA. I am seeing a neurologist for...

since 2018 I have been diagnosed separately with most of the symptoms of MSA, pl...

Hidden

•1 year ago

11 Replies

question

what to do if you majority of MSA symptoms

Hidden

•1 year ago

5 Replies

News on stopping brain cells dying.

BBC News - Scientists discover how brain cells die in Alzheimer’shttps://www.bbc.co.uk/news/health-66816268 Could this transfer to MSA, we all hope!

BBC News - Scientists discover how brain cells die in Alzheimer’shttps://www.bbc...

Paul_and_Sue_Wood

•1 year ago

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acupuncture

so I am trying acupuncture for my neck and shoulder tightness and pain this coming Saturday(16/09/23), anyone else tried?

so I am trying acupuncture for my neck and shoulder tightness and pain this comi...

AndyJack

•1 year ago

8 Replies

Low sodium levels in bloodwork

My husband was dx with MSA-P in 2021 with automonic dysfunction as his dominant feature. His sodium levels have been trending downward since his dx. He...

My husband was dx with MSA-P in 2021 with automonic dysfunction as his dominant ...

Ruffner

•1 year ago

4 Replies

New to this Forum

My husband has just been diagnosed with MSA after over a year of uncertainty whether it was Parkinson's or not because he went down so quickly. By chance,...

My husband has just been diagnosed with MSA after over a year of uncertainty whe...

Cat-gal

•1 year ago

14 Replies

Has anyone tried Sertraline to help with MSA ?

Hello, My husband was diagnosed with MSA-P November 2021. Looking back symptoms started round about 2017. He has tried Medication but because he has...

Hello, My husband was diagnosed with MSA-P November 2021. Looking back symptom...

JJAJJ

•1 year ago

13 Replies

Chuckle Time

A man goes to a restaurant, orders some takeout, and sits down to wait for his food. While he waits, he grabs a handful of peanuts from the bowl on the...

A man goes to a restaurant, orders some takeout, and sits down to wait for his f...

Paul_and_Sue_Wood

•1 year ago

5 Replies

I don’t understand

hi My husband was diagnosed with Parkinson’s in 2021 after a few years of dizziness and balance problems , over the 2 years since diagnosis things have...

hi My husband was diagnosed with Parkinson’s in 2021 after a few years of dizz...

DeeMilo25

•1 year ago

32 Replies

New to the community

hiya! I’ve recently come across this forum and I feel sorry that I didn’t before. So much to learn and share! Here is my story. My mum was sadly diagnosed...

hiya! I’ve recently come across this forum and I feel sorry that I didn’t befor...

Burakakgl

•1 year ago

11 Replies

Norwegian Cruise for Sue and I

Sue and I celebrated our 40th wedding anniversary with a cruise to the Norwegian Fjords aboard the IONA taking a carer with us. Luckily “celebration night”...

Sue and I celebrated our 40th wedding anniversary with a cruise to the Norwegian...

Paul_and_Sue_Wood

•1 year ago

23 Replies

Forthcoming appointment!

I've an appointment coming up 25th Sept, with a Neurologist from the Movement Disorders Clinic which I was referred on to by the original Neurologist I was...

I've an appointment coming up 25th Sept, with a Neurologist from the Movement Di...

Frenchoak

•1 year ago

9 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for September 2023

Chuckle time

Travel insurance

Physio

Low blood pressure episodes

leg pain

Respite in South Bucks

Are MSA and Sjogren’s related?

Mr John Graham

Les’s arms hurting

Low blood pressure diet.

a happy post!

Bradycardia

Undiagnosed

question

News on stopping brain cells dying.

acupuncture

Low sodium levels in bloodwork

New to this Forum

Has anyone tried Sertraline to help with MSA ?

Chuckle Time

I don’t understand

New to the community

Norwegian Cruise for Sue and I

Forthcoming appointment!

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive