Ceritinib was amazingly successful but pneumonitis meant we had to stop for now.
Carb and Pem with 3 cycles of Pem but new brain secondaries.
CT body today and Gamma Knife again as mets are symptomatic.
Lorlatinib possibly next if available: anyone with success with this or possibly Crizotinib/ Pem if CT stable or better.
Thought Pem would last longer in ROS 1.
Still a way to go but such a roller coaster ( not the nice kind).
Thoughts are with everyone else with this lousy illness and their poor families.