Hey everyone,
I am not a PV patient but I stumbled upon this on the Patient Power website and thought some of you might have some interest.
Steve (Sydney)
An Observational Study of Patients Receiving Usual Care for Polycythemia Vera
On this Web site, you will find information on the REVEAL study, multicenter, non-interventional, non-randomized, prospective, observational study in an adult population (patients ≥ 18 years old) of men and women who have clinically overt polycythemia vera (PV) and are being followed in either community or academic medical centers in the United States. Additional useful resources include study participation, patient eligibility information, and brief overviews of selected topics such as PV.
LINK:
Best wishes
Steve
Dx of ET vs PV
JAK2 V617F Allele Burden and Thrombotic Events in Patients w/ JAK2 V617F Positive PCV/ET @ High Risk of Thrombosis
Managing Life With an MPN | What You Need to Know
SMC decision regarding Ruxolitinib (Jakavi) for PV patients in Scotland
