5 years of ulcerated colitis then total colectomy and J Pouch created. 20 years of ongoing pouchitis has followed this surgery . 9 DVTs and a venal byepass. Autoimmune Anemia and severe headaches put down to Trigeminal Nueralgia , severe ongoing tendon and joint problems ,ongoing spinal problems with loss of feeling in left foot and left hand, ongoing eye problems
Just been told by new Rheumy that more than likely its been Bechets all along .........great!!
At least now i have answers and they will hopefully refer me to see a COE specialist for definitive answer and start me on meds/ treatments to try and control the many side affects of this syndrome