I was recenty hospitalized for two weeks and was told it was FND after a stomach virus. However, I had my follow up Friday and he thinks there is a multi diagnosis here and I am will be seeing neurologist who focus is gearded towards a auto immune and ms.
My apts are 6 hour commutes as I live in the middle of no where, but I have learned to keep advocating and doing what is best.
If this helps anyone, please feel free to reach out.
Best!
What symptoms did you have?
I was initially diagnosed with conversion disorder/ FND but I now have the correct diagnosis of a chronic brain infection.
Oh wow. How was the chronic brain infection diagnosed? And a lot of tingling and numbness in my feet and legs, loss of vision over the year, and a balance disorder that has appeared within the year. Then suddenly, numbness and weakness. I have no reflexes in my feet. And tingling in my face.
By blood test. NMDA receptor encephalitis. I paid privately for it. Because no doctor would listen to me or allow a second opinion, I had to pay myself for investigations. I'm now waiting to see a specialist neurologist. I am livid about it.
I also had Rheumatic Fever causing Sydenham's Chorea.
So I had 2 brain infections that were misdiagnosed. This was 5 years ago, and only recently got the correct diagnosis.
Hi Lily82
Which private hospital did you go to get your diagnosis?
I technically got the diagnosis on the NHS. But I did the blood tests in Spire.
Thank you
What hospital you at. And what’s the auto immune disease you have. I have similar issues. Been told it’s FND however some doctors have said a multi diagnosis. Then a grumpy doctor took over and now they have all shut down on me and said it’s fnd. They make out it’s in your bloody head though.
FND diagnosis and not coping well with it
FND Diagnosis Support 
Struggling with FND diagnosis 
