Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,639 members • 1,295 posts

All posts for April 2024

Car adaptations?

Hi. Please can anyone tell me if they’ve gone for car adaptions like changes to the passenger seat/ hoist etc rather than a WAV? I’m trying to work out which...

Hi. Please can anyone tell me if they’ve gone for car adaptions like changes to ...

KittyWithers

•4 days ago

3 Replies

Foot pain

Hi everyone. I’m new to the forum. Recently diagnosed with MSA after four years of symptoms. Does anyone experience severe foot pain at night? I get cramps in...

Hi everyone. I’m new to the forum. Recently diagnosed with MSA after four years ...

WhisperWard

•5 days ago

5 Replies

les xx

It’s with a heavy heart that I post this as Les Passed away this morning from this terrible disease 💔 He is now out of this nightmare to be free again He...

It’s with a heavy heart that I post this as Les Passed away this morning from th...

DeeMilo25

•6 days ago

16 Replies

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Midrodrine

hi everyone my husband has just started midrodine after taking fludrocortisone for a couple of months. It hasn’t stopped him falling. He has postural...

hi everyone my husband has just started midrodine after taking fludrocortisone ...

Bamboot

•9 days ago

8 Replies

Insight into my Mum's last few weeks

Hi, I've been on this chatroom for a few years now and my first post was desperately trying to work out what signs to look out for so i had an idea how much...

Hi, I've been on this chatroom for a few years now and my first post was despera...

Blubetty

•20 days ago

12 Replies

Excessive Sleeping

My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is now on PEG for feeds, intermittent urine catheter, flatus tube for bowel...

My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is n...

binnyrox

•22 days ago

5 Replies

Chuckle time

A gent sat next to me on the train one day and pulled out his phone. After glancing at his phone he leans over to me shows me a picture and says "isn't she...

A gent sat next to me on the train one day and pulled out his phone. After glanc...

Paul_and_Sue_Wood

•23 days ago

5 Replies

I wonder if anyone can help?Sit to stand .

I can only sit to stand with hubby’s help. I don’t have any balance and use an electric wheelchair downstairs and a walker upstairs. I still have strong legs...

I can only sit to stand with hubby’s help. I don’t have any balance and use an e...

Monkeyfeet1

•24 days ago

14 Replies

powered wheelchair?,

Hi, does anyone use a powered wheelchair.? which model? Any tips much appreciated. Thanks, chin

Hi, does anyone use a powered wheelchair.? which model? Any tips much appreci...

Trudy2020

•24 days ago

5 Replies

I've lost my deepest love and soulmate

It’s with huge sadness I'm letting you know that after a severe bout of pneumonia Jackie, my deepest love and soulmate, passed away in my arms on Wednesday....

It’s with huge sadness I'm letting you know that after a severe bout of pneumoni...

Yanno

•25 days ago

26 Replies

midodrine

Hi everyone my husband has hypertension one of the symptoms of MSA and been taking fludrocortisone. It hasn’t helped so the doctor wants to change it and try...

Hi everyone my husband has hypertension one of the symptoms of MSA and been taki...

Bamboot

•27 days ago

11 Replies

Breathing problems

Hiya everyone I am new here. My wife have MSA-c for a few years She recently have a severe breathing issue. She breathes heavily and making a sound like...

Hiya everyone I am new here. My wife have MSA-c for a few years She recentl...

unclekin

•27 days ago

7 Replies

muckle feet

quickie, does anyone else get swollen feet?

esj20

•28 days ago

4 Replies

Last post

I don`t post on here too often but have had some good advise and information from you all in the past. I am sad to say that Graham passed away on Sunday,. He...

I don`t post on here too often but have had some good advise and information fro...

mandg

•28 days ago

12 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for April 2024

Car adaptations?

Foot pain

les xx

Midrodrine

Insight into my Mum's last few weeks

Excessive Sleeping

Chuckle time

I wonder if anyone can help?Sit to stand .

powered wheelchair?,

I've lost my deepest love and soulmate

midodrine

Breathing problems

muckle feet

Last post

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive