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Functional Neurological Disorder - FND Hope
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A little about me

I was diagnosed with fibromyalgia in 2003. I fought that diagnosis and refused to believe it was all in my head. In 2009 my pain got better. I was sleeping and I was even able to go back to work. I had a normal life again. Then I began crashing. My pain became so overwhelming I could barely move. I began shutting down. There was a period of about 4 months where I could not speak properly. My motor skills began declining. My digestive system was barely moving. It seemed pretty grim. My doctors were all very confused. It looked like Parkinson's but I am only 41. It resembles multiple sclerosis but the scarring doesn't fit. In march I was diagnosed with functional neurological disorder also. Both of these illnesses are related to stress. I am so glad to have found a place to be!

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I was diagnosed with Fibromyalgia in 2001. I had to go on disability in 2004. I have not worked since. I have the symptoms of Parkinson's Disease. I am only 42. I will find out if I have that on 9-8-17. I am going back to the Cleveland Clinic.

The worst part about functional movement disorder is not being able to drive. That has been a huge stress. Unfortunately, I am dependent on the taxi service, which isn't cheap. I haven't come up with a better solution. It is $130 to place an ad in the paper, plus $50 for each background check. I am going to look into placing an ad online.

If you have any questions about disability or Fibromyalgia, I might be able to help.


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I am on disability, too.

I am very lucky to have a carer and a very supportive immediate family. My kids were young when I was first diagnosed with fibromyalgia. Now my kids are all adults! We thought I had Parkinson's, ms and mixed connective tissue disease. I am just so happy it's not those things!


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