Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for March 2021

Not expecting that!

This weekend my husband was more unsteady on his feet and his speech worse, as the day progressed he was unable to hold his own weight, needing help to get up...

This weekend my husband was more unsteady on his feet and his speech worse, as t...

•3 years ago

Neck/head support

Today we had a visit from the community physiotherapist working with (I think she said ‘rapid response team’). She was very concerned about Ian’s head and neck...

Today we had a visit from the community physiotherapist working with (I think sh...

Courgettegrower

•3 years ago

Bronchial Spasm

Last night was a bit of a scare for us. John started not being able to breath. (He has MSA-C). He had an episode in the morning as he woke, where he couldn't...

Last night was a bit of a scare for us. John started not being able to breath. ...

•3 years ago

Want to take advantage of all our features? Just log in!

or

Needing opinions or facts with MSA-C

I need opinions. My husband has MSA-C, his sister is a chiropractor. She has started John on multiple supplements, so much in fact, that I feel overwhelmed...

I need opinions. My husband has MSA-C, his sister is a chiropractor. She has s...

•3 years ago

A hard question.

And so my wife Rita lies prone in hospital connected up to a naso-gastric tube for feeding and two intra-venous lines for medication. She is without speech...

And so my wife Rita lies prone in hospital connected up to a naso-gastric tube f...

•3 years ago

Careers from social services

We have been allocated 6 weeks care, 2 people 4 times a day. Has anyone any advice on living/dealing with this?

We have been allocated 6 weeks care, 2 people 4 times a day. Has anyone any advi...

Courgettegrower

•3 years ago

sleep problem

does anyone else have problems staying asleep. I an only sleep for about 5 1/2 hours per night. Due to my med timings I try to stay up till 2;30 so that I wake...

does anyone else have problems staying asleep. I an only sleep for about 5 1/2 h...

•3 years ago

NEWLY DIAGNOSED

Hello....I am Ann and was diagnosed by a neurologist with MSA two months ago. I am so glad that I have found this group as I have been so confused regarding...

Hello....I am Ann and was diagnosed by a neurologist with MSA two months ago. I...

•3 years ago

Pain

Sorry for another post and question my husband has said his ankle and down to just under food hurts and feels like his skin is coming away from his ankle any...

Sorry for another post and question my husband has said his ankle and down to ju...

•3 years ago

Breathing

Like to ask a question my husband last night when asleep l thought was snoring but as I listened it wasn’t on intake of breath it was a gurgling sound as he...

Like to ask a question my husband last night when asleep l thought was snoring b...

•3 years ago

Test for Parkinsons

The BBC are reporting today that a test for PD is 'in-sight. Will this though make an earlier diagnosis for MSA more probable?...

The BBC are reporting today that a test for PD is 'in-sight. Will this though ma...

•3 years ago

Newbie

Hi, I have just joined the group, to see what others have to say really, but its interesting to see others with similar questions. Particularly interested in...

Hi, I have just joined the group, to see what others have to say really, but it...

•3 years ago

Tips to help my Mum from afar

Hi everyone, Sorry if questions similar to the above have been asked many times before, but I have only found the forum today. Quick background, my Mum (57)...

Hi everyone, Sorry if questions similar to the above have been asked many times...

•3 years ago

Water infections, again

Ian is back in hospital with a UTI. He had catheter replacement 10 days ago following a 2 month run with the previous one. 2 days later the DN had to deflate...

Ian is back in hospital with a UTI. He had catheter replacement 10 days ago foll...

Courgettegrower

•3 years ago

Sorry

I went on this forum to see how other people with MSA were coping with their symptoms. There are a lot of folks much worse than me, and I’ve read too many...

I went on this forum to see how other people with MSA were coping with their sym...

•3 years ago

catheter

My husband had been having a couple nights with incontinence, but not often. The next thing that happened was he says he 'feels like he has to go', but very...

My husband had been having a couple nights with incontinence, but not often. Th...

•3 years ago

Diagnosed later in life

Hi I’m Lesley 60 My husband John is 87 Diagnosed eventually with MSA about 5 years ago Looking back his symptoms started 15 years ago with Erectile dysfunction...

Hi I’m Lesley 60 My husband John is 87 Diagnosed eventually with MSA about 5 yea...

•3 years ago

Diagnosis of MSA

How are you or your spouse diagnosed with MSA? Can you take parkinson medication to relieve symptoms? Or any medication?

How are you or your spouse diagnosed with MSA? Can you take parkinson medicatio...

•3 years ago

Swallowing Problems.

My wife Rita has been admitted to hospital with severe swallowing problems. There is talk of a naso- gastric tube being inserted so that nutrition, hydration...

My wife Rita has been admitted to hospital with severe swallowing problems. Ther...

•3 years ago

More Heartache caused by MSA

My lovely husband had a catheter fitted in December , I was slightly worried about it but it was a great success . He had his first change last Friday ....

My lovely husband had a catheter fitted in December , I was slightly worried abo...

•3 years ago

Thank you

I just wanted to say thank you to the MSA trust and Severn hospice for helping us when we need questions answered, and for caring for him through out the...

I just wanted to say thank you to the MSA trust and Severn hospice for helping u...

•3 years ago

Anxiety

My husband was diagnosed with MSA in 2014 although problems started in 2010. He is now confined to a wheelchair and has difficulties with speech and autonomic...

My husband was diagnosed with MSA in 2014 although problems started in 2010. He...

•3 years ago

Holidays

Hi My husband was diagnosed in November2020. He can still walk in the house with a walker and get up stairs slowly. With the end of lockdown approaching I am...

Hi My husband was diagnosed in November2020. He can still walk in the house with...

•3 years ago

Search posts

Pinned Posts

MSA Trust Community Guidelines

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Support Groups (36)

Living with MSA(34)

General chat(20)

Newly diagnosed(6)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec