Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for July 2022

BATHROOM ALTERATIONS

I am lucky enough to have my own bathroom (wifey has the ensuite) so can alter it how I want to suit me and my MSA. OT have been round and are looking into a...

I am lucky enough to have my own bathroom (wifey has the ensuite) so can alter i...

•2 years ago

annual travel insurance

I’m sure there must be a previous thread about travel insurance, but I can’t seem to find old conversations on the forum! I was a bit shocked to be refused...

I’m sure there must be a previous thread about travel insurance, but I can’t see...

•2 years ago

Thursday Chuckle

PEEING ON MY FLOWERS A little old lady was walking down the street dragging two large plastic garbage bags behind her. One of the bags was ripped and every...

PEEING ON MY FLOWERS A little old lady was walking down the street dragging two...

Paul_and_Sue_Wood

•2 years ago

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National Autonomic Unit at UCL

I just discovered that UCL hospital in London has a specialist team with expertise in the autonomic nervous system who take (NHS) referrals from across the...

I just discovered that UCL hospital in London has a specialist team with experti...

•2 years ago

Weight loss

Morning, is anyone experiencing weight loss, I know my husband is not eating such hearty meals as he used to, due to the swollowing situation, and he has...

Morning, is anyone experiencing weight loss, I know my husband is not eating suc...

•2 years ago

Thank you all!

I’m not sure who to thank for giving me access to previous posts and search features after my complaint of having no access. Thank you, ghost in the machine....

I’m not sure who to thank for giving me access to previous posts and search feat...

•2 years ago

NITROFURANTOIN (ANTIBIOTIC)

I would be interested to hear from anyone who has had this drug prescribed for UTI or indeed anything else.

I would be interested to hear from anyone who has had this drug prescribed for U...

•2 years ago

Thursday Chuckle

A PLANE IS ON ITS WAY TO TORONTO , WHEN A BLONDE IN ECONOMY CLASS GETS UP AND MOVES TO THE FIRST CLASS SECTION AND SITS DOWN. THE FLIGHT ATTENDANT WATCHES...

A PLANE IS ON ITS WAY TO TORONTO , WHEN A BLONDE IN ECONOMY CLASS GETS UP AND MO...

Paul_and_Sue_Wood

•2 years ago

24 HOUR BLOOD PRESSURE MONITOR

Well that was an interesting day ! My consultant ordered 2 tests at our last meeting; MRI brain and the 24 hr BP The latter finally came through 8 weeks...

Well that was an interesting day ! My consultant ordered 2 tests at our last me...

•2 years ago

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Extremely High Temperatures

"Never seen before in our lifetime" they just said on ITV. I DON'T THINK SO !! Anyway I've spent about 2 years of my life holidaying in Spain and lost count...

"Never seen before in our lifetime" they just said on ITV. I DON'T THINK SO !! ...

•2 years ago

Dishwasher Pods e.g. Fairy, Micrographia and Magnifying Glasses

Just got a pod out and find there were 2 stuck together, tried to pull them apart and it was obviously not just stuck but the plastic outer wrappers were...

Just got a pod out and find there were 2 stuck together, tried to pull them apar...

•2 years ago

10 things I have learned so far.

50 days from MSA dx and.. 1. Lots of health professionals have no knowledge of MSA, and might confuse or mishear it as MS so do always refer to Multiple...

50 days from MSA dx and.. 1. Lots of health professionals have no knowledge o...

•2 years ago

Introduction.

Good day everyone. I'm new here so still learning how this forum work so please be patient if I mess it up. My name is Ken and it has been 49 days, 20 hours...

Good day everyone. I'm new here so still learning how this forum work so please ...

•2 years ago

Thursday Chuckle

A man’s car broke down as he was driving past a beautiful old monastery. He walked up to the drive and knocked on the front door. A monk answered, listened to...

A man’s car broke down as he was driving past a beautiful old monastery. He walk...

Paul_and_Sue_Wood

•2 years ago

coping with depression

Can anyone offer any ideas for a recently diagnosed friend who is deeply depressed by the diagnosis. Feeling totally lost and unable to see ahead this person...

Can anyone offer any ideas for a recently diagnosed friend who is deeply depress...

•2 years ago

Heat wave

Has anyone ever tried a cooling mat for adults and found it efflective? Hisband is really struggling in this heat and it seems to have affected his condition...

Has anyone ever tried a cooling mat for adults and found it efflective? Hisband ...

•2 years ago

Vitamins and MSA

Today I sorted out a shelf full of overlooked and mostly out of date vitamins! They feel a bit redundant in light of the enormity of MSA, but has anyone any...

Today I sorted out a shelf full of overlooked and mostly out of date vitamins! T...

•2 years ago

Thursday Chuckle

An engineer for Boeing was headed to Vegas for a company convention. As he settled into his plane seat, he glanced up and saw the most beautiful woman he’d...

An engineer for Boeing was headed to Vegas for a company convention. As he sett...

Paul_and_Sue_Wood

•2 years ago

Oxfordshire, Gloucestershire, Worcestershire & Herefordshire Support Group THIS week

Just a reminder that the 4 Counties Support Group has a F2F - Face to Face meeting THIS Wednesday. If you plan to go (wonderful!) and haven't let Ian know...

Just a reminder that the 4 Counties Support Group has a F2F - Face to Face meeti...

•2 years ago

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MSA abductor paralysis

Could anyone tell me about abductor paralysis (abductor muscle of the vocal cord ) of MSA patients? Is this the late stage of MSA ? How can I care my...

Could anyone tell me about abductor paralysis (abductor muscle of the vocal cord...

•2 years ago

My Experience living with someone with MSA

My wife was diagnosed with MSA in late 2017. We joined the MSA group which was at the local Marie Curie Hospice. Had great support. Made decision to care for...

My wife was diagnosed with MSA in late 2017. We joined the MSA group which was a...

•2 years ago

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