Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

Living with MSA posts

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New to the community

hiya! I’ve recently come across this forum and I feel sorry that I didn’t before. So much to learn and share! Here is my story. My mum was sadly diagnosed...

hiya! I’ve recently come across this forum and I feel sorry that I didn’t befor...

Burakakgl

•8 months ago

11 Replies

Any recommendations for a tablet/device with large keys/easier access for MSA sufferers?

hi, this may have been asked before, so apologies if so. My dads condition has been getting progressively worse for some time and recently he has...

hi, this may have been asked before, so apologies if so. My dads condition ha...

HertsChris

•2 years ago

3 Replies

Dishwasher Pods e.g. Fairy, Micrographia and Magnifying Glasses

Just got a pod out and find there were 2 stuck together, tried to pull them apart and it was obviously not just stuck but the plastic outer wrappers were...

Just got a pod out and find there were 2 stuck together, tried to pull them apar...

ReverendBadger

•2 years ago

4 Replies

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Heat wave

Has anyone ever tried a cooling mat for adults and found it efflective? Hisband is really struggling in this heat and it seems to have affected his condition...

Has anyone ever tried a cooling mat for adults and found it efflective? Hisband ...

Schmall

•2 years ago

12 Replies

MSA

My wife has been diagnosed work MSA...what now?

Jiempies

•2 years ago

4 Replies

Useful place for care items

Hi. We used this online shop for a lot of day to day items for eating and drinking and bed pads etc and they have a Black Friday sale on. Other shops are very...

Hi. We used this online shop for a lot of day to day items for eating and drinki...

Diane831

•2 years ago

1 Reply

Diagnosed today … scared for the future!

I received the news that I was looking at MSA, not what I expected as Datscan was normal however everything points to it. Explains a lot of what I am coping...

I received the news that I was looking at MSA, not what I expected as Datscan wa...

Bizzyissy

•3 years ago

7 Replies

Sleep and Fluid on the lungs

Hi, my partner has recently been diagnosed. Started with a minor tremor and a feeling of dizziness last October. Diagnosed with Parkinson’s in December but the...

Hi, my partner has recently been diagnosed. Started with a minor tremor and a fe...

Kaye31

•3 years ago

5 Replies

Guidance

Hi all Newly diagnosed Need support group Any I can join? Im north London N2 Thanks Angela

Hi all Newly diagnosed Need support group Any I can join? Im north London N2...

Fortoday

•3 years ago

15 Replies

Holidays

Hi My husband was diagnosed in November2020. He can still walk in the house with a walker and get up stairs slowly. With the end of lockdown approaching I am...

Hi My husband was diagnosed in November2020. He can still walk in the house with...

Bailando

•3 years ago

20 Replies

Pain relief?

Which techniques does everyone utilise when the pain gets too bad and the meds just aren’t doing the trick? Mum has been in severe pain with her shoulder for...

Which techniques does everyone utilise when the pain gets too bad and the meds j...

Wildshire

•3 years ago

4 Replies

Anyone suffer from cold and sore toes? Any tips?

Until recently my toes have been purple and cold but now they're swollen and sore. I've tried warm boots and socks at night but wondered if anyone else has...

Until recently my toes have been purple and cold but now they're swollen and sor...

chooselater

•3 years ago

2 Replies

Hubby with MSA-C has started to have head tremors. Any suggestions?

He finds it quite a nuisance and discomfort. It happens whether he is awake or asleep. Is this treated with meds or just something else to put up with?

He finds it quite a nuisance and discomfort. It happens whether he is awake or a...

heysunshine

•3 years ago

9 Replies

Living with MSA-C

I am reaching out to anyone that can help my husband learn and deal with his MSA-C. He was diagnosed in 2019, but had symptoms for atleast 2 years prior. His...

I am reaching out to anyone that can help my husband learn and deal with his MSA...

Andrashko

•4 years ago

5 Replies

Stairlifts

Hi, we live in a Housing Association house and applied for adaptations but were refused a stair lift because of Alan's condition. Since then there has been...

Hi, we live in a Housing Association house and applied for adaptations but were ...

Tusker1953

•5 years ago

23 Replies

Ibs

Hi has anyone had a problem with I BS if so can you recommend medication

butlin

•5 years ago

1 Reply

Greater Manchester Support Group. Monday 8th October

We have our next meeting on Monday at 1.30pm with MSA Trust Nurse Katie Rigg attending. St Andrews Church, Hope Centre, 27 Tattersall Ave, Bolton, BL1 5SL....

We have our next meeting on Monday at 1.30pm with MSA Trust Nurse Katie Rigg att...

Diane831

•6 years ago

2 Replies

My Journey with MSA!

This is my journey. Living with the very rare MSA (Multiple System Atrophy) disease has so many challenges both personally and for those around me. - Not a...

This is my journey. Living with the very rare MSA (Multiple System Atrophy) dise...

Neillpedro

•6 years ago

3 Replies

Looking forward to the New Year

Season's greetings to everyone. I think Christmas can be a frustrating time for many. I know Jackie used to be at the heart of Christmas preparations -...

Season's greetings to everyone. I think Christmas can be a frustrating time fo...

Yanno

•6 years ago

2 Replies

Come along to the Worcestershire MSA Support Group

Worcestershire MSA Support Group Thursday 28th September 2017, 11.00am – 1.00pm St Richard’s Hospice, Wildwood Drive, Worcester WR5 2QT The next Support...

Worcestershire MSA Support Group Thursday 28th September 2017, 11.00am – 1.00pm ...

Yanno

•7 years ago

Be the first to reply

Abdominal binders

I have started this post so people can post any experiences people have had of using abdominal binders to manage postural hypotension please.

I have started this post so people can post any experiences people have had of u...

JillMSA

Moderator•7 years ago

9 Replies

Hello all.

Hello my name is glenn I'm also suffering with MSA . It's been a challenge so far but my lovely wife and I are meeting it head on and it's drawn us closer...

Hello my name is glenn I'm also suffering with MSA . It's been a challenge so fa...

Glenn2014

•7 years ago

12 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

Living with MSA posts

New to the community

Any recommendations for a tablet/device with large keys/easier access for MSA sufferers?

Dishwasher Pods e.g. Fairy, Micrographia and Magnifying Glasses

Heat wave

MSA

Useful place for care items

Diagnosed today … scared for the future!

Sleep and Fluid on the lungs

Guidance

Holidays

Pain relief?

Anyone suffer from cold and sore toes? Any tips?

Hubby with MSA-C has started to have head tremors. Any suggestions?

Living with MSA-C

Stairlifts

Ibs

Greater Manchester Support Group. Monday 8th October

My Journey with MSA!

Looking forward to the New Year

Come along to the Worcestershire MSA Support Group

Abdominal binders

Hello all.

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

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