I've been on Anagrelide since mid-August (after 3 years on hu) and my platelet levels have been up and down in that time. Eight weeks ago they were 450, down from 520 three weeks previous to that. I went back yesterday and they were up to 590. So they've increased my Anagrelide to 4 per day ( 2 in the morning 2 in the evening) plus daily aspirin.
I take a photo of the results which go with the prescription to the hospital pharmacy. So I have a record and I keep a spreadsheet so I can monitor the results. I've noticed that over the last 6 months my white blood count has gone from 5.4 to 9 - should I be worried about that? It is still (just) in normal limits.
Also my gfr levels have now risen to 88 and it says stage 2 Chronic Kidney Disease on the results. The specialist nurse just said it was nothing to worry about, but of course I am worried!
I have been anaemic for most of the year but I am now just in the normal range.
I go back in 3 weeks to see if the extra capsule has worked.
I get very worried about strokes as a friend, who is 2 years younger than me, had a major one in the summer and is now in a home with vascular dementia. She was on warfarin.
On a brighter note I hope everyone has a lovely Christmas!