Sacked the haemotologist !: Phoned the... - MPN Voice

MPN Voice

10,341 members14,253 posts

Sacked the haemotologist !

conno61 profile image
14 Replies

Phoned the haemotologist nurse and asked if I could change doctors as I've had enough of this smug git. He never tells me my blood count, never explains my bloods, says ET isn't a cancer and described hydroxy as ' a few pills '. The guys an idiot with no patient skills and a I know best attitude.

Hopefully I'll get a haemotologist who is interactive with patients and who I don't have to badger to get the minimum of information.

Written by
conno61 profile image
conno61
To view profiles and participate in discussions please or .
14 Replies
Superwoman profile image
Superwoman

That's the way to go 😁

Susangl profile image
Susangl

I am going to do the same, too many unanswered questions. Find out more on this site.

conno61 profile image
conno61 in reply to Susangl

You do. It's hard enough having to explain ET to the GP, but when your getting no feedback from the so called expert it's pathetic !

mhos61 profile image
mhos61 in reply to conno61

Well done Ian, I can't fault you. I think you get more respect when you stand up to incompetent practitioners.

Mary

francesb profile image
francesb

Hi, well done for insisting in another doctor, yours sounds awful. My haemotolotgist gives me my blood counts every time while I write them down, he is also very "matter of fact" in answering questions honestly, sometimes even a bit blunt, but I know I get the facts explained clearly and honestly. I do hope you get a better consultant quickly, if not perhaps complain via your GP? Maybe Maz has access to information as to who would be good in your area? Best of luck, Frances.

HI

I can understand your frustration! Boy I would be angry too. I like to know my blood results. Here in NZ we just ask either the place where you have the test done or the GP for a copy of the resullts.

We have a new system where all my medical Hx is sent via email to App on my phone, where I can access all my blood results. Of course I research all the results via Internet. When I visit my haematolgist I am prepared with all my questions!! Good luck with a new Haem. Kind regards Lyn

lizzziep profile image
lizzziep

Well done, hope you get a better one - though they seem few and far between!!

Nozboz profile image
Nozboz

I had similar and now I am at a new hospital with a great doctor after a google search to find a specialist in Polycythemia. Best decision I ever made although waited 6 years to do it.

Stevesmum42 profile image
Stevesmum42

Sorry bit late catching up with your post. CONNO61

After dithering for ages not really happy with my original heamo , I decided to go elsewhere to an MPN specialist.( Soooo lucky to find one not to far away, thanks to a member on this forum). What a difference.....he understands just what I describe to him gives me full answers to my questions , he is pleased I am a member of MPN voice, most of all he gives me confidence.....I consider I am so very lucky to be in his clinic. Now I don't want to talk down my last heamo as everyone has their specialties. Also I am very grateful for our great NHS...but if we can find a doctor with whom we feel comfortable and confident it makes our condition easier to deal with. Thanks to all those caring staff in our clinics.

Sorry I just went off on a "shout out to our lovely people who deal with us"

I do hope you find a heamo that you can respect and who respects you.

Best wishes to you. Sandy

conno61 profile image
conno61

Your spot on there . I think I've hit the jackpot too. I had a phone call from the haemo nurse to say there was an mpn specialist in Liverpool royal hospital . I'm seeing him early in the new year .

Stevesmum42 profile image
Stevesmum42 in reply to conno61

That's great, I hope it works out well for you.

Regards Sandy

Phelpsy profile image
Phelpsy

I know the feeling well ,

Good for you ,

I've just transferred to a MPN Consultant & im very pleased I did , my last Consultant didn't think the bone pain I get had anything to do with ET , until I found out from MPN voice its way up on the symptoms list . !!!!

as Sandy said I'm also very greatful for the wonderful NHS care we receive,

But also I want the best possible care

Boss1 profile image
Boss1

Well done. I also did this weeks after I was diagnosed back in 2013 (PV, Jak2 positive) You need a good 'team' around you and the personal skills of your consultant are essential. My haem is lovely and draws diagrams to explain things, is now with me on my natural and so-called 'alternative' ways. She has a warmth and humour about her that makes my visits less daunting. I too, got the nurses to organise this but I'm so glad I did.

Tintins profile image
Tintins

I agree having full confidence in the Medical team makes such a difference. The clinic I attend always informs me of my platelet count and sends a letter with the results too. Like you I changed doctors about a year after my diagnosis of ET. It was the best thing I did and helped me to understand my own health.

You may also like...

Anyone know haemotologist in Scotland using Pegasys

anyone else in Scotland is being treated by any haems who using it.

I was diagnosed with ET on 19/08/2013, by haemotologist, he told me my platelets have been high for 2 yrs. My GP did nothing!! Can I sue?

newly diagnosed, frightened. My GP missed my high platelets

they never told me. Three years on, they are rising rapidly, (1300 when I saw my haemotologist 2...

Worried after check up.

for my 8 week check up with my haemotologist yesterday and my bloods continue to be stable. I told...

Recently diagnosed ET

seen my haemotologist 2 days ago and he told me I'd tested positive for calr. My blood count over...