Multiple System Atrophy Trust | HealthUnlocked

R has been experiencing chest pains over the past week. He has had 4 ECGs which have all come back ok but his heart rate is between 42-52 per minute. The...

first post and probably the last. my wife sadly past away from M S A june 6 2024. first diagnosed end of 2021 initially parkinsons but after rapid decline...

Hello all, I am new to this web community, but have been dealing with MSA directly since 11/22 when it was diagnosed, and with signs pointing towards it...

Hello, I was diagnosed with MSA last year but a 2nd neurologist disagreed and thought it was most likely some form of autonmic failure. I was referred to UCH...

So, good evening everyone, I'm Phil, 54 years young, recently diagnosed with msa-p after having symptoms for 3 years. I'm a carer by trade but that's about to...

Hi! I don't know why it took me so long to find this site, but it's a wonderful community. I would like to ask for your help and opinion. It will be long, I'm...

Thank you for your replies, I am grateful for all of them! I couldn't do this the right way. :( On Friday afternoon I had to call the ambulance because she...

i would like to thank all for your kind messages of support. i still cant believe she s gone and exspect her to walk through the door any minute. my thoughts...

Ive accidentally followed the MSAA group (just wanted to follow MSA). Does anyone know how to unfollow? I cant work it out

my best friend of 53 years sadly died yesterday after coming to the end of MSA age 55 years old. She never let this cruel disease get her down, never...

I wanted to share the last 4 weeks with you. Jon developed the pneumonia and quickly followed sepsis. Jon is a DNR and wished to remain home. a temp of 40•...

Hello All, is there such a thing with MSA? I’m sure this has been regurgitated here often, but are there any tips or suggestions for regaining even a little...

Seniors texting codes BFF. Best Friend Fell LOL. Little Old Lady BTW. Bring the Wheelchair TTYL. Talk To You Louder BYOT. Bring Your Own Teeth LMDO. Laughing...

Hi, just listened to this interview with MSA sufferer, Paul Ord and his MSA consultant at St Benedict's Hospice Dr Mark Lee. The MSA Trust has a link to it on...

hi everyone hope your all doing as well as you can. My husband has been feeling nauseous a lot lately as well as dizziness. He has postural hypotension and...

A boy wants to ask a girl to prom, and he really likes her so he goes all out... He goes to the florist to buy some flowers, but the line is out the door. He...

Just been diagnosed with opca, awaiting blood tests to determine type. Have a 24 year old daughter so hope it isn’t inherited! The consultant has strongly...

is vaginal dryness a symptom of MSA ?? What is the best way to manage it? I’ve been suffering with irritation,pain and tenderness in and around the perineum...

Further work needed. https://www.thetimes.com/article/b209cc03-575c-49a5-a54c-497bb8b447e3?shareToken=1dbab053be9f009e5347d5a905ade877

Do you have any experience with amantadine sulphate (PK Merz)?

The picture says it all