new here

[Chelle2017]

just thought id dip my toe in and say hi for now a bit nervous but nothing ventured nothing gained is every one here from the uk or all over the world ??

[Hidden]

Hi welcome I have only been a short time glad I joined lots of friendly people good for getting things of your chest + endless supply of good advice.

[Hidden]

Chelle2017.

Nice to hear from you. Dan from Seattle, WA. This is an extraordinary place to come to talk. I love this community as they all encourage me to keep going.

A big welcome to you. Let us know how to help.

Dan / Seattle

[Ailsaw]

Hi , I'm in Fife Scotland , this is a great place to start we are all here to help and support each other through these tough times . I was diagnosed with fnd in December by Jon stone but have had it for years . Last August was my brains meltdown !

Ailsa

[arlene9 in reply to Ailsaw]

Hi so sorry to hear I was like this for years being treated wrong was only diagnosed now in January after a lot of test but lets make the best of it we still alive. .

[englishmumof2]

I'm in hertfordshire U.K.! Was in NY when I had my first attack 26/01/2014 (my 40th). This is amazing place you can ask questions and advice 😀

[WendyROB]

Hi,

I am from Vancouver Island, Canada. I don't usually post but instead read the posts to help me have an understanding of my diagnosis. if I relied on what my doctor said and his attitude and dismissive manner when I bring up my diagnosis of FND, I would think I was totally insane.

Wendy

[Hidden in reply to WendyROB]

Hi wendyRob,

Agreed! I feel the same.

Sunshineali 🌞💞

[Frustated]

I live near Bristol and am also new to the diagnosis of FND, lots of good advice and question answering here.

Cathy

[Hidden]

Hi

Welcome to the our family, we are all here to help, through the good and the bad.

So don't feel alone or frustrated as at least one of us as a similar symptom, so just ask for help, we are here.😁

Colin - Isle of Wight

[Chelle2017]

aw thankyou all I'm feeling less alone in this already x

[Hidden]

Hi, I'm new too, glad I finally spoke on here, loneliness was killing me and not knowing what would come next in symptoms was frightening. This website has helped me enormously, especially mentally, I'm not alone anymore. I'm glad for you like me have made first step. It's a big step too. Lisa. 😊

[Hidden]

Sorry forgot, I'm from Essex in England.

[Hidden in reply to Hidden]

Much love Lisa-Anne

❤️ Ali 😘

[Hidden]

Welcome chelle2017,

I've only been on here a few weeks and have already met and communicated with some amazing people so welcome and I hope we can help.

Go ahead if you have any questions we're all here to help.

Sunshineali 🌞💕

[cgarff]

Welcome to the site, it is a great wealth of knowledge from others who deal with this disorder. Because docs don't do much most times, we need to count on each other to learn what does and does not work, get support and know you are not alone in this hell. I'm from Utah, in the US. We are all around the world.

May I make a request from everyone here. Please go to fndhope.org/registry and fill out the New registry they have put up. It will help the medical community to know more about what is going on with us, and possibly give is opportunities to be part in medical studies so they can learn how to help us. That we don't get ignored, pushed aside or forgotten. And hopefully they can come together with better solutions. It is time that we are heard. We ARE important, and need help and recognition. There are too many of us That have been thrown under this umbrella of a diagnosis to not be heard. PLEASE make yourselves known and stand up for yourself. We need to be heard and taken seriously for once!!!!