Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for October 2020

Incontinence, where does this sit in the MSA route?

Hello all, I hope we're all well and keeping our best foot forwards, with a smile? Understanding that each persons MSA journey is different, and now...

Hello all, I hope we're all well and keeping our best foot forwards, with a smil...

•3 years ago

Virtual Support Group

Hi all. The MSA trust virtual support group for Manchester, Merseyside and Sheffield areas is Thursday 22nd October at 11am on Zoom. Contact the MSA Trust for...

Hi all. The MSA trust virtual support group for Manchester, Merseyside and Sheff...

•4 years ago

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Apomorphine pump; does anyone have any experience?

Hi Everyone This is my first post, we live in the UK and my husband (age 69) was first diagnosed as probable akinetic rigid Parkinson late 2018. He was...

Hi Everyone This is my first post, we live in the UK and my husband (age 69) was...

•4 years ago

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The funniest of things....

I appreciate I'm a bit of a 'Johnny come lately' having hardly seen a horse let alone gained my spurs, but just wondered if, amongst all the fantastic advice...

I appreciate I'm a bit of a 'Johnny come lately' having hardly seen a horse let ...

•4 years ago

Cerebellum Abnormality on CT Scan

I've been on HU for over a year maybe 2 and really didn't know if I had PD even though some symptoms seemed to fit. Just saw the movement disorder specialist...

I've been on HU for over a year maybe 2 and really didn't know if I had PD even ...

•4 years ago

MSA - new physical change and an old behaviour returning

Hi all, Just observing some changes in my husband. I'll look over at him and he'll be sat, watching tv or looking at his phone and every muscle in his neck is...

Hi all, Just observing some changes in my husband. I'll look over at him and he...

•4 years ago

Fundraiser on Times Radio

A bit of publicity for #MSATrust today. I did a quiz on the Matt Chorley show on Times Radio: “Can You Get To No10?” Entirely light-hearted and no prizes...

A bit of publicity for #MSATrust today. I did a quiz on the Matt Chorley show o...

•4 years ago

What can we expect from the Community Neurology Service (CNS) ?

Hi all, It dawned on me that I should have asked a few days ago, but we're due to have a call with a member of our local team, which has been set up by our...

Hi all, It dawned on me that I should have asked a few days ago, but we're due t...

•4 years ago

The smallest of things !

Hi all, Just thought I'd post a little observation, you never know it mighthelp. I was browsing our local Dunelm, obviously out of necessity, and wandered down...

Hi all, Just thought I'd post a little observation, you never know it mighthelp....

•4 years ago

Frequent falls when knee gives out

My husband was diagnosed with MSA-C about 2 years ago, although he had symptoms for a couple years prior. My question is, he has been falling every day lately...

My husband was diagnosed with MSA-C about 2 years ago, although he had symptoms ...

•4 years ago

Just Introducing myself

Hi All, Happy to be here but not, as I'm sure you all get. Seems like a very supportive community which is lovely. I care for my husband who was diagnosed...

Hi All, Happy to be here but not, as I'm sure you all get. Seems like a very su...

•4 years ago

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