Hey y’all.
I just joined today. I was diagnosed with FND over the summer after years of no results and “perfectly normal” testing.
I’ve had symptoms essentially my whole life. Tremors that couldn’t be explained, fatigue that was crippling, migraines, whole body weakness, numbness that began in my feet and has progressed.
More recently (last two years) my chest pain has become a daily symptom (it feels tight, heavy, sharp at times, causing me to not be able to take full breaths) and an all over body pain that feels like my skin is being rubbed by sand paper and my skin hurts from any contact (fabric, touch, air). I’m nauseous every day, I have not had a headache free day in 10 months and migraines 3-5 times a week. I have fallen a few times in the last three months and my eyes have become blurry and very light sensitive.
My fatigue and weakness has left me unable to function many days. I have a cane to assist me in walking and today it was recommended I get a transit chair to aid when I am out with my family.
I am thankful I found this community as this has become very isolating. When people ask what’s wrong it is truly hard to explain, ya know?
I have four very active kids and it is so hard to maintain any sense of normal life with them but I try.
Thanks for reading all of this, if you survived my ramblings til the end. I really look forward to talking with you all and having a supportive environment while I manage life.