Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,876 members•3,144 posts

All posts for March 2017

Mimicking

I recently posted that my daughter was on a rehab for FND and was hoping this was going to be really helpful for her! Sadly not, since being home her FND is...

I recently posted that my daughter was on a rehab for FND and was hoping this wa...

LauraStimson

•8 years ago

4 Replies

The Elephant in the Room...

Been thinking about how apt the old parable about the six blind men and the elephant is to our various conditions...and our various battles with the medical...

Been thinking about how apt the old parable about the six blind men and the elep...

nurmihusa

•8 years ago

4 Replies

A little more research of interest...

My community friends. Technical info...Certainly over my head... But may be relevant in search for truth: From Psychiatric Times, March 2, 2017. Article...

My community friends. Technical info...Certainly over my head... But may be rele...

Hidden

•8 years ago

7 Replies

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Found Article on PNES - no access yet

All my community friends. Off radar now but had to make you aware. Ran across article in Psychiatric Times magazine for March, 2017 print issue regarding PNES...

All my community friends. Off radar now but had to make you aware. Ran across ar...

Hidden

•8 years ago

2 Replies

Losing job through FND

Hi everyone! I writing for some feedback on a subject that I think most of you have dealt with or are still dealing with, and that is, coming to terms with...

Hi everyone! I writing for some feedback on a subject that I think most of you h...

LEEJUNFAN

•8 years ago

9 Replies

Shirleysy11

Hi I'm a new be. Been under neurologist since last Nov. Lots of tests all clear got told I have Dissociation I was shocked. Can anybody tell me is that the...

Hi I'm a new be. Been under neurologist since last Nov. Lots of tests all clear...

Shirleysy11

•8 years ago

11 Replies

One of those days 🤣

So fell this morning walking the dog, covered in mud, lost a nail, but had fab walk with my lovey group and we all had a great laugh! Did some work then...

So fell this morning walking the dog, covered in mud, lost a nail, but had fab ...

englishmumof2

•8 years ago

3 Replies

Post FND conference... a bit more.

To all my community friends. Good morning. In spite of adverse health at moment, I am unable to rest. I have so many technical flaws to report from the little...

To all my community friends. Good morning. In spite of adverse health at moment,...

Hidden

•8 years ago

12 Replies

Applying for PIP

Can anyone give me any tips on what to write on the form and the medical assessment? Is there also a panel that you have to attend? This is my first...

Can anyone give me any tips on what to write on the form and the medical assessm...

DNE92

FND Hope UK•8 years ago

22 Replies

Where to go from here

So far things have been looking up for me since my diagnosis in October 2016. Although my symptoms are less severe and multiple as many here I still experience...

So far things have been looking up for me since my diagnosis in October 2016. Al...

AngelaB-1968

•8 years ago

2 Replies

FND and the system.

Brilliant work Dan has done bless him and I agree with the replies. We all will have to continue together to help each other through on this site until the...

Brilliant work Dan has done bless him and I agree with the replies. We all will ...

LEEJUNFAN

•8 years ago

7 Replies

My FND story

Hello everyone! My name is Andrea. I have been diagnosed with FMD for a while. My father also has an FMD diagnosis as well as additional organic problems. I...

Hello everyone! My name is Andrea. I have been diagnosed with FMD for a while. ...

Rosered175

•8 years ago

2 Replies

Jolts ...

So I get jolts ... Prof Edwards says it's a bit like when someone has Tourette's! I get it when trying to fall asleep and occasionally when driving. Driving...

So I get jolts ... Prof Edwards says it's a bit like when someone has Tourette's...

englishmumof2

•8 years ago

8 Replies

FND Conference - First Report.

My community friends. Left Atlanta early Saturday after cutting short my conference attendance. Now in Tennessee visiting family before returning to Seattle....

My community friends. Left Atlanta early Saturday after cutting short my confere...

Hidden

•8 years ago

22 Replies

No Bowel Movement

Hoping someone can help me please... my Mother died wednesday morning...I love my mom. I have been trying for 4 days to have a bowel movement. I have eaten...

Hoping someone can help me please... my Mother died wednesday morning...I love m...

Hidden

•8 years ago

15 Replies

Life with fnd

Hi all, this is a question that's been in my head over and over for a long time, I have looked at different websites about FND and they say you should still...

Hi all, this is a question that's been in my head over and over for a long time,...

Hidden

•8 years ago

34 Replies

Leaky gut

Just wondering if anyone has been diagnosed with leaky gut , as I have been studying up on the gut and the amount of damage to other parts of the body due to...

