Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for January 2024

RIP Debbie

My dear wife Debbie died last Thursday morning, aged 60. We are of course heartbroken, but Debbie is now at peace. Debbie was initially diagnosed with...

My dear wife Debbie died last Thursday morning, aged 60. We are of course heartb...

•3 months ago

Understanding potential diagnosis

So after a sleep study which diagnosed moderate to severe sleep apnea, my wife had her second visit in 5 months with the neurologist. He had previously...

So after a sleep study which diagnosed moderate to severe sleep apnea, my wife h...

•3 months ago

RevReturns

Long story long made short. Rapid deterioration and then 17 days in hospice then discharged to nursing home where I remain now and wheelchair bound.

Long story long made short. Rapid deterioration and then 17 days in hospice then...

•3 months ago

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MSA Awareness

We were at the eye doctor yesterday when a proposed procedure for cataract and glaucoma was discussed for my wife. She has the tentative MSA diagnosis....

We were at the eye doctor yesterday when a proposed procedure for cataract and g...

•3 months ago

weight gain

Afternoon everyone i realise i may be asking a self explanatory question but, given my ever decreasing mobility I’m finding that my weight gain is now a...

Afternoon everyone i realise i may be asking a self explanatory question but, g...

•3 months ago

Sleep issues

My wife has a tentative diagnosis of MSA. She has serious issues with excessive daytime and early evening sleeping. We will get the results of a sleep study...

My wife has a tentative diagnosis of MSA. She has serious issues with excessiv...

•3 months ago

MSA. How to help with neck pain

Hi, my brother in law has MSA. We only got his diagnosis 2 years ago but he is suffering symptoms for almost 6 years now. It is such a horrible disease and we...

Hi, my brother in law has MSA. We only got his diagnosis 2 years ago but he is s...

•3 months ago

carer assessment

I’ve been in touch with our local council this week as advised by the MSA Trust. Looking to get a carers assessment. My husband isn’t too bad at the moment...

I’ve been in touch with our local council this week as advised by the MSA Trust....

•3 months ago

Respite care

Hi, I'm trying to find some respite care for my husband who suffers from MSA, but can't believe how difficult it is, feels like I'm inventing the wheel for the...

Hi, I'm trying to find some respite care for my husband who suffers from MSA, bu...

•3 months ago

My dearest friend Maggie 💔 09/11/1952 - 13/01/2024

Sadly, My dearest friend Maggie passed away Saturday morning after a short bout of pneumonia. She was the most amazing lady who would do anything for anyone....

Sadly, My dearest friend Maggie passed away Saturday morning after a short bout ...

•3 months ago

Transport

continuing from my earlier post we have decided to keep our car and are having a hoist fitted by Autochair for £3k All good in the long run and what a fab...

continuing from my earlier post we have decided to keep our car and are having a...

•3 months ago

blister

hi Has anyone had any experience with blisters and the skin? I noticed when putting Les into bed tonight that he has a blister on his stomach, absolutely no...

hi Has anyone had any experience with blisters and the skin? I noticed when pu...

•3 months ago

Dental anaesthetics and MSA

Hi All - my partner is recently diagnosed with MSA and I am the designated fighter of battles, organiser and unqualified nurse. He is having some dental pain...

Hi All - my partner is recently diagnosed with MSA and I am the designated fight...

•4 months ago

transport

how do you all transfer loved ones from wheelchairs into your cars?

how do you all transfer loved ones from wheelchairs into your cars?

•4 months ago

CHC funding

Hello, just wondering how many people with MSA have been able to get CHC funding? I appreciate everyone will be at different stages. My friend is bedbound,...

Hello, just wondering how many people with MSA have been able to get CHC fundin...

•4 months ago

First timer

Hi there I am a carer for my wife (78) who recently received a tentative diagnosis of MSA. Current symptoms include hand and head tremor at rest, slow...

Hi there I am a carer for my wife (78) who recently received a tentative diagno...

•4 months ago

Aspiration Pneumonia

My friend, 75, was diagnosed recently with MSA. Diagnosis took weeks despite a long history of orthostatic blood pressure and swallowing problems. He was moved...

My friend, 75, was diagnosed recently with MSA. Diagnosis took weeks despite a l...

•4 months ago

new to the site newly diagnosed

hi I’m new my husband has just been told he has MSA after months of thinking it was Parkinson. It’s blown our minds at the moment trying not to think to...

hi I’m new my husband has just been told he has MSA after months of thinking it ...

•4 months ago

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