Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for August 2023

Can I ask a question?

I’ve had referrals for many months to ENT and Opthamology but no date to be seen, as yet. Should my GP have mentioned MSA?

I’ve had referrals for many months to ENT and Opthamology but no date to be seen...

Monkeyfeet1

•8 months ago

10 Replies

Chuckle Time

THE PERFECT HUSBAND Several men are in the locker room of a golf club. A cellular phone on a bench rings and a man engages the hands-free speaker function and...

THE PERFECT HUSBAND Several men are in the locker room of a golf club. A cellul...

Paul_and_Sue_Wood

•8 months ago

2 Replies

Pure Autonomic Failure

I posted on the site a few weeks ago but it was a very short post so I'm writing to expand on that. My partner has PAF (Pure Autonomic Failure) also known as...

I posted on the site a few weeks ago but it was a very short post so I'm writin...

Purplegoth

•8 months ago

24 Replies

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Norwegian Cruise

Sue and I completed our Ruby wedding anniversary cruise this week and it all went very well. I will be doing a full write-up for MSA Trust that I will also...

Sue and I completed our Ruby wedding anniversary cruise this week and it all wen...

Paul_and_Sue_Wood

•8 months ago

7 Replies

Bathroom adaption

Good morning, I pray this message finds everyone full of enthusiasm for the day ahead. My husband has MSA (C), and we need to adapt our bathroom to meet his...

Good morning, I pray this message finds everyone full of enthusiasm for the day ...

GranReRoLu

•8 months ago

13 Replies

diagnosed on Friday

54 year old male suffering balance issues amongst other thing diagnosed with MSA on Friday, just saying hello 👋

54 year old male suffering balance issues amongst other thing diagnosed with MSA...

AndyJack

•8 months ago

17 Replies

B complex

Hi all,just wondering de know the best time to take B Complex to while on sinemet4x daily ??

Hi all,just wondering de know the best time to take B Complex to while on sinem...

Fordcap

•8 months ago

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STAND AIDS - SIT TO STAND EQUIPMENT

I am losing the ability to get out of a chair or out of bed by myself. Currently need assistance from wife or carer on about half the occasions. Neuro OT have...

I am losing the ability to get out of a chair or out of bed by myself. Currently...

ReverendBadger

•8 months ago

23 Replies

another step

ceiling joists are in. Carer can’t use them without a number 2 so struggling as we were before! He’s not eating hardly anything, weight falling off. Speech...

ceiling joists are in. Carer can’t use them without a number 2 so struggling as...

Kaye31

•8 months ago

5 Replies

Fitness seems to be so important?

I just want to say how much exercising helps me manage this condition. I am living alone but I am at risk of falling over due to freezing gait and...

I just want to say how much exercising helps me manage this condition. I am livi...

janecbain

•8 months ago

13 Replies

Bladder control investigations

Hi all.So suddenly urology have decided they need to fully investigate my husbands urgency to urinate, despite his diagnosis of MSA at the start of 2022....

Hi all.So suddenly urology have decided they need to fully investigate my husban...

Schmall

•8 months ago

21 Replies

Gabapentin going,!!!!!

Has anyone else received what seems to be a round Robin letter saying it won't be prescribed any more. Up here ........Cumbria....there seems to be an...

Has anyone else received what seems to be a round Robin letter saying it won't b...

Polesden11

•9 months ago

6 Replies

pins and needles in feet

does anyone suffer from pins and needles in their feet and how do you manage it? TIA

does anyone suffer from pins and needles in their feet and how do you manage it?...

Trudy2020

•9 months ago

8 Replies

Never ending problems!

…. And I’m back! After being told prob wasn’t MSA now back to possible! Was blue- lighted into hospital suspected TIA. Thankfully it wasn’t but admitted...

…. And I’m back! After being told prob wasn’t MSA now back to possible! Was bl...

Bizzyissy

•9 months ago

5 Replies

Chuckle Time

A man sits at a bar and asks for 3 shots of whiskey. The bartender obliges. The man stares at the bar wall clock and when it reads 6pm he calmly downs the...

A man sits at a bar and asks for 3 shots of whiskey. The bartender obliges. T...

Paul_and_Sue_Wood

•9 months ago

2 Replies

Newly diagnosed msa

Hi I am currently in the process of diagnosis. The neurologist thinks that it is msa. I am currently looking for help and people to talk to.

Hi I am currently in the process of diagnosis. The neurologist thinks that it i...

thedjsupreme

•9 months ago

22 Replies

Promising New drug MSA phase 2 trail

https://parkinsonsnewstoday.com/news/ent-01-patient-msa-form-patient-atypical-parkinsonism/

https://parkinsonsnewstoday.com/news/ent-01-patient-msa-form-patient-atypical-pa...

Juliehabib

•9 months ago

2 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for August 2023

Can I ask a question?

Chuckle Time

Pure Autonomic Failure

Norwegian Cruise

Bathroom adaption

diagnosed on Friday

B complex

STAND AIDS - SIT TO STAND EQUIPMENT

another step

Fitness seems to be so important?

Bladder control investigations

Gabapentin going,!!!!!

pins and needles in feet

Never ending problems!

Chuckle Time

Newly diagnosed msa

Promising New drug MSA phase 2 trail

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive