OT and FND - the therapist you should have on your team

[Lady4]

neurology.org/doi/10.1212/C...

The highlight:

Following a sensory-based OT intervention, 62% of individuals with FND were clinician determined as “improved.”

[Shimmyaway]

Unfortunately my experience of OT for FND was not sensory, In fact when I suggested I needed desensitisation therapy for noise sensitivity the OT said ' Well what sort of therapist does that?!! My reply .. I don;t know, I am not a health professional. Still, if that type of OT works, let's get the OT's trained up...but when will that happen??

[Lady4 in reply to Shimmyaway]

Sensory does help and can ground you, maybe graded therapy to noise could help. Is it that that sets off seizures?

[Shimmyaway in reply to Lady4]

Finding the right sensory therapist is a problem. I don't get seizures, but my reactions to noises (esp electronic ones) are shaking and yelping noises .... .difficult in shops, banks etc.

[Lady4 in reply to Shimmyaway]

Where are you based? Did you search the Re-Active directory I posted, definitely worth checking back every regular as new.

[Shimmyaway in reply to Lady4]

I'm probably a stone's throw from you, with a UK B postcode. I only quickly looked at the directory, as I got the impression it was US based therapists/doctors. Can your resend the link please? Thanks for your help .. I am running out of options!

[Lady4 in reply to Shimmyaway]

Your right, at the time I couldn't see any UK specialists within their Brain Bytes Directory, I will go back and check and let you know.Have you tried noise reducing headphones?

[Shimmyaway in reply to Lady4]

I prefer earplugs. Unexpected noises are the worst .. like the ubiquitous mobile.

[210272]

I wonder how that would compare to people with a sole diagnosis of migraine? Interesting stuff.

[Lady4]

I guess you could address the triggers with sensory input x