Posts - MPN Voice | HealthUnlocked

MPN Voice

10,832 members•15,125 posts

All posts for December 2016

ASH 2016 Dr Rampal shares MPN updates on Clinical Research with PV Reporter

Ruxolitinib (Jakafi) plus PIM and CDK4/6 Inhibitors First in ASH 2016 Series -...

Ruxolitinib (Jakafi) plus PIM and CDK4/6 Inhibitors First in ASH 2016 Series -.....

PVReporter

•8 years ago

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Dr Kiladjian at ASH 2016 Reviews Outcomes of MPN Patients after Interferon therapy discontinuation

Early Treatment with Interferon provides better Patient Outcomes - Second in ASH 2016 Series, PV Reporter -...

Early Treatment with Interferon provides better Patient Outcomes - Second in ASH...

PVReporter

•8 years ago

4 Replies

Raised potassium

Just wondering if anyone has had problems with raised potassium? Is it connected to having an MPN?

Just wondering if anyone has had problems with raised potassium? Is it connected...

Wendykim58

•8 years ago

11 Replies

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Merry Christmas everyone!

I hope you all enjoy the festive season and I wish everyone a very healthy new year. Love Mel xxx

I hope you all enjoy the festive season and I wish everyone a very healthy new y...

harleydavidson

•8 years ago

3 Replies

Christmas wishes

Wishing all our amin team at mpn voice a very happy peaceful Christmas , and thanks for you do for us .Also a verry merry Christmas to all my friends on the...

Wishing all our amin team at mpn voice a very happy peaceful Christmas , and tha...

Hidden

•8 years ago

5 Replies

Merry Christmas to Maz and ALL

Maz, can I just say a big thank you to you, Professor Harrison and all the rest of the team for all the support, advice and information you have given...

Maz, can I just say a big thank you to you, Professor Harrison and all the rest ...

Aime

•8 years ago

8 Replies

CHRISTMAS TIME IN RHYME

Friends, pray pause for a minute from your mince pies, Please put down your port and lend me your eyes. . . . . The tree is all decorated and beautifully......

Friends, pray pause for a minute from your mince pies, Please put down your port...

JediReject

•8 years ago

24 Replies

Gastrointestinal Issues

Are gastrointestinal issues common with MPNs? Anyone else have problems with it? Not on any medication.

Are gastrointestinal issues common with MPNs? Anyone else have problems with it...

Sklines

•8 years ago

5 Replies

The final result stress polycythemia aka Gaysbock syndrome.

Now after a confusing month now my final result after longg longg test and biopsy they told that i got stress polychythemia. Anyone have experince that? Any...

Now after a confusing month now my final result after longg longg test and biops...

Gloriusezra

•8 years ago

1 Reply

Platelets up and other blood results!

I've been on Anagrelide since mid-August (after 3 years on hu) and my platelet levels have been up and down in that time. Eight weeks ago they were 450, down...

I've been on Anagrelide since mid-August (after 3 years on hu) and my platelet l...

lizzziep

•8 years ago

7 Replies

Haematacrit levels up and down ?

Hi I was recently diagnosed with JAK2 + Polycythemia. I have had weekly venesections for the past 4 week aimed at reducing my haematacrit level from 50% to...

Hi I was recently diagnosed with JAK2 + Polycythemia. I have had weekly venesec...

Dianne-Guisborough

•8 years ago

21 Replies

Update

Morning to y'all I'm here in Dallas with family for the festive season. My I wish everyone a merry Christmas and happy New Year. I am doing well now on three...

Morning to y'all I'm here in Dallas with family for the festive season. My I wis...

Stevef10

•8 years ago

3 Replies

Newly diagnosed

Hi I am new. I am a 65 year old female and I have recently been diagnosed with Primary Myelofibrosis JAK 2 I am not having any treatment but since my diagnosis...

Hi I am new. I am a 65 year old female and I have recently been diagnosed with P...

Skye333

•8 years ago

9 Replies

Critical illness cover - successful !!!

Hello Everyone I wrote a post a month ago regarding my CI cover being refused back in April. I appealed the decision as I discovered that my insurance company...

Hello Everyone I wrote a post a month ago regarding my CI cover being refused ba...

forwardocho

•8 years ago

36 Replies

Good news!!

Just want to share with you all the great result I had at my latest haematology appointment. My platelet unit was 356 - the best it's been in a long long time!...

Just want to share with you all the great result I had at my latest haematology ...

