Posts - MPN Voice | HealthUnlocked

MPN Voice

10,647 members • 14,731 posts

All posts for March 2020

Covid 19 urgent message

Hi Maz, maybe everyone knows the following but my daughter who is a teacher has just received a message from nhs to say that nobody should take anti...

Hi Maz, maybe everyone knows the following but my daughter who is a teacher has ...

Aime

•4 years ago

28 Replies

Covid-19

The UK Chief Medical Officer has just said something very interesting, at least I hadn’t heard this before. Covid-19 is a two stage virus. First stage is flu....

The UK Chief Medical Officer has just said something very interesting, at least ...

Paul123456

•4 years ago

10 Replies

Replies

I’m really “enjoying” all the sweet helpful replies. Hopefully as I become more knowledgeable I can start giving some advice. Right now I’m still in the...

I’m really “enjoying” all the sweet helpful replies. Hopefully as I become more ...

Scrollernut

•4 years ago

12 Replies

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Are hospital waiting rooms safe if no-one is coughing or sneezing?

I've got my hematology appointment in the morning at 9:am so aim to be the first in, but like everyone else I'm getting a bit nervous around everything that's...

I've got my hematology appointment in the morning at 9:am so aim to be the first...

MarkD6701

•4 years ago

5 Replies

Bit nervous about what to do.

I'm still confused about what to do with this COVID 19 virus,should I self isolate for 14 days or...I was diagnosed with PV in 2017. I am due for a venesection...

I'm still confused about what to do with this COVID 19 virus,should I self isola...

keviekevstar

•4 years ago

13 Replies

ET and working in hospital

Worried at the moment, i work on a maternity ward, direct contact with patients , i have ET and medication interferon alpha 2a, i know its safer than working...

Worried at the moment, i work on a maternity ward, direct contact with patients ...

Jbut

•4 years ago

9 Replies

New Patient with ET for 18 years but developed some odd symptoms!

Hi - I am new to the group and have had ET for 18 years. I have been lucky to be able to have 2 healthy children while being treated on pegulated interferon...

Hi - I am new to the group and have had ET for 18 years. I have been lucky to be...

BeckyDing

•4 years ago

24 Replies

Social Distancing

This is an extract from the UK Government's Coronavirus website detailing who will have to take more stringent social distancing measures; 'People with cancers...

This is an extract from the UK Government's Coronavirus website detailing who wi...

Trueblue8

•4 years ago

2 Replies

Diagnosis Update

Thought I’d come on and give an update as not been on here since my initial diagnosis. My ET Jak2 positive was upgraded to Prefibrotic myelofibrosis after...

Thought I’d come on and give an update as not been on here since my initial diag...

ajdolly

•4 years ago

5 Replies

Et and conavirus

Just wondering are we still at increased risk if just on aspirin no chemo? Am a mental health nurse and have to go to work

Just wondering are we still at increased risk if just on aspirin no chemo? Am a ...

Irishgal12

•4 years ago

3 Replies

Low neutrophils, Hydroxycarbamine, Coronavirus and teaching?

I saw my Haematologist this morning and Hydroxycarbamine has had the right effect on my platelets they are down to 298, but it’s knocked my neutrophils which...

I saw my Haematologist this morning and Hydroxycarbamine has had the right effec...

Charlieapple2018

•4 years ago

6 Replies

At risk group ?

BBC news said "People in at-risk groups will be asked within days to stay home for 12 weeks" but who are they ?

BBC news said "People in at-risk groups will be asked within days to stay home f...

Lainy1

•4 years ago

2 Replies

Corronavirus

Hi everyone, I haven’t really thought much about the Coronavirus and MPN ET. I am only on blood thinners and aspirin as of yet as I only found out I had it a...

Hi everyone, I haven’t really thought much about the Coronavirus and MPN ET. I a...

Alicejj

•4 years ago

3 Replies

12 weeks isolation

Does this apply to people with MPN (who are under 70)? Would it be possible to get some specialist medical guidance on this matter? Thanks!

Does this apply to people with MPN (who are under 70)? Would it be possible to ...

intothewoods

•4 years ago

47 Replies

Hospital appointments

Just got back from hospital appointment for blood test/venesection/prescription fulfillment. The place and staff were calm as a can be, half full carparks &...

Just got back from hospital appointment for blood test/venesection/prescription ...

friendofpiglet

•4 years ago

4 Replies

Worried

Morning folks, I am not normally given to worrying, but after reading this morning in the Daily Mail, that if people over the age of 70 do not isolate when...

Morning folks, I am not normally given to worrying, but after reading this morni...

