Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,739 members • 1,387 posts

All posts for August 2024

pain treatment

are there any pain medications that can’t be taken by those who have MSA?

Zebedees

•28 days ago

3 Replies

Our Journey

So my beautiful wife and companion for over 30yrs has decided that she needs some time in a hospice, she began this journey with Symptoms in 2019 but we didn't...

So my beautiful wife and companion for over 30yrs has decided that she needs som...

Derek1uk

•29 days ago

8 Replies

Care Pla

Hi Everyone I'm still trying to navigate mums care (she's 70) whilst trying to take a step back myself so that I can take care of my little toddlers needs...

Hi Everyone I'm still trying to navigate mums care (she's 70) whilst trying to ...

Purplestar2

•29 days ago

2 Replies

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New MSA sufferer

Hi I was wearing my fit bit and noticed my deep sleep has been affected. Since, being diagnosed I have monitored the use of cpap vs nasal breathing. I get...

Hi I was wearing my fit bit and noticed my deep sleep has been affected. Since,...

Groovyag

•29 days ago

3 Replies

jaw pain

I have been sick since 2016-saw 5 neurologists and 3 from major hospitals in San Francisco Bay Area. Neurologist #6 tried levodopa/carbidopa and got...

I have been sick since 2016-saw 5 neurologists and 3 from major hospitals in San...

Blanchedevereaux

•1 month ago

5 Replies

Awareness of MSA

Good morning all, I’ve been watching, with adoration, today’s start of the cycle challenge by Ed Slater and his team mates raising money and awareness of...

Good morning all, I’ve been watching, with adoration, today’s start of the cyc...

esj20

•1 month ago

6 Replies

Words of wisdom

Say no more....

Paul_and_Sue_Wood

•1 month ago

3 Replies

drinking cup

we have just ordered a Ehucon dysphagia drinking cup from Amazon as advised by a specialist nurse for our relative who is now having difficulty with swallowing...

we have just ordered a Ehucon dysphagia drinking cup from Amazon as advised by a...

Teessidelass

•1 month ago

6 Replies

The letter

Just had the letter from the hospital last week which says "I worrying about his condition being the result of a multiple system atrophy ..." Made the...

Just had the letter from the hospital last week which says "I worrying abou...

Hidden

•1 month ago

4 Replies

Opicapone

Hello I posted previously about Mum having a wearing off period between her levodopa doses and I am no minded that she may need her blood pressure tablets...

Hello I posted previously about Mum having a wearing off period between her lev...

Purplestar2

•2 months ago

2 Replies

Emergency UTI antibiotic

Hi Everyone Reading this message board I know that quite a few people mentioned having emergency antibiotics on hand if they suspected a UTI. My Mum has been...

Hi Everyone Reading this message board I know that quite a few people mentioned...

Purplestar2

•2 months ago

8 Replies

Ramp for entrance

Mainly for those in the UK. Sent council an email to see if I needed planning permission to install a dropped kerb over my gateway. They replied. They don't...

Mainly for those in the UK. Sent council an email to see if I needed planning pe...

Photo1250

•2 months ago

3 Replies

MSA trial near completion

Hi I am new here and I have MSA. I have been searching for all the info I can find. No real drugs to even slow this. I have read B vitamins are helpful'...

Hi I am new here and I have MSA. I have been searching for all the info I can f...

Downhillracer

•2 months ago

4 Replies

AI being used to turn thoughts into speech

My husband is gradually getting ‘locked in’ - a really intelligent man (he was a GP) almost unable to communicate. We banked his speech in 2021 but Predictable...

My husband is gradually getting ‘locked in’ - a really intelligent man (he was a...

calebsmum

•2 months ago

3 Replies

Incontinence x 2

Hi there again Has anyone had any experiences with having double incontinence for many years before other symptoms developed (head bobbing, hand movement,...

Hi there again Has anyone had any experiences with having double incontinence f...

Scragger

•2 months ago

2 Replies

Chuckle Time

A woman was at her hairdresser's getting her hair styled for a trip to Rome with her husband.. She mentioned the trip to the hairdresser, who responded:...

A woman was at her hairdresser's getting her hair styled for a trip to Rome wit...

Paul_and_Sue_Wood

•2 months ago

2 Replies

Helpful tips

I have just read photo1250s response and realise I have learned more here than elsewhere. My OT is lovely but doesn’t understand the disease. He gave me a...

I have just read photo1250s response and realise I have learned more here than e...

Monkeyfeet1

•2 months ago

10 Replies

Double vision

Hi All,It's been a while since I posted but I have been lurking in the background. My husband was diagnosed with MSA around 2 years ago after being diagnosed...

Hi All,It's been a while since I posted but I have been lurking in the backgroun...

Lincsoldbird

•2 months ago

16 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for August 2024

pain treatment

Our Journey

Care Pla

New MSA sufferer

jaw pain

Awareness of MSA

Words of wisdom

drinking cup

The letter

Opicapone

Emergency UTI antibiotic

Ramp for entrance

MSA trial near completion

AI being used to turn thoughts into speech

Incontinence x 2

Chuckle Time

Helpful tips

Double vision

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive