An Inspirational Story, full of Hope:... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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An Inspirational Story, full of Hope: Maureen's Story

Lady4 profile image
3 Replies

Check it out at:

instagram.com/reactivept/

This lady has had FND for 12 years, and she uses learn't techniques to help her stop her symptoms in their tracks and finally be "symptom free".

There is so much you can take away from this, hope it helps.

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Lady4
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AvacadoPits profile image
AvacadoPits

I wish I could have watched that video but it kept going in and out. My legs collapse and are completely useless. But of course, I never know when this is going to happen. I'm in physical therapy once or twice a week. But my son is getting married in June and I don't wanna fall to the floor and have no use of my legs and the article you put up Said that that woman had learned behavioral techniques to stop the f nd in its tracks. I don't know how else to get any info on this. But it sure would be helpful.

Lady4 profile image
Lady4 in reply toAvacadoPits

In the video, Maureen mentioned about taking her grandchild in the pram and now she has sensory tools with her and uses external focus techniques that help her when she fells her motor symptoms coming on. She always carried a little textured stone in her pocket which she could then focus on and also the external focus was on things around her using her other senses, like counting certain objects or noticing certain smells, I guess even sensory roll ons may help.

Its all about finding different things that work for you and bringing yourself back into control, its not an overnight thing but achievable with practice and its not a straight road to recovery but if you learn and accept that, I believe its half the battle.

Fear can stop us in our tracks and our brain then goes into "survival mode" (and that mode is essential to use to react to real danger) but sometimes it becomes overwhelmed and that mode is activated. so I believe, that if we tell ourselves and our brains that we are safe and we reinforce those things with actions, the brain then thinks its safe and you gain back control.

Hope that makes sense.

Re video: She had a few technical difficulties in setting the screen the right way up but if you start from about 5 mins in, its all fine.

Lady4 profile image
Lady4 in reply toAvacadoPits

Ps. Don't try and watch, its just two people talking and you can hear their emotions, just close your eyes and press play.

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