Feeling so fed up: I'm feeling so low I... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Feeling so fed up

Littlecook profile image
3 Replies

I'm feeling so low I want answers to whats going on my stroke like symptoms are stopping me working as the care home doesn't know what's my diagnosis are to deal with me ice got to have the fine needle test in face but we all know the NHS or hospitals if don't live in the UK. My doctor just says it's FND you are having all the tests and shows me the door .

I'm sitting on a time bomb I just want to give up .

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Littlecook profile image
Littlecook
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3 Replies
Brian1977 profile image
Brian1977

My wife is like that it makes me very sad :( we had to finally go to a private neurologist after getting fobbed off by nhs neurologist saying it was just migraines stop fizzy drinks and cheese ffs keep fighting 💪💪💪

Littlecook profile image
Littlecook in reply to Brian1977

Hello Brian

I've been on the phone to the hospital I'm on the waiting list for a EMG but no date for any appointment, I feel so tired it's like nothing is important I need to work but my boss want let me go to work I've been put on sick for 3 months but it doesn't pay the bills . I don't know what todo any more 🤔

210272 profile image
210272

Hi Littlecook,

Since you've got the FND dx the care home cannot discriminate against you. Ask your doc to write a list of work place accommodations you might need then get them to add anything they've missed and take it to the care home. Involve your MP if necessary.

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