Mad as Hell

[Lady4]

Eventually had a letter following a telephone conversation with a Children's Psychiatrist.

The letter said I diagnosed ASD - however, she suspected it and I mentioned some sensitivities and observations - incorrect.

The letter said I opted not to have the assessment for Psychiatric aspects to identify factors contributing to my sons symptoms, as I was already aware of those. Incorrect - I was advised that the assessment would be an assessment similar ti what the Psychologist had already done and as there was no commission (no funding for FND alone), therefore "Talking Therapy" that the Psychologist asked my son back in July to do (which he agreed at the time).

But I guess the above wouldn't surprise anyone, but the real sting in the tail:

Suggesting that if talking therapy did not suffice, consider anti-depressants (suggested without seeing or talking to my son).

[210272]

Oh it's so maddening when their clinical letters are inaccurate. Did you record the consultations/conversations? Even if you didn't I'd ask your GP practice manager to ask the consultant to reissue the notes to reflect what was discussed accurately (as per the GMC guidelines on note writing).

[Lady4 in reply to 210272]

Hi, no sadly not as wasn't expecting the call. I have however, left a detailed message with the Dept highlighting the inaccurate information and requesting it be re-written.

[210272 in reply to Lady4]

More 'toxic admin' for you - just what you don't need and I hope they respond quickly. If they ask you to put in a complaint (they tell us that complaints improve services but I have yet to see that happen) I'd be inclined to politely decline since that's even more of a faff.

[Lady4]

Thanks x

[HappyGardener6]

Oh my goodness! No wonder you are feeling so angry. This is dreadful and apparently just what you can expect when trying your utmost to get somewhere with an fnd diagnosis. My GP once showed me a letter that she'd received from my Diabetes Consultant. She was completely shocked by the way that he talked about me. Sadly, I wasn't surprised as I disliked him immensely, due to him talking to me like a naughty school girl and placing his own spin on anything that I tried to talk to him about!Please take care of yourself. I know you want to help your son and that is fantastic, but you can't help if you run yourself into the ground.

[Shimmyaway]

Going forward I would checkout exactly what sort of 'talking therapy' is lined up for your son, who is doing it, what they are trained in and what is the aim of it. I was 'sucked in' by the title, talking therapy from an OT.... no treatment, no care plan produced, just management... then discharge...back to square one.

[Lady4 in reply to Shimmyaway]

Its a sad state of affairs. I was reading the updated rare condition FND that another member posted and it mentioned Psychodynamic psychotherapy.

[AvacadoPits]

If you get somebody who will evaluate your son, it may not be a bad idea To Just throw him on a little prozac, depending on how old he is. And it might help ease up his emotions. But obviously if you don't think that is the case, always stay away from meds. Once you start taking them, you've got another label. Personally I could not do without them. Changed my world.

[Lady4 in reply to AvacadoPits]

Thanks but getting through this without meds, holistically would be my preference, he doesn't have any faith in normal over the counter meds, so hopefully he feels the same way. We try spiritual healing if he is open to that.