Nickthedevil

•8 years ago

34 Replies

Bone marrow biopsy done

I had my biopsy yesterday, this after 3 months of different blood tests - all which are negative. The biopsy was definitely unpleasant, the worst being when...

I had my biopsy yesterday, this after 3 months of different blood tests - all wh...

Kimhock

•8 years ago

19 Replies

Headaches

The last week I have been suffering from terrible headaches and nausea. Any advice on what I should do

The last week I have been suffering from terrible headaches and nausea. Any advi...

Yasmin86

•8 years ago

6 Replies

Chronic fatigue and depression

Hi all. I have not posted in a very long time. I do however, read all your posts and keep you all in my prayers. I am fighting severe exhaustion and...

Hi all. I have not posted in a very long time. I do however, read all your posts...

Kinsalelady

•8 years ago

15 Replies

Loss of appetite

HU has really killed my desire to eat, has anyone got any tips on getting over this? I'm eating but nothing like I should. Richard

HU has really killed my desire to eat, has anyone got any tips on getting over t...

rjw1

•8 years ago

9 Replies

PV and prostate problems

I have been on HU now for 6 months plus daily aspirin...also suffer from high bp and colitis!! Recently my prostate has started to send me to the loo about 15...

I have been on HU now for 6 months plus daily aspirin...also suffer from high bp...

rjw1

•8 years ago

9 Replies

Nail problems .

Hi friends , just wondering if anyone gets fungal nail problem ? just wondered if HU can cause this , i have never had this in my life and its on my finger...

Hi friends , just wondering if anyone gets fungal nail problem ? just wondered i...

Hidden

•8 years ago

18 Replies

Bruising

Hi, there. I'm wondering if anyone can tell me anything about bruising when someone has ET? My Daughter is 17 years old and has ET. She has been accidently...

Hi, there. I'm wondering if anyone can tell me anything about bruising when som...

sue100

•8 years ago

13 Replies

France

Been diagnosed with JAK2+ PV for some time, currently on Hydro and Aspirin plus venesection. We are due to travel to France, Spain and Portugal for three...

Been diagnosed with JAK2+ PV for some time, currently on Hydro and Aspirin plus ...

shiftzz

•8 years ago

2 Replies

ET and antibiotics.

70 yrs old, ET, JAK2+, Hydroxycarbamide 500-1000mg daily, Warfarin 5mg, aspirin 81mg, factor V Leiden, peripheral neuropathy, intense burning in toes, no...

70 yrs old, ET, JAK2+, Hydroxycarbamide 500-1000mg daily, Warfarin 5mg, aspirin ...

Jerrymohler

•8 years ago

2 Replies

Jedireject

Just want to shout out to Chris that he's in our thoughts and heart even when we don't hear from him. Chris, you're very special to all of us and just wanted...

Just want to shout out to Chris that he's in our thoughts and heart even when we...

katiewalsh

•8 years ago

14 Replies

MAZCD & TEETH

Sry but don't recall. how to directly write to Maz. I'm hoping you can give us some answers about our gums and teeth. So many responded to a recent post that...

Sry but don't recall. how to directly write to Maz. I'm hoping you can give us s...

katiewalsh

•8 years ago

6 Replies

Sacked the haemotologist !

Phoned the haemotologist nurse and asked if I could change doctors as I've had enough of this smug git. He never tells me my blood count, never explains my...

Phoned the haemotologist nurse and asked if I could change doctors as I've had e...

conno61

•8 years ago

14 Replies

Pneumonia Jab

Any one with PV had the pneumonia jab? I had mine on Monday and within an hour started to feel unwell I ended up having to leave work and been off sick for 3...

Any one with PV had the pneumonia jab? I had mine on Monday and within an hour s...

littled

•8 years ago

11 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for December 2016

ASH 2016 Dr Rampal shares MPN updates on Clinical Research with PV Reporter

Dr Kiladjian at ASH 2016 Reviews Outcomes of MPN Patients after Interferon therapy discontinuation

Raised potassium

Merry Christmas everyone!

Christmas wishes

Merry Christmas to Maz and ALL

CHRISTMAS TIME IN RHYME

Gastrointestinal Issues

The final result stress polycythemia aka Gaysbock syndrome.

Platelets up and other blood results!

Haematacrit levels up and down ?

Update

Newly diagnosed

Critical illness cover - successful !!!

Good news!!

Bone marrow biopsy done

Headaches

Chronic fatigue and depression

Loss of appetite

PV and prostate problems

Nail problems .

Bruising

France

ET and antibiotics.

Jedireject

MAZCD & TEETH

Sacked the haemotologist !

Pneumonia Jab

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