Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

1,774 members•1,424 posts

All posts for October 2022

Alternative therapies: Acupuncture

So - clearly there is no magic pill for MSA and my sister is deteriorating albeit gradually. As one of her carers I’ve personally had remarkable success with...

So - clearly there is no magic pill for MSA and my sister is deteriorating albei...

J0nstandard

•2 years ago

6 Replies

sleeping

Hi everyone just wanted a bit of advice my OH is sleeping for most of the time always seems tired can anyone enlighten me as to at what point in the disease do...

Hi everyone just wanted a bit of advice my OH is sleeping for most of the time a...

MF31

•2 years ago

2 Replies

Thursday Chuckle

The perfect shot A golfer stands over his tee shot for what seems an eternity to his partner. He looks up, looks down, measures the distance and wind...

The perfect shot A golfer stands over his tee shot for what seems an eternity ...

Paul_and_Sue_Wood

•2 years ago

2 Replies

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Thank you

Today I joined the MSA virtual coffee morning. Thank you for making me feel welcome and supportive. ❤️

Today I joined the MSA virtual coffee morning. Thank you for making me feel welc...

Bizzyissy

•2 years ago

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A very special day in the life of an MSA patient

I believe in making everyday with MSA count and look for something good in that day. However what happened to me on Monday 24/10/22 was beyond belief. Since...

I believe in making everyday with MSA count and look for something good in that ...

Madauntie

•2 years ago

9 Replies

electric wheelchairs

we are about to embark on an electric wheelchair. My question is, have any of you /partners had use of them and were they successful? We’re they able to use...

we are about to embark on an electric wheelchair. My question is, have any of yo...

Kaye31

•2 years ago

22 Replies

Is there any point in this?

my wife is at a stage whereby she sort of burps as she swallow's.sounds a little like sort of reflux. Just to put you in the picture, she now has great...

my wife is at a stage whereby she sort of burps as she swallow's.sounds a little...

Oliverwindsor

•2 years ago

4 Replies

So frustrated by this beast of a disease

As a spouse and primary caregiver who rarely posts, I am so frustrated by this disease and how quickly it advances. I thought I was losing Bart yesterday when...

As a spouse and primary caregiver who rarely posts, I am so frustrated by this d...

CanAmK

•2 years ago

13 Replies

thoughts?

thoughts? https://movementdisorders.onlinelibrary.wiley.com/doi/full/10.1002/mds.29005

thoughts? https://movementdisorders.onlinelibrary.wiley.com/doi/full/10.1002/md...

PaulaG3

•2 years ago

12 Replies

Any views on Modafinil

I've read a fair bit about positive tests relating to the use of Modafinil for the fatigue associated with MSA, which I have been diagnosed with. Does anyone...

I've read a fair bit about positive tests relating to the use of Modafinil for t...

GHG_

•2 years ago

7 Replies

Thursday Chuckle

In World War I there was trench warfare, and neither the Americans nor the Germans could get the upper hand. T hey were reaching a stalemate. One day, an...

In World War I there was trench warfare, and neither the Americans nor the Germa...

Paul_and_Sue_Wood

•2 years ago

4 Replies

ferritin level high

helloEveryone I hope you are well.My ferritin levels are high and before I see my neurologist I was wondering if anyone else had this too and how was it dealt...

helloEveryone I hope you are well.My ferritin levels are high and before I see m...

PaulaG3

•2 years ago

4 Replies

UTI and antibiotics

Hi My husband was diagnosed with MSA-P in October 2019. This is his first UTI. We went to our GP and the nurse prescribed MacroBID 100mg (Nitrofurantoin)....

Hi My husband was diagnosed with MSA-P in October 2019. This is his first UTI....

Bax21

•2 years ago

15 Replies

Thursday chuckle

Three couples are trying to get married. Three couples are trying to get married at the same church. There is a young couple, a middle-aged couple, and an...

Three couples are trying to get married. Three couples are trying to get marrie...

Paul_and_Sue_Wood

•2 years ago

5 Replies

Worried about power?

All As we will be hearing more horror stories about power cuts in the winter I have found the priority services register. This is to allows the power...

All As we will be hearing more horror stories about power cuts in the winter I ...

Paul_and_Sue_Wood

•2 years ago

3 Replies

Dr dx Parkinsons or Parkinsons Plus - another look at info

DH was diagnosed in December with either Parkinsons or Parkinsons Plus. He is struggling to get his head round Parkinsons, never mind looking at Parkinsons...

DH was diagnosed in December with either Parkinsons or Parkinsons Plus. He is s...

TigerGirl79

•2 years ago

3 Replies

insomnia

Hi everyone I was wondering if anyone has experienced insomnia with illness, Pete used to sleep a lot and now for last 3 nights has not slept which also means...

Hi everyone I was wondering if anyone has experienced insomnia with illness, Pe...

MF31

•2 years ago

9 Replies

VAT Exempt form

can anyone help, we are having some work done in our bathroom i believe there is a vat exempt form, does anyone know where to get it from so I can give our...

can anyone help, we are having some work done in our bathroom i believe there is...

Suz64

•2 years ago

15 Replies

4 Counties MSA Support Group (OX,WR, HR, GL) this Wednesday 2pm

The 4 Counties MSA Support Group meets on the the first Wednesday of every month at 2pm to 3:30pm. It will be a Zoom meeting with guests and, of...

The 4 Counties MSA Support Group meets on the the first Wednesday of every mon...

Yanno

•2 years ago

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MSA and arm action questions

Hubby is right handed so is always using. I am noticing that his left arm when not being used sometimes looks more fixed in a down position by his side with...

Hubby is right handed so is always using. I am noticing that his left arm when ...

567LMN

•2 years ago

14 Replies

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Posts - Multiple System Atrophy Trust | HealthUnlocked

Multiple System Atrophy Trust

All posts for October 2022

Alternative therapies: Acupuncture

sleeping

﻿Thursday Chuckle

Thank you

A very special day in the life of an MSA patient

electric wheelchairs

Is there any point in this?

So frustrated by this beast of a disease

thoughts?

Any views on Modafinil

﻿Thursday Chuckle

ferritin level high

UTI and antibiotics

Thursday chuckle

Worried about power?

Dr dx Parkinsons or Parkinsons Plus - another look at info

insomnia

VAT Exempt form

4 Counties MSA Support Group (OX,WR, HR, GL) this Wednesday 2pm

MSA and arm action questions

Search posts

Pinned Posts

Latest poll

Have you ever been advised on what benefits you and your family may be eligible for?

Topics

Archive

Thursday Chuckle

Thursday Chuckle