Multiple System Atrophy Trust | HealthUnlocked

My husband has recently been diagnosed with MSA-p, we live in a house with 3 flights of stairs. We have been told that a chair lift will not be suitable for...

I’ve been searching for answers on HealthUnlocked for many years. First in Parkinson’s and then Ataxia groups. Now MSA because recently was told I have...

I was just wondering if anyone had been successful in getting a DFG? We have now got to the point where our shower is no longer safe for my husband. We were...

Hi all, I have MSA and I suffer quite badly with RLS. Recently though, I’ve started to get awful pain along with the muscle spasms in my legs and feet....

i’d value your experience on electric wheelchairs. I’ve recently been offered what is described as a power chair (the Rascal Razoo) - seems to be a cross...

Hi everyone, So very sad to be here but I am glad this site is here. My wife was diagnosed with MSA in Sept 2024 after initially being diagnosed 5 months...

Monday 13th Jan after 2 weeks in hospital my lovely Dad passed away. Dad was about 8 years into his MSA journey initially diagnosed with Ataxia but last 2...

I was diagnosed with MSA in 2022. I don’t want to diss my husband because he does Everything for me. However , I’m very organised. He is burying his head in...

Like a lot of people, my wife was diagnosed with PD 18 months ago but didn't respond to medication and her mobility declined quickly so she's just about...

Hi, sadly my husband is now in a nursing home as his condition deteriorated so much over the summer I could no longer manage him at home. we are thinking about...

The trial finished in Nov, the data crunching must be complete, the company has gone into a trading halt, pending revealing topline results. We should know in...

Hi, my husband is now in a nursing home, something I often feel guilty and a failure about. After posting some recent posts it was ,in one way ,so good to...

I tried Staysure yesterday for a short Norwegian Fjord cruise and got turned down and referred to a specialist company called Biba! My husband who was...

What could be the most loving tribute to PSP, CBD and MSA people who leave this world ? Quotes, eulogies, and stories etc do serve as tributes. However,...

I've had a really painful headache on the right side above my eye, been taking migraine headaches,does anyone else take them, I was wondering if it was part of...

I was diagnosed in 2021 with ataxia and recently with dysautonomia and autonomic neuropathy in feet and hands…one cold hand that freezes fast…..considering...

Hi, sorry to be morbid, but we have to think about these things - we are thinking of buying a funeral plan ahead of time and are wondering if others have...

Hi everyone, hope it is ok to ask this here. R was diagnosed with Parkinson’s in 2021 but there have been a few doubts in my mind about whether his diagnosis...

was hoping someone could help my husband is very stiff is taking sinemet but didn’t seem to be helping the Parkinson’s nurse is trying him on madopar with...

now I have chair back pain-used a TENS unit, and only helped for short time-any suggestions- PT? Debbie

my husband was diagnosed with MSA in September 2024 but had symptoms for about 4year but was undiagnosed. He’s got stridor quit bad and the consultant is...

I will be attending this group on 27th Jan, for the first time, with a friend as my husband doesn't want to attend yet. I just wondered 🤔 if anyone else...

My wife Sue was initially diagnosed with Parkinson's in September 2023 and put on madopar. The dosage has been increased over that time but she appears to be...

Apologies in advance for the graphic explanations in my post but we’re desperate for some answers. My husband was admitted to hospital on Friday last week...

My husband is now completely immobile and his pressure areas are very fragile. He has a powered alternating air cushion in a tilt in space chair provided by...

A sweet grandmother telephoned St. Joseph 's Hospital.She timidly asked, "Is it possible to speak to someone who can tell me how a patient is doing ?" The...

Wise nun 2 nuns went to shop at the market. They were taking so long so one said , Sister Mary it is getting dark and we are so far away from the convent. I...

OMG!!! YOU WILL NOT believe what just happened!! I'm at Tescos getting my coffee just now when I walked up and notice two police officers looking at this young...

The next 4 COUNTIES SUPPORT GROUP meeting will be held on Wednesday February 5th at 2pm We meet on the first Wednesday of every month either on Zoom or face...

This guy goes to the doctor and says, "Doc, I can't stop singing certain songs. All morning I've been humming 'The Green, Green Grass Of Home.' Yesterday it...