Superwoman

•4 years ago

6 Replies

WHO advice - mental health considerations during the Coronavirus outbreak

We are all of us in a very unsettling time, and are obviously worried about our own health with having a MPN, but also worried about our families and elderly...

We are all of us in a very unsettling time, and are obviously worried about our ...

Mazcd

Partner•4 years ago

5 Replies

For heavens sake, whoever is enjoying posting silly scary things. STOP IT.

For the people out there who get some sort of weird pleasure from scaring the mentally vulnerable amongst us, will you kindly please go away, shut up, and stop...

For the people out there who get some sort of weird pleasure from scaring the me...

Loubprv

Volunteer•4 years ago

8 Replies

Bield

Thank you for all your responses. I’ll speak to my doctor and try some anti inflammatory meds

Thank you for all your responses. I’ll speak to my doctor and try some anti infl...

Bield

•4 years ago

Be the first to reply

It breaks my heart

My parents are in their 70's and we've all discussed me going to stop with them for a period of time. They both have underlying health issues. My Dad is...

My parents are in their 70's and we've all discussed me going to stop with them ...

MarkD6701

•4 years ago

22 Replies

Let's start loving one another again

I know we are all worried at the moment about how the virus may affect us and our loved ones. This means our nerves may be frayed and our patience pushed....

I know we are all worried at the moment about how the virus may affect us and ou...

jillydabrat

•4 years ago

32 Replies

ET jak2 negative, first post

Hi, first post but have been a member since early January. I'll start with a little history. At the start of November last year, I started feeling a tingling...

Hi, first post but have been a member since early January. I'll start with a lit...

Wednesdaylad

•4 years ago

14 Replies

Advice: antacids aspirin nausea

I tried to change my diet less soda more healthy But have been getting heartburn burps some acid reflux I took some antacid and this did help But l read...

I tried to change my diet less soda more healthy But have been getting heartbur...

Dovme

•4 years ago

6 Replies

Dizziness

I have been having dizzy spells for the past week that have gotten worse. I am thinking it is because I am overdue for my phlebotomy. Hoping not related to...

I have been having dizzy spells for the past week that have gotten worse. I am ...

dladydi

•4 years ago

8 Replies

Bield

I was on 75mg aspirin but had stomach problems now on clopidogrel. Doesn’t help with pain in feet and toes.

I was on 75mg aspirin but had stomach problems now on clopidogrel. Doesn’t help ...

Bield

•4 years ago

3 Replies

Bield

I’m just so exhausted all the time and the burning pain in my feet is excruciating. I’m ET Jak2 positive anyone else feel this

I’m just so exhausted all the time and the burning pain in my feet is excruciat...

Bield

•4 years ago

25 Replies

Low Dose Aspirin

I have ET/MPL on Peg 45 mcg. I was told to take low dose Aspirin 75mg. I had quite a sever reaction once when I took 500mg, but was told to I had take 75 mg....

I have ET/MPL on Peg 45 mcg. I was told to take low dose Aspirin 75mg. I had qui...

Raphael_UK

•4 years ago

12 Replies

Mpn specialist n Ireland

I have got appointment to see mpn specialist at the Christie's soon which am happy about but am moving to n Ireland in a few months and worried am leaving good...

I have got appointment to see mpn specialist at the Christie's soon which am hap...

Irishgal12

•4 years ago

4 Replies

Query

Hi everyone, Wanting to ask a question. I am currently on chemo tablets (hydroxy), unfortunately I've got a uti and gp has prescribed antibiotics macrobid, can...

Hi everyone, Wanting to ask a question. I am currently on chemo tablets (hydroxy...

Simris

•4 years ago

9 Replies

ET

I am worried i may have leukaemia and not et as symptoms are similar, but it is only my platelets that are raised other bloods seem ok .

I am worried i may have leukaemia and not et as symptoms are similar, but it is ...

glyndale

•4 years ago

9 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for March 2020

Covid 19 urgent message

Covid-19

Replies

Are hospital waiting rooms safe if no-one is coughing or sneezing?

Bit nervous about what to do.

ET and working in hospital

New Patient with ET for 18 years but developed some odd symptoms!

Social Distancing

Diagnosis Update

Et and conavirus

Low neutrophils, Hydroxycarbamine, Coronavirus and teaching?

At risk group ?

Corronavirus

12 weeks isolation

Hospital appointments

Worried

WHO advice - mental health considerations during the Coronavirus outbreak

For heavens sake, whoever is enjoying posting silly scary things. STOP IT.

Bield

It breaks my heart

Let's start loving one another again

ET jak2 negative, first post

Advice: antacids aspirin nausea

Dizziness

Bield

Bield

Low Dose Aspirin

Mpn specialist n Ireland

Query

ET

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