Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for January 2020

The uncertainty

Things actually reached a stable point with mum doing well with the physio team who arrived to help, we even finally got an appointment for the new consultant...

Things actually reached a stable point with mum doing well with the physio team ...

•4 years ago

Xxxxxxx

The best Dad I could have asked for.

The best Dad I could have asked for.

•4 years ago

RIP Dad

My Dad took his last breath around 9.19pm. What an absolute rollercoaster of suffering and decline this has been for him. There was absolutely no let up for...

My Dad took his last breath around 9.19pm. What an absolute rollercoaster of suf...

•4 years ago

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Saying goodbye

Dad is slowly passing. He’s unable to breathe himself and his machine has been removed. He was diagnosed around 2 weeks ago and obviously his MSA has been...

Dad is slowly passing. He’s unable to breathe himself and his machine has been r...

•4 years ago

Here we go again...

My poor Dad has just been rushed into Cheltenham hospital. Wasn’t responding to anyone, breathing but was being pumped with oxygen. He only came out of...

My poor Dad has just been rushed into Cheltenham hospital. Wasn’t responding to ...

•4 years ago

Another lesson learnt

I had a slight cold on and off for a couple of weeks . 10 days ago it seemed to come to a head and came out fiercely . The next day Richard woke up with it , I...

I had a slight cold on and off for a couple of weeks . 10 days ago it seemed to ...

•4 years ago

Dad

Here is my Dad, with my siblings and I. I arranged a family get together Sunday gone. Coming together for this MSA marlarkey !!!!

Here is my Dad, with my siblings and I. I arranged a family get together Sunday ...

•4 years ago

Breathing/sleep issues

My Dad has struggled with his sleep for a long time now. It started with ‘kicking out’, throwing arms around strange noises. These days his snoring sounds and...

My Dad has struggled with his sleep for a long time now. It started with ‘kickin...

•4 years ago

Help

Hi everyone I’ve been on here a while but not really posted. Are use voice text as my hand is no longer type so please forgive any errors is increasingly...

Hi everyone I’ve been on here a while but not really posted. Are use voice text ...

•4 years ago

Restless Legs

My wife, who was diagnosed with MSA-C 4 years ago takes 1mg Ropinirole. This was prescribed for “restless legs”. It does help majority of the time and allows...

My wife, who was diagnosed with MSA-C 4 years ago takes 1mg Ropinirole. This was...

•4 years ago

Specific gut bacteria (Bacillus subtilis) and its effect on alpha-synuclein

Please check out the latest research as reported in https://newatlas.com/medical/gut-bacteria-microbiome-reduce-prevent-parkinsons-disease/

Please check out the latest research as reported in https://newatlas.com/medical...

•4 years ago

Finally got our diagnosis

Hi there, I’m Zoe, and my Dad was diagnosed with MSA yesterday (13/1/2020). After his initial diagnosis of Parkinson’s disease 2 years ago and a very rapid...

Hi there, I’m Zoe, and my Dad was diagnosed with MSA yesterday (13/1/2020). Aft...

•4 years ago

Another beautiful person taken by this horrible condition

I'm sorry if this upsets anyone but just to let you all know. That sadly we lost my mum yesterday. She passed quite suddenly at home with my devoted dad by...

I'm sorry if this upsets anyone but just to let you all know. That sadly we lost...

•4 years ago

Thanks

Thank you to everyone for their kind and caring comments. It is a great support , knowing others understand the pain and loss. I thank you all. Chris x

Thank you to everyone for their kind and caring comments. It is a great support...

Elletheelephant

•4 years ago

Fur babies and snails trails

I just wanted to say two things – 1. What a absolutely lovely bunch of people you are. Your antics, fur babies and positive, spiritual, technical, medical,...

I just wanted to say two things – 1. What a absolutely lovely bunch of people ...

•4 years ago

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Saddest of News

It is with immense sorrow, I tell you that, My darling husband, Tony, passed away on Monday 30th December. He died at home , as we both wished. with support...

It is with immense sorrow, I tell you that, My darling husband, Tony, passed aw...

Elletheelephant

•4 years ago

Going Downhill

Hi Hope you have all had a good Christmas and New Year. Alan had a UTI just before Christmas and it has brought him down dreadfully. I keep hoping he will...

Hi Hope you have all had a good Christmas and New Year. Alan had a UTI just bef...

•4 years ago

I'm Just A Support Act

Hello All, I am a carer for my wife who has had MSA for about 2 years and apart from hospital visits we are managing the MSA ourselves. Initially Parkinsons...

Hello All, I am a carer for my wife who has had MSA for about 2 years and apart ...

•4 years ago

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