Just wondering if anyone has been diagnosed with leaky gut , as I have been stud...

Ronwyn

•8 years ago

8 Replies

FND

Hi My 22 year old daughter apart from numb down one side, ME, and can't walk far is permanently cold, her hands are like blocks of ice. Anyone else have...

Hi My 22 year old daughter apart from numb down one side, ME, and can't walk far...

heli65

•8 years ago

3 Replies

Could this be symptoms of FND

I'm new here so be gentle - I'm a 68yr old retired Army/Vietnam Vet. Back on 7 Dec, 2013 I woke up to find that I could not maintain my balance. All that day...

I'm new here so be gentle - I'm a 68yr old retired Army/Vietnam Vet. Back on 7 D...

chris1948

•8 years ago

46 Replies

Stress and FND

Hi everyone! Just like to thank you all for your kind replies to my above post. Wishing you all happiness and love ❤ Tony & Kim xx 😊😊

Hi everyone! Just like to thank you all for your kind replies to my above post. ...

LEEJUNFAN

•8 years ago

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symptoms

when I get excited happy or get startled by a loud noise I make a loud squeaking /squealing noise sounds abit like a mouse on helium does anyone else get this...

when I get excited happy or get startled by a loud noise I make a loud squeaking...

Chelle2017

•8 years ago

4 Replies

Fnd & Hypothyroidism

Hi, thank you for your previous comments. I am due to have a follow up blood test on Monday and I find myself five years down the Fnd line, hoping that...

Hi, thank you for your previous comments. I am due to have a follow up blood te...

3103Cookie

•8 years ago

3 Replies

Hi I'm new

I would like to know will this conditions ever be completely healed I've Been having difficulty walking and its not getting better is it time to except my...

I would like to know will this conditions ever be completely healed I've Been ha...

arlene9

•8 years ago

15 Replies

Does anyone else find that their symptoms are worse in the winter?

Hi Everyone, Just wondering if anyone else finds that their symptoms are worse in the winter? My muscles and joints completely seize up and my brain goes...

Hi Everyone, Just wondering if anyone else finds that their symptoms are worse ...

Hidden

•8 years ago

25 Replies

new here

just thought id dip my toe in and say hi for now a bit nervous but nothing ventured nothing gained :) is every one here from the uk or all over the world ??

just thought id dip my toe in and say hi for now a bit nervous but nothing ventu...

Chelle2017

•8 years ago

15 Replies

Conference Questions...

My community friends. Ended up with 36 questions (some with multiple parts) to take to conference. So proud of us all. Always take any add-ons. Will put on...

My community friends. Ended up with 36 questions (some with multiple parts) to t...

Hidden

•8 years ago

1 Reply

Negativity

Dear all, I'm writing this post so hopefully the person who was so negative to sunshineali reads this and will hopefully understand the pain they have caused...

Dear all, I'm writing this post so hopefully the person who was so negative to s...

Hidden

•8 years ago

13 Replies

Saybrookgirl

Why did you delete your post about me! Saying I should think of my children? I do everyday. Why such a negative post then deleted? Please no negativity....

Why did you delete your post about me! Saying I should think of my children? I ...

Hidden

•8 years ago

9 Replies

FND Conference Questions List Update (I think)

Hi my community friends. I have written this twice and lost in it "space" twice. I try again... Seaotter2020, who seems like a delightful person, wrote all of...

Hi my community friends. I have written this twice and lost in it "space" twice....

Hidden

•8 years ago

32 Replies

https://fndhope.org/registry

Here is the link to the FNDhope Scientific Registry https://fndhope.org/registry

Here is the link to the FNDhope Scientific Registry https://fndhope.org/registry...

Seaotter2020

Volunteer•8 years ago

4 Replies

Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for March 2017

Mimicking

The Elephant in the Room...

A little more research of interest...

Found Article on PNES - no access yet

Losing job through FND

Shirleysy11

One of those days 🤣

Post FND conference... a bit more.

Applying for PIP

Where to go from here

FND and the system.

My FND story

Jolts ...

FND Conference - First Report.

No Bowel Movement

Life with fnd

Leaky gut

FND

Could this be symptoms of FND

Stress and FND

symptoms

Fnd & Hypothyroidism

Hi I'm new

Does anyone else find that their symptoms are worse in the winter?

new here

Conference Questions...

Negativity

Saybrookgirl

FND Conference Questions List Update (I think)

https://fndhope.org/registry

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