Neurologists U.K.

[JustDomUK]

Hi

Please can you advise what consultants you have personally dealt with, that have understood FND and know how to empathise. I’d really like to find a consultant that doesn’t insist I’m stressed and I must have been to get it and that doesn’t think that even though it’s neurological, it isn’t treatable in neurology.

Any suggestions are appreciated

Kindly, Dom

[Dot50]

Hi, I was referred to Professor Mark Edwards at St George's hospital London 2 years ago, travelling from North Wales to see him. He is one of the top specialists in FND in the country, highly respected. He is a lovely man, very easy to talk to, takes his time to listen to everything you say, and believes in you. He enrolled me on their 5 day rehab physio in-patient programme, where he recommended Botox injections in my calf muscles. Am now having these injections every 4 months nearer home, and I'm seeing some slight improvement after 17 years of slow deterioration in my walking.

Good luck and best wishes

Dot

[Leesaloo]

After being left, or different drugs that affected my mental health for 17 months, I finally with help got to Professor Mark Edwards who finally diagnosed me and put me on 4 weeks inpatient program at queens square London. After 17 months of tests and being told either they couldn’t help me as didn’t know what was wrong or told I had anxiety and depression, I was so grateful to have a diagnosis and help. I certainly never had anxiety and depression when I started this journey but through lack of answers I ended up suicidal. Never having being ill in my lifetime of 50 years this was a total shock with no answers for a long time. Getting to the right consultant in a shorter time would have helped immensely.