Hi my community friends.
I have written this twice and lost in it "space" twice.
I try again...
Seaotter2020, who seems like a delightful person, wrote all of us to say there is a parallel effort to accumulate questions for a video Q&A at the conference on patient concerns.
This was a brand new but pleasant surprise to me.
Seaotter2020 offered to include our accumulated questions for consideration in that Q&A.
I will most certainly get what I have to FND.hope at the conference. I will also have as many paper copies on hand myself if they will allow people to pick one up and read what is on our minds.
I will be available to pick up any feedback and answers to our questions and try to report back to this community.
I think the video Q&A is great. I hope they include some of our questions. Anything that gets more exposure to our concerns and facilitates getting answers and help.
We all doing best we can. Thank you seaotter2020.
Dan / Seattle