Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for October 2016

Anyone with ET and Lupus?

Hi everyone. So not having a good day. 3 weeks on and my achy back is no better and today I have woke up with a huge boil 😐 the reason I ask about Lupus is my...

Hi everyone. So not having a good day. 3 weeks on and my achy back is no better ...

mjfin72

•8 years ago

22 Replies

For Phelpsy!

Saw this and thought of you!! Best wishes Lizzie x

lizzziep

•8 years ago

4 Replies

Ugh - so dizzy

I've been so dizzy for the last week and a half or so. It's driving me nuts. Every time I get up, my head swims. Sometimes even when I'm just sitting at my...

I've been so dizzy for the last week and a half or so. It's driving me nuts. Eve...

Hidden

•8 years ago

16 Replies

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Thanks to Maz

I would like to thank Maz for making me aware of Dr Harrison. I attended her clinic today and I was amazed at the care provided by Dr Harrison and her team. It...

I would like to thank Maz for making me aware of Dr Harrison. I attended her cli...

Capri52

•8 years ago

11 Replies

MPN Voice Charity Christmas Cards

Support MPN Voice this Christmas by sending our charity Christmas cards, there are 4 designs available: Gardener’s Friend – measuring 14 x 14 cm (5½” x 5½”)...

Support MPN Voice this Christmas by sending our charity Christmas cards, there a...

Mazcd

Partner•8 years ago

4 Replies

Breathing difficulties

Hello, I have PV and no history of asthma but I'm currently having a hard time breathing. I read on another pv board that some people experience this in hot...

Hello, I have PV and no history of asthma but I'm currently having a hard time b...

Lucky_Me_

•8 years ago

6 Replies

Lactate Dehydrogenase

Hi lovely peeps out there, I have a question about LDH (Lactate Dehydrogenase) I believe this an enzyme test that is found in almost all body tissues. In my...

Hi lovely peeps out there, I have a question about LDH (Lactate Dehydrogenase) ...

Hidden

•8 years ago

16 Replies

Sweating

My hsband has PV for the last 3 years and is on HU and aspirin. He sweats excessively and certainly not proportional to whatever he is doing.Whilst out walking...

My hsband has PV for the last 3 years and is on HU and aspirin. He sweats excess...

Headinthesand

•8 years ago

4 Replies

Spleen question

Hi. I have MF and a bug at the moment, and I am finding that I am getting more pressure sensations and discomfort in my spleen... and this makes me feel sick....

Hi. I have MF and a bug at the moment, and I am finding that I am getting more p...

Mrs_Average

•8 years ago

2 Replies

Changes in urine

Hi i feel a bit embarras to write this , since starting HU , i have been drinking lots if water and other fluids , however im sure my urine seems to have...

Hi i feel a bit embarras to write this , since starting HU , i have been drinkin...

Hidden

•8 years ago

18 Replies

New Beginnings update

Morning all well I would like to update you on me and my New Beginnings. Well the new Narrowboat is back in the water and a lovely second home. I recently...

Morning all well I would like to update you on me and my New Beginnings. Well ...

Hughesf

•8 years ago

13 Replies

Is Acyclovir ok to take with HU?

Can we take antivirals for herpes outbreaks? I can call my dr tomorrow but thought someone might know. Thanks

Can we take antivirals for herpes outbreaks? I can call my dr tomorrow but thoug...

DH65

•8 years ago

4 Replies

Updated , 12 wk appointment today , !!!

Hi everyone hope your all keeping well & being kind to each other' ❤️ I was a bit disappoint today as not the results I wanted to here , my playlets have...

Hi everyone hope your all keeping well & being kind to each other' ❤️ I was a bi...

Phelpsy

•8 years ago

13 Replies

Statistics

Hi everyone, I've not posted for a long time but I do read all your posts which gives me so much support. I was just wondering if anyone knows how many people...

Hi everyone, I've not posted for a long time but I do read all your posts which ...

Kizzy03

•8 years ago

16 Replies

Needing reassurance - newly diagnosed

Hi I was diagnosed last week with both ET and PV - is there anybody else out there with both? I'm still trying to get my head around what I have been told and...

Hi I was diagnosed last week with both ET and PV - is there anybody else out the...

Jacquis

•8 years ago

11 Replies

Sticky blood with Giant platelets

HU and aspirin have lowered my platelet count to under 400. Upon diagnosis I was told my blood was "sticky" and contained "giant" platelets. My question is,...

