Loss of appetite

[rjw1]

HU has really killed my desire to eat, has anyone got any tips on getting over this?

I'm eating but nothing like I should.

Richard

[Mwalimu]

You don't say how long you've been on HU. This happened to me at first but I have found taking the HU before bed has helped. I eat smaller amounts now and more often.

[rjw1 in reply to Mwalimu]

been on Hu for 6 months....but I have found my appetite has worsened since I had the winter flu jab!!

probably unrelated

[francesb]

Hi Richard, I'd recommend taking the Hu at bed time, then hopefully you sleep through any side effects. Also eat what you fancy when you fancy, I had a spate of having Magnum ice creams ((very calorific) almost every day for a while. Fortunately things settled and I got back to normal! Best wishes, Frances.

[linds]

Hello Richard

Do you like bananas? Eating one of those with a glass of milk gives you masses of goodness. Try it two or three times a day. Also coconut yoghurt.

Linds

[Mazcd Partner MPNVoice]

Hi Richard, you could speak to your GP about this and perhaps ask about being referred to a dietician for their advice. Maz

[rjw1 in reply to Mazcd]

Hi Maz, thanks fir that.

I know I've asked you before but I cant find your reply. Have you got the name of a specialist nurse in the Glasgow area as I need to speak to someone other than my haematologist

many thanks

[Mazcd Partner MPNVoice in reply to rjw1]

Hi, I will send you details in a PM. Maz

[rjw1 in reply to Mazcd]

Many thanks Maz

[friendofpiglet]

Same with me! Never quite sure whether the fatigue is partly caused by the lack of appetite or vice versa. I always take HU in the evening, with food.

Oddly, I haven't lost any weight whatsoever but do worry about not getting all the vitamins and minerals I need.

Will take Maz's advice and speak to my GP - haven't seen him in over two years so I can't be too bad but it's probably about time to touch base anyway.