Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for September 2015

Called back to consultation

I saw my consultant 2 weeks ago and was told as I was having bad night sweats he would see me in 8 week not 12. yesterday I get an appointment for...

I saw my consultant 2 weeks ago and was told as I was having bad night sweats ...

•9 years ago

Ednama

Has anyone any tips for my husband who produces no saliva due to drugs and infections, which makes it difficult to eat. Thanks.

Has anyone any tips for my husband who produces no saliva due to drugs and infec...

•9 years ago

A Room With a View

Hi folks just a quick update and to say I haven't abandoned you all, , my concentration levels not brill to say the least. . I'm still strong but my mouth is...

Hi folks just a quick update and to say I haven't abandoned you all, , my concen...

•9 years ago

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Coffee morning

Today I held a coffee morning for MPN. My work colleagues were amazing and we raised £109.38 xx

Today I held a coffee morning for MPN. My work colleagues were amazing and we ra...

•9 years ago

MPN Voice Nottingham Support Group

Meetings are held on the 3rd Wednesday of every month, 6 – 8 pm, in the Maggie’s Centre, Gate 3, Nottingham City Hospital Campus, Hucknall Road, Nottingham,...

Meetings are held on the 3rd Wednesday of every month, 6 – 8 pm, in the Maggie’s...

Partner•9 years ago

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Eating healthily and getting regular exercise

I've just started going to the gym again after being referred by my hospitals physiotherapy dept. I'm hoping to start running again and maybe even do a bit of...

I've just started going to the gym again after being referred by my hospitals ph...

•9 years ago

Bone and joint pain

I have found that eating cherries or drinking cherry juice is helpful for joint pain. It might help. Let me know.

I have found that eating cherries or drinking cherry juice is helpful for joint ...

•9 years ago

Cataracts

Afternoon all, well was at my haematology app this morning bloods all normal, they are really pleased with me so big smiley face 😀. Although they are...

Afternoon all, well was at my haematology app this morning bloods all normal, th...

•9 years ago

Polycynthemia Vera

Been on hydroxycarbamide since July following suspension of plebotomy. Initially my 500mg a day seemed to have no side effects but worryingly in the last...

Been on hydroxycarbamide since July following suspension of plebotomy. Initially...

•9 years ago

Good morning on a grey Wednesday !

Feeling a bit restricted ..got this big lump the size of an apple behind my knee ,It's called a bakers cyste ..makes walking painful .but don't stop me...

Feeling a bit restricted ..got this big lump the size of an apple behind my knee...

•9 years ago

The Jackpot at last. Jakavi approved

I have been approved to commence on Jakavi which I hope is good news and a relief. I am just waiting for my latest blood results before starting. Platelets...

I have been approved to commence on Jakavi which I hope is good news and a relie...

•9 years ago

Bone pain, is it normal for us?

I've was diagnosed with ET jak2 neg in 2008. Recently I have started to get a deep ache/pain in my right leg, it doesn't feel muscular, but more like bone...

I've was diagnosed with ET jak2 neg in 2008. Recently I have started to get a de...

•9 years ago

Dropping Hydroxycarbamide dosage

As I was diagnosed in January I'm still learning about MPN's, their effects etc. As my blood counts are dropping I've now been told to stop Hydroxycarbamide at...

As I was diagnosed in January I'm still learning about MPN's, their effects etc....

•9 years ago

Withdrawal of drugs and National blood cancer awareness month

So much for this. Just read the dreadful news of 23 cancer drugs to be withdrawn including some for rare blood cancers. Anyone know which ones ?

So much for this. Just read the dreadful news of 23 cancer drugs to be withdrawn...

•9 years ago

Day Zero

Quick update , , had Stem Cells rocket up line this morning , , now having 2 bag red cells but just had another temperature episode @ 39degrees , through that....

Quick update , , had Stem Cells rocket up line this morning , , now having 2 bag...

•9 years ago

Flu and other vaccines

As I'll be entitled to get the flu vaccine due to being on Hydroxycarbamide I wondered what else is worth having? Is it worth getting the pneumonia one as...

As I'll be entitled to get the flu vaccine due to being on Hydroxycarbamide I wo...

•9 years ago

Can blood be used for patients with severe Blood loss from patients with polycythemia JAK2 positive

I was wondering if patients with polycythemia JAK2 positive blood can be used for patients with severe Blood loss. I am not a doctor or resercher however at...

I was wondering if patients with polycythemia JAK2 positive blood can be used fo...

•9 years ago

Diet?

Are there things I can eat that will positively affect my platelet count?

Are there things I can eat that will positively affect my platelet count?

•9 years ago

Cataracts

Hi my merry folks, just wondering if anyone else has had this problem, have just been diagnosed with Cataracts left really bad, there was no sign of them last...

Hi my merry folks, just wondering if anyone else has had this problem, have just...

•9 years ago

Where from

I'm just wondering where y'all are from. I'm from Texas close to Fort Worth.

I'm just wondering where y'all are from. I'm from Texas close to Fort Worth.

•9 years ago

I am a Transformer

Not the kind that my grandsons like although I can change if my husband snores too much lol . I went for my appointment today and I now am a combo ! As the...

Not the kind that my grandsons like although I can change if my husband snores t...

•9 years ago

Today I am mostly...........

Itching !!!!!!!!!! Aaaaargh!

Itching !!!!!!!!!! Aaaaargh!

•9 years ago

Critical illness claim

Hi everyone! I have had amazing news today, my insurers have agreed to pay out on my critical illness. It is thanks to all the information that you gave me....

Hi everyone! I have had amazing news today, my insurers have agreed to pay out o...

•9 years ago

Why does your spleen become enlarged?

When I was diagnosed with MF I started having night sweats, lost weight, had itching, and most terrifying - I could feel my spleen. What the hell is that?...

When I was diagnosed with MF I started having night sweats, lost weight, had itc...

•9 years ago

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