HU and aspirin have lowered my platelet count to under 400. Upon diagnosis I wa...

Jerrymohler

•8 years ago

2 Replies

Should I be worried..?

I always take a photo of my blood results (so I have a copy) as I take them and my prescription to the hospital pharmacy. It's usually just one page but this...

I always take a photo of my blood results (so I have a copy) as I take them and ...

lizzziep

•8 years ago

10 Replies

Confused

Hi everyone. So I'm just back from seeing the out of hours doc. Have had a dull backache for a week now and from yesterday progressed to a sharp pain on the...

Hi everyone. So I'm just back from seeing the out of hours doc. Have had a dull...

mjfin72

•8 years ago

7 Replies

Not good news

Went to see the haemo last Wednesday. Platelets 977. He said carry on with the aspirin and ill see you in 3 months. On Thursday i had to see my GP for the...

Went to see the haemo last Wednesday. Platelets 977. He said carry on with the ...

conno61

•8 years ago

6 Replies

Lovely story about a couple close to where I live

http://www.bristolpost.co.uk/bristol-couple-given-all-clear-after-beating-aggressive-cancer-twice/story-29773707-detail/story.html

http://www.bristolpost.co.uk/bristol-couple-given-all-clear-after-beating-aggres...

James1731

•8 years ago

2 Replies

Tummy upset

Think this hu giving me upset tummy , not too bad ,but its there , anyone had this at first starting it , and will it hopefully ease off after few weeks . or...

Think this hu giving me upset tummy , not too bad ,but its there , anyone had th...

Hidden

•8 years ago

10 Replies

'Watch and wait'

Hi all I was diagnosed with PV, Jak2+ in 2014. Since then I've just been on aspirin and venesections when needed. Other than that, I'm checked every three...

Hi all I was diagnosed with PV, Jak2+ in 2014. Since then I've just been on aspi...

PT99

•8 years ago

5 Replies

Flu shot

With flu season coming , would you suggest getting flu shot? What do your doctors advise?

With flu season coming , would you suggest getting flu shot? What do your doctor...

lbailey1090

•8 years ago

20 Replies

Agree with this !

Thinks this is beneficial to us all .and wont do any harm . x

Hidden

•8 years ago

6 Replies

PV Survey

Hey everyone, I am not a PV patient but I stumbled upon this on the Patient Power website and thought some of you might have some interest. Steve (Sydney)...

Hey everyone, I am not a PV patient but I stumbled upon this on the Patient Powe...

socrates_8

•8 years ago

Be the first to reply

Myloproliferative neoplasm

Hello my name is Lisa . My doctor said that I have myeloproliferative neoplasms. I hAve an enlarged spleen, jak2 positive. I am on hydroxyurea. I have good...

Hello my name is Lisa . My doctor said that I have myeloproliferative neoplasms....

lbailey1090

•8 years ago

30 Replies

Feeling faint

Have not posted in a long time. However, I do read all posts. Thank you all for them. Two things have occurred recently. I had my fourth phlebotomy ten days...

Have not posted in a long time. However, I do read all posts. Thank you all for ...

Kinsalelady

•8 years ago

14 Replies

Feeling Hot then Cold

Hello, I was diagnosed with Essential Thrombocythemia last October (2015) after a routine blood test at my yearly ob/gyn appointment. She asked me to come in...

Hello, I was diagnosed with Essential Thrombocythemia last October (2015) after ...

Cupcake5967

•8 years ago

3 Replies

Mouth ulcers

Have ET been on Hydroxy for 18 months no problems at all. 2 weeks ago deleloped mouth ulcers have been on 2 lots of antibiotics now on steriod tablet as well....

Have ET been on Hydroxy for 18 months no problems at all. 2 weeks ago deleloped ...

Benjamin12

•8 years ago

7 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for October 2016

Anyone with ET and Lupus?

For Phelpsy!

Ugh - so dizzy

Thanks to Maz

MPN Voice Charity Christmas Cards

Breathing difficulties

Lactate Dehydrogenase

Sweating

Spleen question

Changes in urine

New Beginnings update

Is Acyclovir ok to take with HU?

Updated , 12 wk appointment today , !!!

Statistics

Needing reassurance - newly diagnosed

Sticky blood with Giant platelets

Should I be worried..?

Confused

Not good news

Lovely story about a couple close to where I live

Tummy upset

'Watch and wait'

Flu shot

Agree with this !

PV Survey

Myloproliferative neoplasm

Feeling faint

Feeling Hot then Cold

Mouth ulcers

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