Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,635 members • 1,295 posts

All posts for November 2020

4 Counties (GL/HR/OX/WR) Support Group Meeting this Wednesday 2pm

The next 4 Counties Digital MSA Support Group meeting is on WEDNESDAY 2nd December at 2pm. We have a Christmas theme to this month’s meeting. Let’s chat about...

The next 4 Counties Digital MSA Support Group meeting is on WEDNESDAY 2nd Decemb...

•3 years ago

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What a difference a tube makes...24 little centimetres (Supra pubic Catheter) !

Hello All, I mentioned that J was going to have a catheter fitted and thought I'd post how it went and what we've learnt so far. As always, I appreciate that...

Hello All, I mentioned that J was going to have a catheter fitted and thought I'...

•3 years ago

Has anyone had doors widened to accommodate a wheelchair? If so, is an838mm door satisfactory? Not enough room for a 926mm

•3 years ago

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A chance to help the MSA Trust

The Movement for Good is giving £120,000 to charities over 12 days at Christmas. £1,000 will be given to 10 charities each weekday from 7 – 22 December....

The Movement for Good is giving £120,000 to charities over 12 days at Christmas....

•3 years ago

Phase 2 Clinical Trial - Exenatide

I understand this trial is currently recruiting. From the UCL website: Exenatide as potential treatment to slow Multiple system Atrophy (MSA) disease...

I understand this trial is currently recruiting. From the UCL website: Exenati...

•3 years ago

Where have you gone?

I have been totally tied up with a complicated house sale and now I have come up for air I find that you are no longer on my list of groups and I have nothing...

I have been totally tied up with a complicated house sale and now I have come up...

•3 years ago

Hot head!

Hello All, Something that I've forgotten to ask, and has now become a more frequent 'thing' is a hot head. J started mentioning having patches of hotness...

Hello All, Something that I've forgotten to ask, and has now become a more frequ...

•3 years ago

head support

Here is a photo showing the C shaped runner with the "fingers" to support the head and the forehead support in sheeps wool.

Here is a photo showing the C shaped runner with the "fingers" to support the h...

•3 years ago

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Wheelchair Head support available

Does anyone have a problem with head support, if so I have a specialised support that fits to a wheelchair and allows head movement...ideally for collection...

Does anyone have a problem with head support, if so I have a specialised support...

•3 years ago

Possible environmental impact of diet and medications on the onset of MSA symptoms

Title: possible Environmental Impact of diet and medication on the onset of MSA symptoms: Question, Did anyone: 1. Have celiac or gluten intolerance? 2....

Title: possible Environmental Impact of diet and medication on the onset of MSA...

•3 years ago

Stomach pain with msa

Husband has been for cd scan today on stomach and pelvis as he gets chronic stomach pain and especially after having a poo do you think this is to do with msa.

Husband has been for cd scan today on stomach and pelvis as he gets chronic stom...

•3 years ago

Atropine....saliva management

Hi All, Wondered if anyone had used Atropine eye drops as a way of sometimes managing the build up of saliva? J has a number of tissues to hand at all times in...

Hi All, Wondered if anyone had used Atropine eye drops as a way of sometimes man...

•3 years ago

Exersise

Help. Im new to this game i need some exercises to be doing to keep my strength up for this amount of fighting..please advise

Help. Im new to this game i need some exercises to be doing to keep my strength...

•3 years ago

Hubby with MSA-C has started to have head tremors. Any suggestions?

He finds it quite a nuisance and discomfort. It happens whether he is awake or asleep. Is this treated with meds or just something else to put up with?

He finds it quite a nuisance and discomfort. It happens whether he is awake or a...

•3 years ago

4 Counties Support Group - This Wednesday at 2pm

We have our next digital support group meeting for the 4 counties of Oxfordshire, Gloucestershire, Worcestershire and Herefordshire this Wednesday 4th November...

We have our next digital support group meeting for the 4 counties of Oxfordshire...

•3 years ago

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