Have not posted in a long time. However, I do read all posts. Thank you all for them. Two things have occurred recently. I had my fourth phlebotomy ten days ago. Hemoglobin over 14. First time at a hospital. Usually I go to One Blood, which is a donation site. Never had a problem there. They remove the blood by gravity, takes about 25 minutes. I feel fine after. At the hospital they used a vacuum and took 500 ml in five minutes. After about three minutes when finished, I nearly fainted, lost bladder control, severe sweating. I was immediately connected to oxygen, monitors etc. As an old RN I seriously thought I had coded as all monitors were sounding. It was a terrifying one hour. NEVER again will I return there. Oh, I was diagnosed with PV just over a year ago.
Next, I have been having "weak spells". Feel like I am going to pass out. Have no clue why. Comes over me rather suddenly. I am well hydrated when it happens. Not sure if there is a glitch in my BP or hypoglycemia. Scary feeling to say the least. Lasts only a few minutes. Just wondering if any other PV person experiences this. I am just tired of feeling scared not knowing when it will happen again.
When I return to Florida in Nov. I will find a new hematologist for sure.
Sending love n hugs to you all. You are a great group.