Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,752 members•1,404 posts

All posts for September 2022

autonomic dysfunction?

in the early stages is autonomic dysfunction usual and part of diagnosis? I’ve read a key feature is OHwhich I do not have.

in the early stages is autonomic dysfunction usual and part of diagnosis? I’ve ...

•2 years ago

elevated ferritin

hello all I hope you have found something to smile about today. I know I can learn a lot from this forum. Please can anyone teach me about elevated ferritin...

hello all I hope you have found something to smile about today. I know I can le...

•2 years ago

Thursday chuckle

The world's leading expert on European wasps walks into a record shop. He asks the assistant “Do you have ‘European Vespidae Acoustics Volume 2? I believe it...

The world's leading expert on European wasps walks into a record shop. He asks ...

Paul_and_Sue_Wood

•2 years ago

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Skin problems

Hi My partner had recently been diagnosed with psorasis guttae and now has another rash. Is this totally unconnected with MSA? or has anyone else...

Hi My partner had recently been diagnosed with psorasis guttae and now has anot...

•2 years ago

Pear shaped

hi all. My mother in law was diagnosed with MSA with parkinsonism in june. She'd been having problems for a while, most notably anxiety and sensory...

hi all. My mother in law was diagnosed with MSA with parkinsonism in june. She...

•2 years ago

Financial advice

After being diagnosed with MSA in Early August my condition has worsened quite dramatically to the point that I’ve decided to retire earlier than originally...

After being diagnosed with MSA in Early August my condition has worsened quite d...

•2 years ago

I .MAY NOT HAVE MSA!!!! 😀

Saw the consultant on Monday and for a variety of reasons that I cannot go into because typing is too hard now , they think it may be just Parkingsson. As...

Saw the consultant on Monday and for a variety of reasons that I cannot go into ...

•2 years ago

STAGES - A COMPARISON.

There are quite a lot of posts asking about disease stages, it's a common theme and understandably so. The standard answer is of course that with MSA everyone...

There are quite a lot of posts asking about disease stages, it's a common theme ...

•2 years ago

NUMB BUM

Hi All Can anyone recommend a seat cushion? M keeps getting a numb bum whilst sat in his rise and recliner chair and as he is now immobile he unfortunately...

Hi All Can anyone recommend a seat cushion? M keeps getting a numb bum whils...

•2 years ago

Elderly MSA care

Hi all My dad, 80, was diagnosed with MSA in 2019. Given his age, this is either late onset or slower than average progression - he's also had diabetes for a...

Hi all My dad, 80, was diagnosed with MSA in 2019. Given his age, this is eith...

•2 years ago

I cannot find actual stages. Do they exist?

my father was diagnosed last year. I believe he has had it for a few years atleast. Currently, he is unhappy! And refuses all and any therapies and all but his...

my father was diagnosed last year. I believe he has had it for a few years atlea...

•2 years ago

Swallowing, mucus, and coughing- is it leading to aspiration?

We are still awaiting my husband’s appointment with a neurologist on the 26th. But, recently we have a new problem. He is starting to cough and hyper secrete...

We are still awaiting my husband’s appointment with a neurologist on the 26th. ...

•2 years ago

Thursday chuckle

A pensioner drove his brand new BMW to 100 mph, looking in his rear view mirror, he saw a police car behind him. He floored it to 140 , then 150, ... then 155,...

A pensioner drove his brand new BMW to 100 mph, looking in his rear view mirror,...

Paul_and_Sue_Wood

•2 years ago

4 years on

My only brother was diagnosed 4 years ago with MSA following a lifetime of drink and drugs. He had just spent an entire year in hospital in the Philippines. He...

My only brother was diagnosed 4 years ago with MSA following a lifetime of drink...

•2 years ago

visually impaired and MSA

Hi hubby has MSA along with visual impairment (retinitis pigmentosa and uses white cane). He now has fallen a few times saying his legs just went. He has...

Hi hubby has MSA along with visual impairment (retinitis pigmentosa and uses wh...

•2 years ago

Feedback on Augmentative and Alternative Communication please

I’d really appreciate your experiences on how you are communicating as a caregiver with a patient who cannot speak. We were introduced to 3 forms - 1....

I’d really appreciate your experiences on how you are communicating as a caregiv...

•2 years ago

A NEW DAY - A NEW MSA SYMPTOM ? COLD HANDS

Ok, so not quite just today , I've kept it under observation for 4 days, but it looks like MSA has thrown me another curved ball. Both hands feel to me to be...

Ok, so not quite just today , I've kept it under observation for 4 days, but it ...

•2 years ago

help please - is this end stage MSA?

Hello I’m new here and would really appreciate your sharing as my husband is showing new symptoms not present previously Just a little background. He was...

Hello I’m new here and would really appreciate your sharing as my husband is s...

•2 years ago

Thursday Chuckle

To all my readers following the passing of her majesty Queen Elizabeth I decided to refrain from posting anything last week. This week I feel we all need a...

To all my readers following the passing of her majesty Queen Elizabeth I decided...

Paul_and_Sue_Wood

•2 years ago

Fall alarms

Does anyone else experience problems with fall alarms? We are having continual problems with the alarm not activating when my husband falls which he...

Does anyone else experience problems with fall alarms? We are having continual...

•2 years ago

newly diagnosed

in March earlier this year I was diagnosed with Cerebellar Ataxia by a neurologist in Bath. She was very dismissive. My GP, on request, referred me to UCLH. I...

in March earlier this year I was diagnosed with Cerebellar Ataxia by a neurologi...

•2 years ago

Greater Manchester in person support group - this week

Greater Manchester Support Group Thursday 15thof September 1:30pm – 3:30pm St. Andrews Church,Hope Centre, 27 Tattersall Avenue, Bolton, BL1 5TE Please...

Greater Manchester Support Group Thursday 15thof September 1:30pm – 3:30pm S...

•2 years ago

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Any recommendations for a tablet/device with large keys/easier access for MSA sufferers?

hi, this may have been asked before, so apologies if so. My dads condition has been getting progressively worse for some time and recently he has...

hi, this may have been asked before, so apologies if so. My dads condition ha...

•2 years ago

Botox

hi did not get that far as having Botox injections as they said it was to complexed for my condition Hopefully it will work for you kind regards Chris

hi did not get that far as having Botox injections as they said it was to compl...

•2 years ago

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unsupported and very much on my own

I am continually angry and frustrated with everything and everyone that I have to deal with regarding my husbands care . I am constantly told I’m amazing and...

I am continually angry and frustrated with everything and everyone that I have t...

•2 years ago

supapubic update

Peter is in A&E not having much luck as draining in bag but also coming out of penis and pours out penis when flushed through, he has small bladder and...

Peter is in A&E not having much luck as draining in bag but also coming out of ...

•2 years ago

suprapubic

Peter down having suprapubic done as I’m sitting waiting I’m just hoping this will make thing easier for both of us any views

Peter down having suprapubic done as I’m sitting waiting I’m just hoping this wi...

•2 years ago

baths

just had a quote for a walk in bath with a seat that goes up and down for easy access, £11.500 😱😡 and that was with a discount and VAT exempt. Does anyone...

just had a quote for a walk in bath with a seat that goes up and down for easy a...

•2 years ago

Thursday Chuckle

An 80-year-old lady was marrying for the 4th time. A newspaper asked if she wouldn't mind talking about her 1st three husbands and what they did for a......

An 80-year-old lady was marrying for the 4th time. A newspaper asked if she wou...

Paul_and_Sue_Wood

•2 years ago

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