It breaks my heart: My parents are in their 70's... - MPN Voice

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It breaks my heart

MarkD6701 profile image
22 Replies

My parents are in their 70's and we've all discussed me going to stop with them for a period of time. They both have underlying health issues. My Dad is diabetic and has a pacemaker and my mum has had heart bypass surgery. Having an MPN I also have lower white cells, but am in very good health. I'm so unsure what to do and it's breaking my heart! 😞

For all the doom and gloom is there any info out there to suggest that people with underlying health issues are coming through this fairly unscathed?

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MarkD6701 profile image
MarkD6701
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22 Replies
Helen1952 profile image
Helen1952

Hi Mark

I can't actually reassure you but I really feel for you.

My son is only 41 but was born with 5 major defects has had 3 open heart surgeries and has an ICD.

He works as a chef in a pub and his doctor has told him not to go to work but not necessarily to isolate.

He is seeing a few people as long as they can reassure him they are not feverish or coughing but this applies to him normally.

How do your parents feel about it?

Are you in contact with lots of people?

I know I'm not much help because I do think people with heart and lung conditions are more at risk especially if they are older.

Are your parents into technology could they face time?

Just wanted you to know I feel for your dilemma

Helen x

MarkD6701 profile image
MarkD6701 in reply to Helen1952

Hi Helen,

We used Skype so that's OK.

I've been trying to avoid people for the last few days and venturing into the supermarket only to get the stuff required (no browsing). I'm lucky that as I work from home I never see anyone, so contact is fairly minimal. I've even stopped using buses and public transport.

However, it would be nice to see my parents face-to-face, hence the dilemma.

Mark

katiewalsh profile image
katiewalsh in reply to Helen1952

Hi Helen, I’m in the USA & we’re being told that someone without any symptoms yet can still pass the virus onto others. Elderly people or those with certain underlying health risks are supposed to try & avoid others & practice self distancing. Best of luck. Katie

Applesnpears profile image
Applesnpears

Mark.

There are statistics from China that show that older people are at greater risk but the majority of older people contracting virus have survived. The other thing to remember is that doctors in the UK will be learning from the experience of doctors in China and Italy. This should improve the survival statistics. Existing medications are being tested for efectiveness against the virus so there is hope.

If you and your parents are all well you should be able to visit your parents without too much concern. Things may change over time so a visit now would help provide some reassurance, check they've got the medications and entertainment they need and you can also tackle any issues around the house that need attention. You can also make sure you've got contact details of neighbours and friends who can help with your parents shopping if you need to self isolate.

Speak to them on the phone as much as you can.

Best wishes

Steve

MarkD6701 profile image
MarkD6701 in reply to Applesnpears

Hi Steve,

Regarding the stats from China, it's good news that the majority of older people are ok.

It would be great to hear that there are cases where people who do have some severe underlying health issues have come through unscathed.

Mark

mhos61 profile image
mhos61

Hi Mark, I feel for you too. There is so much to consider as you’re all potentially vulnerable. It’s not an easy decision by any means.

What would the logistics involve for you to be with your parents? Do they live fairly near, or is distance an issue? How would you get there? If you’re depending on public transport - planning and executing your journey obviously exposes you to potential risk of infection and unfortunately, the possibility of infecting them too. If you have your own transport that would reduce the risk somewhat, but not entirely.

How do your parents manage on a day to day basis? Maybe you could help in different ways like organising online shopping etc and keeping in touch by Skype. You don’t say if you have any siblings who could help.

I care for my 94 year old Mum. She is still able to manage some things. I have filled one of her kitchen cupboards with emergency food supplies in case I, or my husband who is also immunocompromised succumb to this virus. Not easy times for us. I totally get you!

Mary

MarkD6701 profile image
MarkD6701 in reply to mhos61

Hi Mary,

My mum is 73 and Dad 76. Both are quite fit and healthy, so are very mobile and like to go for walks. My Dad's diabetes is well under control and he doesn't have any issues from his pacemaker, nor does my mum from her bypass surgery a few years ago. But it's always a worry.

Yes, I'd have to go by train, but was hoping to keep my head down for the en tire trip and take plenty of sanitizer.

Mark

Manouche profile image
Manouche

twitter.com/mpnadvocacy/sta...

Mazcd profile image
MazcdPartnerMPNVoice in reply to Manouche

Hi Manouche

thanks for the link to the video, excellent advice from Dr Ruben Mesa

mhos61 profile image
mhos61

If you do decide to visit your parents and the government impose self isolation for the over seventies (currently discussing), you will at least be able to support your parents with any requirements that they would need for self isolation.

It’s a dilemma for sure. It might be a matter of going with your gut instinct. I wish you all the best with your decision. Keep us updated.

Mary xx

shiftzz profile image
shiftzz

I feel your pain..

I am JAK 2 + PV

I live in the midlands and my parents are elderly, dad is 92, have a heart attack the day before his 90th birthday, survived CPR at home, since then he has been back in hospital a few times, he has rung 999 over 20 times, calls the GP’s surgery more or less daily, he has anxiety issues.

Mother 86, with early dementia, loses stuff, regular nightmare.

They have carers 4 times a day, mother refuses help. They have a lot of support locally, mother has recently had a slight car accident and now has started the process of evaluating her ability to drive.

My late sister died of a rare cancer, due to the nature of the locality, noting is secret, so me moving up there, my ‘cancer’ diagnosis would become knowledge to my parents, something I don’t think they could cope with.

I live 200 miles away, they’re unaware of my PV, or kidney stones or the fact that they thought I had pancreatic cancer two years ago. I ring them at least once daily, even when I was in hospital, they manage, just about.

As I said, I get your situation…

jillydabrat profile image
jillydabrat

Hi Mark

Boy does your post hit home. My mum is 96 and is in a residential home. Thankfully the home is closing it’s doors to non essential visitors today so I went to see her yesterday. As I was saying goodbye I had the overwhelming feeling that it was the last time I would see her and I cried all the way home. What I am worrying about is that I know all the staff are very dependent on their salaries so I just don’t know if they would stay away if they had symptoms.

I wish for nothing more than everyone’s elderly loved ones are safe and that we all come through this terrible time okay.

Love you guys

Jill

Xx

Mazcd profile image
MazcdPartnerMPNVoice in reply to jillydabrat

Jill and shiftzz, and everyone else with elderly parents or family members, my heart is going out to you all over this situation, it is so very sad that these measures are having to be taken to keep people safe and well, this is going to test us all in many ways. Best wishes Maz x

jillydabrat profile image
jillydabrat in reply to Mazcd

Thanks Maz, I am just so worried about when I will see mum again. I cannot see that anything regarding this outbreak will be resolved by the end of March so when will I see mum again? I hope everyone’s elderly parents are kept safe and well.

Mazcd profile image
MazcdPartnerMPNVoice

Hi Mark, this is indeed a very difficult situation, and a very difficult decision to you to have to make, and this is going to be a situation many of us will face. Maz x

MarkD6701 profile image
MarkD6701

It would be great to hear some good stories as well:

twitter.com/annaellis_net/s...

Mazcd profile image
MazcdPartnerMPNVoice

The World Health Organization (WHO) have produced some advice on coping with the mental health considerations, and does cover the subject of looking after older adults and people in isolation, and many other groups, like health workers, so have a look, it might help.

who.int/docs/default-source...

Aime profile image
Aime

My heart goes out to you all guys. It’s hard worrying about parents, kids, yourselves. Ehugs sent, not much I know but just to let you know I’m thinking about you and your loved ones. Kindest regards Aimexx😻😻

MarkD6701 profile image
MarkD6701

All,

I've decided to go and see my parents, but with a few conditions for a few days regarding no close contact etc.

Things like I'll use my own laptop and I won't touch my Dad's computer.

As none of use are showing symptoms and I've kept myself to myself pretty much for a few days it should be ok.

Best regards

Mark

Helen1952 profile image
Helen1952 in reply to MarkD6701

Well done Mark your parents must be proud to have such a loving and caring son

Keep safe

Helen

MarkD6701 profile image
MarkD6701 in reply to Helen1952

Thanks Helen.

I'm still nervous though. I went for a blood test earlier and it did occur to me that the phlebotomists must come into contact with many people. And as they get close when taking blood I've read it's easy to spread germs, even showing no symptoms. :(

Pte82 profile image
Pte82

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