EULAR Releases Recommendations for Managing Behcet Syndrome

[magician]

rheumatologyadvisor.com/dia...

[Jaxxi]

Very interesting. Thank you for posting. It’s good that it outlines a protocol for gastrointestinal involvement. My gastrointestinal issues are very debilitating at times but the CoE has offered no help or investigation. They latched enthusiastically onto a diagnosis of IBS I had 40 years ago, though. Pfffft. Literally.

[TheHud in reply to Jaxxi]

Which centre are you at Jaxxi? My irritable/spastic colon/IBS diagnosis was 1983. Do they ask for further evidence of documented severe episodes? I do have a few but getting access to my old records is proving difficult. To be honest in innerds and bits and bobs are in such a state I don't want any investigation of any sort. I still have nightmares about what I went through in 1983 it was horrendous at both ends.

Many thanks

[Jaxxi in reply to TheHud]

No requests for anything really. I just tell them about my GI troubles and they go hmmm.

[TheHud in reply to Jaxxi]

Which centre are you at please.

[Jaxxi in reply to TheHud]

Messaged you. I sense it is a lack of protocol at the root of it rather than any failing in my care team.

[Hidden in reply to Jaxxi]

Which COE? Is this said by...Rheumy or ? Please message me if you prefer. Thank you. PS I noticed someone else also asked.