Posts - MPN Voice | HealthUnlocked

MPN Voice

10,647 members • 14,730 posts

All posts for March 2020

Coronavirus (COVID19) - ADVICE FROM THE MEDICAL TEAM

Everyone should follow standard NHS advice this link will redirect you to the NHS advice page: https://www.nhs.uk/conditions/coronavirus-covid-19/...

Everyone should follow standard NHS advice this link will redirect you to the NH...

Partner•4 years ago

Polycythemia without Vera 18yr old son

One of my twins sons who are 18 went to college on a cheerleading scholarship and was diagnosed with polycythemia not with the Vera part only the polycythemia....

One of my twins sons who are 18 went to college on a cheerleading scholarship an...

•4 years ago

Reticulocyte counts in Polycythemia Vera

Anyone here with an elevated reticulocyte count but normal epo ? My epo is 8. I haven't seen a mention of this test in PV I did some research and it turns...

Anyone here with an elevated reticulocyte count but normal epo ? My epo is 8. ...

•4 years ago

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Manifest Drug Trial

Hello everyone. I had a lengthy appointment at Guys Hospital today with Professor Harrison and team to discuss the options for my progression from et to MF. I...

Hello everyone. I had a lengthy appointment at Guys Hospital today with Professo...

•4 years ago

Corona virus

Are we more at risk of a serious reaction to the corona virus?

Are we more at risk of a serious reaction to the corona virus?

•4 years ago

Coronavirus concern

I was wondering how serious this virus would be if contracted by anyone of us with an MPN We all cope with colds and various infections but this is...

I was wondering how serious this virus would be if contracted by anyone of us wi...

•4 years ago

Hydroxycarbamide and platelet count: is my experience so far typical?

A few days ago I saw the Haematology Clinical Nurse Specialist (CNS) for the first review (at 5 weeks) of my recently started chemotherapy treatment for ET and...

A few days ago I saw the Haematology Clinical Nurse Specialist (CNS) for the fir...

•4 years ago

Anyone else with PV with Jak2+ taking Jakafi20mg?

Welcome any feedback

Welcome any feedback

•4 years ago

Chances of getting ill with or without intervention

Morning Maz. Do you know whether there are any statistics showing risks of having a stroke or heart attack etc with and without treatment other than Aspirin?...

Morning Maz. Do you know whether there are any statistics showing risks of havin...

•4 years ago

Problem reflux

I was diagnosed with essential thrombocythaemia jak2 positive 3 weeks ago so all this is new to me been on hydroxycarbamide and aspirin but now I'm getting a...

I was diagnosed with essential thrombocythaemia jak2 positive 3 weeks ago so al...

•4 years ago

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