Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for August 2020

arm chair

hubby is now badly leaning to the left and keeps slipping off the arm rest and then just hangs of his chair. OT said he needs yet another (we are on the...

hubby is now badly leaning to the left and keeps slipping off the arm rest and t...

ChocolatePot

•4 years ago

16 Replies

Are we nearing the end?

I'm new to this community but our family has been battling MSA for a long time. My mother in law began showing symptoms 9 years ago and is very far along. So...

I'm new to this community but our family has been battling MSA for a long time. ...

walkerjen

•4 years ago

10 Replies

Hi everyone, we're new and looking for help, advice and any nuggets of info to help us work through the possible challenges ahead..cheers!

Hopefully our profile blurb outlines who we are, but to flesh it out a tad... J was diagnosed approx' 5 yrs ago with Parkinson's, which was obviously a blow as...

Hopefully our profile blurb outlines who we are, but to flesh it out a tad... J ...

Boyyo

•4 years ago

27 Replies

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Living with MSA-C

I am reaching out to anyone that can help my husband learn and deal with his MSA-C. He was diagnosed in 2019, but had symptoms for atleast 2 years prior. His...

I am reaching out to anyone that can help my husband learn and deal with his MSA...

Andrashko

•4 years ago

5 Replies

Hello

Hi, my husband has MSA-p - would love to hear from anyone else in the uk in the same position!

Hi, my husband has MSA-p - would love to hear from anyone else in the uk in the ...

Crafty-grandma

•4 years ago

8 Replies

2 way communication

Has anyone here used a 2 way radio sort of thing for communicating in the house . If my partner is in bed and wants to attract my attention downstairs he has...

Has anyone here used a 2 way radio sort of thing for communicating in the house ...

Rafaina

•4 years ago

21 Replies

Leaking PEG

A bit of a wide ball question - has anyone got experience of a PEG that leaks and how it may be rectified? The PEG tube itself is no problem it's just as if...

A bit of a wide ball question - has anyone got experience of a PEG that leaks an...

Yanno

•4 years ago

10 Replies

Hospital Bed the next step? Other sleeping arrangements? May need to use a Hoist in near future.

My husband is quickly losing his ability to support himself and we may be moving on to the next stage... using a Hoist Lift. The OT suggests we get a hospital...

My husband is quickly losing his ability to support himself and we may be moving...

heysunshine

•4 years ago

35 Replies

Do you live in Oxfordshire, Worcestershire, Gloucestershire or Herefordshire? - virtual meeting on Thursday

We have our next virtual MSA Support Group meeting this Thursday 6th August at 6pm. We have a great bunch of people and we try to make the meetings fun as...

We have our next virtual MSA Support Group meeting this Thursday 6th August at 6...

Yanno

•4 years ago

1 Reply

My dad

I know that every case is different but my dad has been living with MSA for quite a few years but this past year he has gone down hill rapidly some days he's...

I know that every case is different but my dad has been living with MSA for quit...

Becca9019

•4 years ago

16 Replies

Living with MSA as best we can!

Husband diagnosed in 2014 having been apparently fully fit for 60 odd years.Things really hard now. The hot weather has rendered him very weak in all areas.

Husband diagnosed in 2014 having been apparently fully fit for 60 odd years.Thin...

Courgettegrower

•4 years ago

6 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for August 2020

arm chair

Are we nearing the end?

Hi everyone, we're new and looking for help, advice and any nuggets of info to help us work through the possible challenges ahead..cheers!

Living with MSA-C

Hello

2 way communication

Leaking PEG

Hospital Bed the next step? Other sleeping arrangements? May need to use a Hoist in near future.

Do you live in Oxfordshire, Worcestershire, Gloucestershire or Herefordshire? - virtual meeting on Thursday

My dad

Living with MSA as best we can!

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive