Statistics

[Kizzy03]

Hi everyone, I've not posted for a long time but I do read all your posts which gives me so much support. I was just wondering if anyone knows how many people have ET in the UK??

Kizzy

[Mardigras]

No idea Kizzy, but I am another new one.

I'm not sure where those statistics would be available. I guess we could ask our GPs.

Kind regards,

Marcia

[Mazcd Partner MPNVoice]

Hi Kizzy, there are approximately 650 new patients diagnosed per annum. Maz

[Kizzy03 in reply to Mazcd]

Thanks Maz I was just curious. By the way I'm still on the waiting list for a slot to collect money at the Theatre in Edinburgh so hope I get a busy show when it happens.

Kizzy

[Mazcd Partner MPNVoice]

fingers crossed that you get the busiest night. Maz x

[lizzziep]

I always wonder if anyone else in the waiting room has ET, of course being British I don't ask!! 😱😄

Lizzie x

[Kizzy03 in reply to lizzziep]

I know I'm the same I'd love to just know who lived near me. Im going to the conference in Newcastle soon so if anyone sees me say hello. With a name like Kizzy I'm sure you will spot me 😂😂

[Diam]

I would love to know as well, as I have ET as well.

Marigold

[Kizzy03 in reply to Diam]

Hi Diam , Maz has said about 650 people a year are Diagnosed

[Diam in reply to Kizzy03]

Thanks for that...we certainly are an exclusive group... 😀

[Hidden]

I read that we are .04% of the general population - a very exclusive club indeed. We should get t-shirts.

[Kizzy03 in reply to Hidden]

Yeah!! T-shirts we should!! 😀

[Kizzy03 in reply to Hidden]

Thank you for this info, I was just curious and Maz has said about 650 per annum are diagnosed but I'm not sure if that's uk or what world wide would be !!🤔

[Hidden in reply to Kizzy03]

I think the .04% is global. I'm in the states, so obviously I can't do the math and figure all that out. I'll leave it to you and Maz!

[forwardocho]

I was diagnosed with ET January 2016.

[mol56]

Not really relevant but interesting.

I read in the Telegraph at the weekend that Roald Dahl had myleo fibrosis (MF) .

[Scottishterrier]

HI Kizzy03

I have ET Jak2+since 1994 so please do not hesitate if you have any questions just askme the forums are great very informative ask Maz to match you up with a buddy they are peeps in same boat same age i have one we have seen each other through hard times personally and medically we actual met each other in person and proud to call her my best friend b