GI problems——how do you eat?

[neveronabike]

Is this normal for MSA patients because of dysautonomia (or possibly ataxia)? Have both starting around 2015. I’m sure it’s not easy with MSA but when or where did it start in the gut?

If you have this problem can you give me any insight on how you cope with gut and sternum pain after eating, constipation, poor motility, nausea, etc.? Is there anything you’ve been taking that is helping?….prescription or supplements?

Is severe colorectal pain occasionally a common problem?

Might be due to daily constipation. GP Doctor sends me for lab work and not inclined to do a CT scan. ENT doctor ordered MRI of the head (throat, thyroid and tongue) because of throat, jaw and tongue pain. It only showed lesions in the Basal Ganglia.

So this if this strikes a chord in anyone who is able to reply feel free to give your opinions or experiences.

[Helenhooter]

Hi

I have progressive ataxia which is definitely worse. I have lactulose every morning and metaclopromide every evening to help my gut. I don't eat anything raw anymore. Look up gastroparesis to get an idea of what to eat. Good luck

H

[neveronabike in reply to Helenhooter]

Thanks Helen. Your reply is appreciated ☺️

[neveronabike in reply to Helenhooter]

I'm sure MSA is much worse, and me only imagining the courage it takes to live with all three -- dysautonomia + ataxia + MSA. I fall nto a category with no group support so I have to ask questions in this group and I hope nobody minds that I ask.