Sensory Processing and PTSD

[Lady4]

I found this article really interesting (yet to read it all, initially attracted to images):

frontiersin.org/journals/ne...

[tinygianthuman]

Interesting and thanks for sharing, but I wish they shared what the ‘sensory-based adjunctive treatments’ actually looked like? I totally believe that sensory therapy of some kind would help… but where do we go to for that? Any ideas?

[Lady4 in reply to tinygianthuman]

Whats adjunctive treatments? I have just finished Sensory Month with Re-Active's Online Education Classes.

[tinygianthuman in reply to Lady4]

Aaaah, I couldn’t afford to join that unfortunately but think they’re a great team sharing really helpful information. Hope you got some useful insights from them.

[Lady4 in reply to tinygianthuman]

I joined on their offer but only for three months, so will miss them. I gained a lot of information and their was a slide yesterday on seizures and it listed the possible warning signs and different inventions, eg temperature change (if hot - use of cold towel), rapid breathing - breathing techniques, tight throat (something like that) - tangy sweet.

The key being to try and stop it at each stage but worse case scenario, get to a safe space and let it wave over you.

[daverussell]

Thank you. I've been investigating this awaiting a follow up neurology appointment. All my symptoms match disassociation disorder. I'm looking forward to reading this in more detail.

[Hidden]

Thank you for that article. I have sensory issues regarding sounds (clicking, tapping, repeating, mouth noise, feet dragging, on and on and on). I also have a physical reaction to movement (knee shaking, rocking back and forth, etc). The Veterans Administration doesn't recognize misophonia since not listed in DSM so these articles are very informative.

[Lady4 in reply to Hidden]

I hadn't heard of that so had to google, for others reading:"Misophonia (or selective sound sensitivity syndrome, sound-rage) is a disorder of decreased tolerance to specific sounds or their associated stimuli, or cues. These cues, known as "triggers", are experienced as unpleasant or distressing and tend to evoke strong negative emotional, physiological, and behavioral responses that are not seen in most other people."

Are:

feet dragging, on and on and on). I also have a physical reaction to movement (knee shaking, rocking back and forth, etc

all reslonses to certain sounds? As my son experienced "feet dragging" at one point.

[Hidden]

Yes, it's torture Thank you for your feedback. I discovered "misophonia" after an emotional meltdown to someone spitting sunflower seeds into a cup in a classroom. I wanted to knock his head off. I cried on my way home and googled it. I found Kelli Rippa and others suffer from it. Unfortunately, the Veterans Administration doesn't acknowledge it as a true disorder as it is not in the DSM 5. Thank you so much for your feedback. Truly appreciate it!

[Hidden in reply to Hidden]

There is a documentary called "quiet please" I watched on a United Airlines Flight. Its a real thing.

[Lady4 in reply to Hidden]

I don't doubt it for a minute.

[Lady4]

Oh sorry to hear that, I wasn't sure if you were a Veteran.

I think additional opposite sensory input may help and noise cancelling headphones. As a sensory condition, experimenting with different sensory techniques may help manage the symptoms.

As for a true disorder, my source went on to say:

It was first recognized in 2001, though it is still not in the DSM-5 or any similar manual. For this reason it has been called a "neglected disorder". Sounds a bit like FND But a disorder, nevertheless.

I am sure you have seem this post during your own advocacy but just in case:

bbc.co.uk/news/health-38842561

[Hidden in reply to Lady4]

Thank you I read the article and got distracted I meant to reply. Thank you for the information it was very helpful. I actually had not heard of FND before seeing your post. My next step is to see a neurologist. Thanks again.

[Lady4 in reply to Hidden]

I was referring to your condition being FND, more like they are both neglected conditions.