I have been on HU now for 6 months plus daily aspirin...also suffer from high bp and colitis!!
Recently my prostate has started to send me to the loo about 15 times a day an 3 times at night
Got blood taken yesterday for PSA test...very worried about possibility of prostate cancer.
Do any of my male friends have urinary problems?
Best wishes
Richard....i live near Glasgow
Had similar, was passing blood, went for all the tests, enlarged prostate, pills, job done...
I am PV (8years) on HU and aspirin and of course much water and this end me to the loo about 15 times a day and 5 times at night but I this is the "polachiurie " the urologist tell me is due enlarge prostate and age , I try to care about but I give up and disturb me to the job and very hard to manage so often going to loo. I do PSA but result in range, so in this moment doing nothing.
Catalin ......I live near Brasov
Hi Richard
I have had prostate problems before with constantly needing to wee but passing hardly anything, saw the GP and ended up with a camera passed into the bladder to see the prostate, very unpleasant but on the plus side, no cancer and meds settled the prostate down. I still need the loo 3 or 4 times a night depending on what I drink in the evening but you get used to that, I have PV and have had for 12 years now, I was 60 this year but in general the Hydrox has made my life as "normal" as it can be, try not to drink an hour before bed and that helps, good luck with it all!
Mick.
I did have BPH that got so bad that I opted for surgery after the meds no longer worked. If you hvae not tried Alfuzosin and Tamsulosin, that us the place to start. There is another med Finesteride, that some opt for that lowers DHT and sometimes helps some.
Unfortunately for me, the urologist who did my surgery did not do the version of the Green Laser PVP that I agreed to do. He did a dull TURP without my knowing he would do that. The procedure was so aggressive and caused so much bleeding and inflammation that I went into reactive thrombocytosis and had to go back on chemo after years of not needing it. There were of course other negative effects from the TURP. If you do ever need the surgical oprion be sure the urologist takes your MPN into account and consults with your hematologist. My urologist did not bother with factoring my MPN into consideration. In hindsight, I doubt he bothered to check and/or even knows what an MPN is.
I learned a lot from this experience. You have to be very assertive as a patient if you want to receive high quality care. You have to require consultation between the specialists since some will not bother (though the good docs always do this). For those of us with MPNs, more minimally damaging approaches with minimal bleeding are better and safer. If you do ever need to move on surgery suggest considering a tissue shrinking apprach such as a TUNA or REZUUM. I wish these better options had been offered to me. Sadly we are sometimes on our own to sort all of this out.
Hope you find some solutions soon.
Fat fingers strike again! Make that "Full TURP" vs a "Mini-TURP." Based on my own experience "No-TURP" would be a better option. The tissue shrinking options really are a better choice if you need surgery. Do be sure to try the meds first as they can really help. Alfuzosin is easy to tolerate and Tamsulosin has multiple benefits.
I’m not aware of any direct link between MPNs and prostate problems and I understand that most are age related.
A recent scan showed mine to be quite enlarged, which explains some symptoms I’m getting.
Luckily a PSA test was clear so it looks like it’s age related BPH. No need for any meds yet and I’ll hold off on those and surgery as long as possible.
Considering trying herbal remedies such as saw palmetto but they’re expensive and there seems little proof they do any good..!
Hope your PSA test results are good.
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