I don’t post very often but always look at how you all are coping with this horrible disorder. I’ve been nearly 9 years with funcational gait disorder and done almost everything the gp, consultants, and phiso’s have done. The disorder is easier as I’ve learnt to manage and just get on with life as best as I can. My hubby and son are very good and look after me well, but our son has seen me like this most of his life and that’s the part that really hurts me.
As I’m coming up to my 9th anniversary when I lost the feeling in both legs and my body from the chin down, it’s a case of getting in and doing what I can to help when I’m up to it.
The last few weeks I’ve been suffering with my walking even more and now the stairs are becoming horrendous! I tend to put things that I need on the stairs and when I need to go up I will take something with me.
As anyone else suffered this long like me? I just wish I could walk down the high street, go around the shops not worrying that I cannot get in that shop with my Mobility scooter.
Your thoughts would be so good? Many thanks in advise