Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,774 members•1,424 posts

All posts for September 2024

4 Counties MSA Support Group (OX,WR, HR, GL) Wednesday 2nd October

The next 4 COUNTIES SUPPORT GROUP meeting will be held on Wednesday October 2nd at 2pm - We meet on the first Wednesday of every month either on Zoom or face...

The next 4 COUNTIES SUPPORT GROUP meeting will be held on Wednesday October 2nd ...

•2 months ago

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Chuckle time

A man was sitting on the edge of the bed, observing his wife, looking at herself in the mirror.Since her birthday was not far off he asked what she'd like to...

A man was sitting on the edge of the bed, observing his wife, looking at herself...

Paul_and_Sue_Wood

•2 months ago

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Botox

I have dystonia which is now becoming a real problem in my right arm and right hand sent me to consultant said it could be possible to give me Botox. I’m...

I have dystonia which is now becoming a real problem in my right arm and right ...

•2 months ago

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Another Chuckle

Sam died and left £50,000 in his will for an elaborate funeral.As the last attenders left, Sam’s wife Rose turned to her oldest friend Sadie and said: “Well,...

Sam died and left £50,000 in his will for an elaborate funeral.As the last atten...

Paul_and_Sue_Wood

•2 months ago

Cheeky chuckle

A man wakes up in a hospital, bandaged from head to foot. The doctor comes in and says, "Ah, I see you've regained consciousness. Now, you probably won't...

A man wakes up in a hospital, bandaged from head to foot. The doctor comes in an...

Paul_and_Sue_Wood

•2 months ago

We would love to hear your stories - from the MSA Trust

Here at the MSA Trust we don't post regularly on HealthUnlocked as we want to keep this forum a space for you, but I hope you won't mind us posting to ask for...

Here at the MSA Trust we don't post regularly on HealthUnlocked as we want to ke...

Administrator•2 months ago

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Air mattresses

Hi My husband who is 7 years into MSA condition is spending large amounts of time in bed now and he cannot change his position without assistance. I am...

Hi My husband who is 7 years into MSA condition is spending large amounts of ti...

•2 months ago

Diarrhoea

Can anyone answer this : is diarrhoea a symptom of MSA ? I have read that constipation is a symptom. My husband seems to get diarrhoea out of nowhere....

Can anyone answer this : is diarrhoea a symptom of MSA ? I have read that con...

•2 months ago

pins and needles in both of my feet and lower leg has any one got answer to relieve the pain and discomfort

Pins and needles in both of my feet and lower leg has any one got answer to relieve the pain and discomfort

Pins and needles in both of my feet and lower leg has any one got answer to...

•2 months ago

Chuckle Time

A young educated man is driving down the street, sweating in a frantic panic. He's late for an important meeting and can't find a parking space. He looks up...

A young educated man is driving down the street, sweating in a frantic panic. H...

Paul_and_Sue_Wood

•2 months ago

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pins and needles

hi everyone my husband has started to get pins and needles in his hands, is this one of MSA symptoms ?

hi everyone my husband has started to get pins and needles in his hands, is this...

•2 months ago

Advice please

Hi, my husband has probable MSA and we'd like to know if anyone has found a solution for getting chairs under a table to eat. He can't move it forward himself...

Hi, my husband has probable MSA and we'd like to know if anyone has found a solu...

•2 months ago

PIP timing

do people think it better to delay a PIP application a bit and have stronger evidence, or apply now and gather what I can in the time I have? I have early...

do people think it better to delay a PIP application a bit and have stronger evi...

•2 months ago

hello

I have MSA. I was diagnosed earlier this month. I am currrently working out things to do to get support in place for me and my family. I think it’s early days...

I have MSA. I was diagnosed earlier this month. I am currrently working out thin...

•2 months ago

Chuckle time

A woman was having a daytime affair while her husband was at work. One rainy day she was in bed with her boyfriend when, to her horror, she heard her husband's...

A woman was having a daytime affair while her husband was at work. One rainy day...

Paul_and_Sue_Wood

•2 months ago

Urinary catheter?

Was wondering if anyone had advice / experience with urinary catheter (in-dwelling or supra pubic)? My beloved mother-in-law’s incontinence is so disruptive &...

Was wondering if anyone had advice / experience with urinary catheter (in-dwelli...

•2 months ago

re ‘just saying’

afternoon all, regarding my last post ‘just saying’. I hope I have not caused offence given at some stage these hours lost will become precious and missed,...

afternoon all, regarding my last post ‘just saying’. I hope I have not cause...

•2 months ago

DEALING WITH MSA

I STILL HAVE NOT FOUND OUT IF CAN GO ON A TRIAL. I BELIEVE I WAS DIAGNOSED EARLY IN LATE JUNE IN 2024. I AM POSITIVE. STARTED RTT - RAPID TRANSFORMATIONAL...

I STILL HAVE NOT FOUND OUT IF CAN GO ON A TRIAL. I BELIEVE I WAS DIAGNOSED EARL...

•2 months ago

what things do you still do?

It will be useful to know what things you still do and when you were diagnosed? I appreciate we are all different. I do not know how regressive my health is...

It will be useful to know what things you still do and when you were diagnosed? ...

•2 months ago

msa condition

I got diagnosed in june 2024 my heeath started to go downhill last year though I feel a sense that things will get alot more worse and struggle with this in...

I got diagnosed in june 2024 my heeath started to go downhill last year though ...

•2 months ago

Chuckle time

Mrs. Ravioli comes to visit her son Anthony for dinner. He lives with a female roommate, Maria.During the course of the meal, his mother couldn't help but...

Mrs. Ravioli comes to visit her son Anthony for dinner. He lives with a female ...

Paul_and_Sue_Wood

•2 months ago

The effects of Pneumonia on MSA

My husband is in his 7th year of condition. Last week he was admitted into hospital suffering with Pneumonia, he was discharged 4 days later after being given...

My husband is in his 7th year of condition. Last week he was admitted into hospi...

•2 months ago

just saying….

Just reflecting; by the time I get up, breakfast, washed and dressed I’ve just used up 2 and a half to 3 hours of my life that I won’t get back! Time flys...

Just reflecting; by the time I get up, breakfast, washed and dressed I’ve just u...

•3 months ago

options

Lions mane supplements are helpful and looking into RTT

Lions mane supplements are helpful and looking into RTT

•3 months ago

Leg pain

Good morning, the back of my thighs get painful it is like a continuous ache. I also get an awful pain similar to cramp up the whole of my calves during the...

Good morning, the back of my thighs get painful it is like a continuous ache. I ...

•3 months ago

4 Counties MSA Support Group (OX,WR, HR, GL) Wednesday 4th September

The next 4 COUNTIES SUPPORT GROUP meeting will be held on Wednesday September 4th at 2pm - We meet on the first Wednesday of every month either on Zoom or face...

The next 4 COUNTIES SUPPORT GROUP meeting will be held on Wednesday September 4t...

•3 months ago

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